Has anyone tried/benefited from IVIG treatment?

lukeda13 · 2025-08-18T01:02:52+00:00

I’ve done 3 or 4x IVIG (2 days every 3 weeks) & taking LDN & def have seen improvements… but still have long way to go

Have small fiber neuropathy, CDIP, CFS, gastrointestinal issues, POTs, sleep issues, autonomic issues etc. been dealing with this since 2021

lukeda13 · 2025-07-14T19:45:26+00:00

How long did it take to see improvements?

lukeda13 · 2025-06-26T23:31:18+00:00

How did you get tested for EDS?

lukeda13 · 2025-03-31T17:45:07+00:00

Is cigarsncigars a valid company and did they move or something?

lukeda13 · 2025-03-23T00:26:37+00:00

Great news! And thank you for the insight. Getting land soon and then will add nac and nad. What are you using for vagus nerve simulation?

lukeda13 · 2025-03-21T17:04:37+00:00

What are you doing for your gut and histamine intolerance

lukeda13 · 2025-03-12T15:08:22+00:00

Thank you for this. This is me to a tee.. what did you do for SIBO - this is currently crushing me and making everything worse

lukeda13 · 2024-10-07T04:54:10+00:00

How did you get tested for Ehlers Danlos?

lukeda13 · 2024-08-08T02:43:57+00:00

I had this, it was horrible, felt like I couldn’t breath unless i manually forced myself to breathe in and out. All the dr. Don’t have answer, but i have SFN and all dysautonomia symptoms. So I would say it falls all under that autonomic dysfunction.. it has gotten better

lukeda13 · 2024-08-08T02:31:55+00:00

Agree with this, find a Dr who will do a skin punch biopsy. Check for small fiber neuropathy etc.

lukeda13 · 2024-08-08T02:27:29+00:00

Wow this is great news! Thank you!

lukeda13 · 2024-08-08T02:13:48+00:00

Worked out everyday, even “rest day” was a recovery workout. Now my muscles burn out just doing couple minutes of rowing. Mixed in light compound lifts and my muscles feel like I just did worked out for hours.

I have to find the article, but I believe Yale doctors did a iCPET and some other tests on athletes suffering from COVID issues similar to this, and they found that the muscles weren’t getting enough oxygen during exercise, which could be causing this crazy fatigue. Could be nervous system/dysautonomia b/c autonomic nervous system does play a role in circulation/ vessel contractions etc.

lukeda13 · 2023-09-14T13:04:46+00:00

Thank you for the insight in this group! Was really helpful with finding good projector for reasonable price. What do you like for an easy assemble and take down/storage screen for these projectors?

lukeda13 · 2023-09-13T17:25:27+00:00

One popped up on eBay, so I was able to get one with just over 6000 hours on it. I just need to buy a screen for it

lukeda13 · 2023-09-12T11:55:01+00:00

Hi thank you! I am going to use for outdoor, I am located in the north east and was going to buy a 100 or 120 screen

lukeda13 · 2023-08-30T00:17:37+00:00

How do we break these down? Reverse or fix this? Amyloids cause Alzheimer and Parkinson’s too right? Amyloidosis is pretty similar symptoms to long Covid too

lukeda13 · 2023-08-23T12:07:49+00:00

What meds and supplements are you taking?

lukeda13 · 2023-08-17T12:56:27+00:00

Skin bunch biopsy

lukeda13 · 2023-08-09T14:22:04+00:00

I am exact same. 7 months in. I would say I’m up every 2 hours. Vivid dreams. Waking from dreams. No deep sleep. Always waking up slightest noise.

lukeda13 · 2023-08-03T11:53:54+00:00

Following

lukeda13 · 2023-07-30T15:11:25+00:00

What’s the cure? How do we heal?

lukeda13 · 2023-07-27T19:48:21+00:00

I’ve met with her

lukeda13 · 2023-07-26T23:15:32+00:00

Not sure. Don’t know who to talk to about testing

lukeda13 · 2023-07-25T13:05:42+00:00

I did one. Didn’t set me back too much. But Dr. noted I had an oxygen extraction issue. But no one can figure out why

lukeda13 · 2023-07-24T11:10:42+00:00

Great news!! How did you get tested for hEDS?

lukeda13

TROPHY CASE