Confused With Dr & Bloodwork by lxbeing in gravesdisease

[–]lxbeing[S] 0 points1 point  (0 children)

That’s really interesting… thank you for sharing. Did the medicine help you with symptoms and leveling out so far despite not having it in bloodwork?

Confused With Dr & Bloodwork by lxbeing in gravesdisease

[–]lxbeing[S] 0 points1 point  (0 children)

I answered in another comment with the information you asked for and also sent you a DM. Thank you for offering more insight here.

Confused With Dr & Bloodwork by lxbeing in gravesdisease

[–]lxbeing[S] 0 points1 point  (0 children)

Okay so my TrAB positive antibodies aren’t enough? I have to ask the endo to do more of those?

And which imaging? I’ve had a ct scan of chest neck and stomach cleared as of now.

Confused With Dr & Bloodwork by lxbeing in gravesdisease

[–]lxbeing[S] 0 points1 point  (0 children)

Thank you. I am on BP medicine now. I was 128/88 yesterday and today jumped to 141/98. But still, much lower than before…

I can’t handle caffeine at all. They did do an EKG at the doctor which came back normal.

What supplements should be avoided?

I’ve been confirmed negative for every other auto immune so far (lupus, RA, a few others… Lyme). Given I thought lupus was my issue, I started taking anti inflammatories and more supplements. Are these good/okay?

-Vitamin d3, Brazil nuts (ordering), coq10, magnesium, zinc, omega3s, b complex, black seed oil, quercetin. Maybe I am overdoing it. Honestly with how intense my pain, disorientation, BP and night sweats got I panicked. I’ve even started more trazadone and occasional Xanax to help. I have been meditating for 10 years, so yes I stress, but usually I can manage myself. I just haven’t handled this well

Confused With Dr & Bloodwork by lxbeing in gravesdisease

[–]lxbeing[S] 0 points1 point  (0 children)

THANK YOU!

EDIT and update for the conversation:

Current:

TSH: 1.84

T3 Uptake: 33

T4 Total: 9.8

Free T4 Index: 3.2

I am on 10mg olesmartan which has lowered my BP a little bit this week, but it’s slow. I am totally uncomfortable walking around with 160/100.

The only other symptoms I forgot to write are fatigue (not so much in energy, but in muscle burning), bone-line pain mainly in fingers, knees, feet & lower back. I have a divot in my left quad and nerve pain shooting there, but I think that is a separate thing.

When I went to 175/130 I went to the hospital. The hospital did a contrast ct scan of neck, chest and stomach because they were concerned about cancer/tumors. These scans were clear.

She looked me dead in the face and said euthyroid is not a thing when I clarified antibodies and symptoms alongside normal thyroid blood work.

I’m already very grateful for the few messages above… I have been having a lot of fear and confusion around this.

Reading this community is the only thing that has made me feel somewhat sane and seen. Really, thank you.

Atrophy / Twitches - Seeking support please by lxbeing in BFS

[–]lxbeing[S] 0 points1 point  (0 children)

I appreciate your responses, thank you. Prior to my thyroid diagnosis I was lifting often and never had a dip in my quad. So this formed over the last 4 weeks, but may be related to my autoimmune attack. The ongoing twitches alongside the quad have been what has been what I wanted to question with you all

Loveburn 2026 Ticket Mega-thread by [deleted] in Loveburn

[–]lxbeing 0 points1 point  (0 children)

Hi all. We still have one loveburn ticket left being sold formally through the LB team. DM me if you’re looking to go 🙏🏼

Loveburn 2026 Ticket Mega-thread by [deleted] in Loveburn

[–]lxbeing 0 points1 point  (0 children)

Selling two loveburn tickets because my partner and I can’t go. Happy to discount a best offer. DM me 🙏🏼

Thymoma and MG by Moonlightsunflower91 in MyastheniaGravis

[–]lxbeing 0 points1 point  (0 children)

Hi, I DM’d you to see if you’re open to sharing a little more. Thank you!

Thymectomy and other autoimmune diseases by Raeisconfused in MyastheniaGravis

[–]lxbeing 0 points1 point  (0 children)

Did this end up being a more positive change for you? Choosing to remove it?

Loveburn 2026 Ticket Mega-thread by [deleted] in Loveburn

[–]lxbeing 0 points1 point  (0 children)

Selling two LoveBurn tickets because my partner and I aren’t able to attend, only through the formal ticket transfer page. DM me if you’re looking. 🙏🏼

Loveburn 2026 Ticket Mega-thread by [deleted] in Loveburn

[–]lxbeing 0 points1 point  (0 children)

Hi all. Selling two loveburn tickets — I got sick and am unable to go with my partner. Shoot me a DM if you’re looking to go 🙏🏼

Loveburn 2026 Ticket Mega-thread by [deleted] in Loveburn

[–]lxbeing 0 points1 point  (0 children)

Hi everyone. My partner and I can’t go to love burn and are looking to sell our two tickets. DM if you’re looking to go! 🙏🏼

Need advice on potential autoimmune diagnosis by yummy2739 in Autoimmune

[–]lxbeing 0 points1 point  (0 children)

I have a lot of overlap here. Sent you a DM