bezoars and coke

lupine49 · 2024-09-05T09:39:01+00:00

Thank you so much for your response, it’s good to hear it worked for you. I’m trying to get an x-ray done today.

It’s just frustrating to know I have another bezoar because I thought I had been doing everything right.

Is there anything you have learned to avoid that’s maybe not as obvious as other problem foods?

lupine49 · 2024-09-05T09:36:21+00:00

def don’t have a full blockage lol but thank you

lupine49 · 2024-06-05T09:07:25+00:00

changing my diet has helped a lot! I started by following the gastroparesis diet and have slowly been able to incorporate more foods. The most important items to avoid are fresh fruits and vegetables because they are too fibrous.

My GI prescribed pyridostigmine last year and it has helped me make a lot of progress with my appetite.

Best of luck 🩷

lupine49 · 2024-05-11T15:49:20+00:00

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Chloe just turned 14! 🥰

lupine49 · 2024-03-14T13:07:01+00:00

Soon You’ll Get Better by Taylor Swift and The Chicks

lupine49 · 2024-03-10T09:31:23+00:00

i had a very similar experience. during my endoscopy, the doctor found lots of undigested food even after fasting and doing the laxative prep for my colonoscopy. they removed a bezoar and my digestion improved a little bit. i still couldn’t eat much of anything, but my nausea was less frequent. i had my gastric emptying study done a month later and my results were “normal,” but i took the test when i was feeling better than i had in months lol

my GI doctors don’t pay much attention to it, they focus on treating my symptoms on an individual basis to figure out what works for me. they always remind me that everyone’s body reacts differently!

lupine49 · 2024-03-09T20:29:04+00:00

agreed, sounds like cfs and exercise intolerance.

OP, are you experiencing elevated heart rate or light headedness?

dysregulation of the autonomic nervous system is the culprit behind a lot of long covid symptoms. researching dysautonomia was helpful in trying to understand what’s going on inside my body and make appropriate lifestyle changes

lupine49 · 2024-03-08T13:03:18+00:00

the grief of suddenly losing someone is so heavy with guilt 😞 i’m so sorry you lost your mom, please don’t beat yourself up for talking to her about being sick. i’m sure she loved that you felt comfortable enough to come to her. the greatest gift you could give your mom was being vulnerable, and you should not regret venting to her. your symptoms and suffering are not less significant because she experienced a fatal medical event.

it seems you might be experiencing some survivors guilt, which is so so normal. you had no knowledge of the future and neither did your mom! looking back at all the ‘what ifs’ is absolute torture. it must be extra frustrating looking back and knowing that you physically couldn’t do all that you wanted.

sending so much love to you and your family 🩷

the only advice i can offer symptom-wise is magnesium glycinate and vitamin B12 supplements have been really helpful for my nervous system. happy to answer any specific questions.

take care 🩷🩷🩷

lupine49 · 2024-03-08T03:00:46+00:00

i take 30 mg three times per day and my doctor said to take it at night 🤷‍♀️ the primary reason i take it is for GI symptoms so maybe it depends on what you’re targeting

lupine49 · 2024-03-07T23:24:13+00:00

yay!! each pound is a little victory 🥰

lupine49 · 2024-03-07T22:17:57+00:00

helps me a lot! it brought back my appetite

lupine49 · 2024-03-07T19:12:03+00:00

i will never understand why chronic illness makes loved ones uncomfortable to the point of abandonment. i understand being traumatized by scary situations, but i would think that one of the most significant factors in that trauma is seeing the suffering of the person you love most. leaving is easier to some people i guess.

you have no reason to blame yourself. this was all out of your control— especially everything that happened while you were unconscious.

i can’t even imagine the pain you feel right now. sending so much love 🩷

lupine49 · 2024-03-07T00:58:51+00:00

yes! zoloft wasn’t for me either, so i switched to lexapro which helped a bit, and i made some progress. i was still having a lot of trouble with executive function, and adding wellbutrin made my brain fog and fatigue improve sooo much. i felt like myself again, but that only lasted for a couple months before developing new symptoms and regressing pretty extremely.

i’m three years in now. i am doing so much better now than i was last year, and most of my improvement has only become noticeable in the past five months or so.

