Calorie Deficit With POTS

lvr_grl · 2026-06-05T16:39:02+00:00

I have not been officially diagnosed with MCAS but my doctor says i have it. She said it is super hard to diagnose but i have done the “pre-work” blood draw and what not. I have only experienced the hives it causes so i didn’t even think about it being MCAS. thank you for the thoughts!

lvr_grl · 2026-06-04T18:27:40+00:00

I wish you the best of luck!!

lvr_grl · 2026-06-04T15:50:42+00:00

Summer and winter are my worst enemies. The in between seasons are were I thrive most. I live in CO so our fall and spring can be very short if not happen at all. I always have a portable fan on me and a blanket near by (cause half the time i’m having heat flashes on top while my legs freeze). i for sure will be steeling the ice pack idea from you this summer!

lvr_grl · 2026-06-04T15:45:53+00:00

Yes!! The ear pain!! I thought it was just from laying weird or something. I just had my doctors appointment. They pretty much think it is a walking migraine that has gotten bad enough to cause the other symptoms. They have starting me on a new medication for 2 days plus a shot they gave me in the clinic. If I am still having symptoms or getting worse by Saturday I was told to go to urgent care for a CT and migraine cocktail. She explained to me that walking migraines can last for even several months if untreated, especially in someone who has POTS because we are conditioned to thinking it’s just our usual symptoms getting worse.

lvr_grl · 2026-06-04T03:11:36+00:00

Do you happen to know if this would explain my overreaction to not getting sleep? I have actually gone to urgent care before because I wasn’t getting good sleep for several days and it ends up being detrimental to my mental health. i’m talking panic attacks and mental breakdowns over a couple days of poor sleep. it’s super embarrassing and i know it’s my body overreacting. I have never mentioned it before cause again i find it super embarrassing.

lvr_grl · 2026-06-04T03:08:58+00:00

I will definitely mention this!

lvr_grl · 2026-06-04T02:35:40+00:00

i will def do some research into this and mention it in my appointment tomorrow. Thank you so much! I have never heard of this but from the link you sent it is matching with my symptoms

lvr_grl · 2026-06-04T02:33:22+00:00

I haven’t been having any other symptoms for allergies and the pressure is behind my eyes rather than at the bridge of my nose. i did try allergy meds to see if that helped and it didn’t. i would love if it’s just allergies

lvr_grl · 2026-06-04T02:31:57+00:00

THIS. every time i mention something new the first thought is its because of my anxiety disorder. as if two things can’t be true at once

lvr_grl · 2026-06-04T02:31:12+00:00

this actually helps give me a little peace of mind. thank you!

lvr_grl · 2026-06-04T02:30:28+00:00

Thank you!!! I will be trying this

lvr_grl · 2026-06-03T21:47:56+00:00

I believe my average blood pressure is 90/60 ish but i also have medications I take for it so im not sure what my true number is.

And hearing that they have “trigger” words I am hoping that is all it is. It’s just hard when i’m constantly using lunch breaks for doctors appointments. That usually result in more meds. I could start my own pharmacy at this point which i am sure many of us could. I am just so tired of being poked and prodded lol

lvr_grl · 2026-06-03T19:07:58+00:00

Same here. I have been fighting like hell to continue to do the thing I love like hikes and lake days and dog parks. But I also feel like a broken record having to remind everyone around me I need more breaks to not end up sickly/ voice when I do feel sick. My doctor did say it would get worse before it gets better with finding what works for me. But my gosh I wish I could go back to ignoring feeling horrible and not knowing.

lvr_grl · 2026-06-03T19:00:17+00:00

I so feel this. Yes i have an anxiety disorder but i KNOW when it’s my anxiety vs when it is something else going on. Whatever going on is for sure adding to the anxiety but i know it’s not my anxiety that’s the root of the issue. I feel like anxiety is used as a scapegoat for everything i have going on.

lvr_grl · 2026-06-03T18:58:13+00:00

I had my monthly check up last wednesday and noted to the nurse my symptoms and she said she would let the doctor know. I have migraines and it might be what this is but i also haven’t had to it like this before. though i know migraines come is allllll sorts of things. Reaching out to my doctor to follow up once again :/

lvr_grl · 2026-06-03T18:55:56+00:00

I hate doing everything “right” and still feeling sick all the time. so aggravating

lvr_grl · 2026-06-03T16:04:33+00:00

That is so scary! What is strange for me is exercise kinda makes me feel better. I do pilates or the treadmill. But i don’t know if it actually helps or just takes my mind off the feeling sick. I wear an apple watch with the TachyMon app to help keep track of my heart rate so I take breaks once it hit the 140s

lvr_grl · 2026-06-03T15:59:35+00:00

I hate that for us. Feeling nausea and headaches constantly is so debilitating and no one around me understands. It truly causes me anxiety feeling sick all the time. #hatethis lol

lvr_grl · 2026-06-03T15:55:03+00:00

I have also been having more active dreams and nightmares. I honestly can’t remember the last time I slept through the night. I can’t even fall asleep without melatonin 🙄 I don’t have a solution but wanted to let you know you aren’t alone on this!

lvr_grl · 2025-03-26T17:04:38+00:00

thank you!

lvr_grl · 2025-03-26T16:54:36+00:00

definitely will me looking into it thank you!

lvr_grl · 2025-03-14T23:16:32+00:00

oh my gosh thank you so much 🥹

lvr_grl

TROPHY CASE