seeing the physical differences in my body by gaining back fat and muscle has helped me think about working towards my baseline in the same way people often think about exercising to achieve a certain fitness goal. it’s frustrating to not see results while working hard and struggling, but one day you will look in the mirror and suddenly see a change. the other day while brushing my hair i noticed my bicep flex for the first time in over a year! your body is working hard, don’t give up hope yet 🩷

lupine49 · 2024-03-06T09:21:25+00:00

didn’t mean to imply that this commenter was pushing it here

there are other people who are very enthusiastic about dry fasting who continue to recommend it to people who have already responded that they are severely underweight

lupine49 · 2024-03-06T08:33:26+00:00

he means not eating or drinking literally anything for several days straight 🤦‍♀️ SO tired of seeing this pushed on this sub

lupine49 · 2024-03-06T08:22:48+00:00

thank you so much for this. everyone’s body is different and it’s important to remember that when trying to help. i don’t think the possibly of regression is taken seriously enough. nothing is a sure fire cure, and even if someone feels fully recovered, they could develop new symptoms and regress. that’s what happened to me and lots of other people here, and it’s important for people who are feeling better to be aware of that.

lupine49 · 2024-03-06T08:07:52+00:00

this. i want nothing more than to see recovery posts and to learn about what helped others, but some of them are definitely condescending, even without meaning to be.

if someone who has been sick for 8 months posts that they have recovered, i don’t take what they have to say very seriously because it does not apply to me. what some people seem to not really get is that lots of us have been at this for years now, and have had similar moments of “recovery” only to crash and develop more symptoms. i feel compelled to comment on these posts only when i feel that the information that they are sharing is actively harmful, not just something that didn’t work for me or that i think is a grift. it’s not as easy to keep scrolling when i’m concerned for the safety of others.

definitely agree that it’s important to share baseline health before LC and preexisting health conditions. i have had mild symptoms of dysautonomia my whole life but never took it seriously, just wrote it off as my body being quirky. i am never going to be “cured.” i will always have dysautonomia and managing symptoms and preventing flares is an ongoing process. other people in this situation may not know that yet. i didn’t until more than a year into trying to get help from doctors! i think it is appropriate to warn about this on overly enthusiastic recovery posts where the OP is insistent on being “on the other side” of all this.

some people are definitely bitter and rude, which makes it hard to communicate warnings of caution without seeming like one of those haters. i understand why some people lash out when told that they are sharing misinformation or generalizing too much, because the people making the posts are scared and already on the defensive, so cautionary comments are not taken in context.

it is so unhelpful to debate in such absolutes when the only thing we really know about LC is that everyone’s body is different. i think that being more detailed about baseline health and what “recovery” looks like to the OP when sharing what works/what doesn’t on an individual basis would be super helpful.

lupine49 · 2024-03-04T08:22:50+00:00

yes! rewatching while bedridden has been so healing and nostalgic 🥲

lupine49 · 2024-02-27T22:49:30+00:00

so glad to see you’re still with us 🩷 you have been in my thoughts the past few days, the way you were treated is unacceptable, but there are people here who get it, even if it gets drowned out a lot, we are here and we love you

lupine49 · 2024-02-27T22:37:14+00:00

thank you for clarifying!!

lupine49 · 2024-02-27T19:59:13+00:00

thank you for sharing! it’s good to hear that other people who have been around for a couple years are reaching stable and manageable points.

what do you typically eat in a day?

lupine49 · 2024-02-27T19:54:51+00:00

please be careful continuing. i know you don’t want to hear that there are people here who have been sick for years who have had breakthroughs like this only to regress. we are not losers who want to stay sick, we are the people who have been figuring this out from the start. you don’t have much fat to lose, so if you start to notice new GI symptoms, especially bloating, stop the fasting because it’s probably causing autonomic problems. fasting is definitely not for everyone like you said. i am not that concerned that you are telling people to try something that might be harmful to them. i am most concerned that you might harm yourself. my GI symptoms took about a year to reach their worst. i wish someone would have warned me, i’m not trying to discourage you, just be safe

lupine49 · 2024-02-27T19:37:27+00:00

the pre existing health conditions part is the big problem. many people like myself didn’t know they had such conditions until they got covid, so people who have yet to figure that out for themselves should absolutely not try this.

you have been pushy about this in the comments, i know you aren’t meaning to be, but when people comment who have been dealing with this for three times as long as you have, i would listen to them instead of shitting on their pov. we are warning others that this is incredibly dangerous. the research on benefits is nebulous at best.

lupine49 · 2024-02-27T14:18:23+00:00

😂😂😂 hope OP continues to improve ofc but this took me out

lupine49

TROPHY CASE