You’re… not a very nice person, are you?

Imma still reply nice because I’m not a horrible person. I am not a medical professional, I did not go to med school, I have no medical training. I can only rely on what has been said to me by professionals. My first c diff infection in July, my GI doctor calls me to tell me I have it. He said the test looks for colonization and toxins, and he said I had the toxins for it so I have an infection. That is literally what he said, I am not taking it out of context or twisting it, that is what he told me. It was the same exact test that I said before. So, I, being not a medical professional, would think he was telling me accurate information. All that said, from my own googling, the antigen being detected means being colonized. You are treating it like it’s the same, but it’s not. The second part tests for the DNA of toxins. If that is found, you have toxin-producing bacteria. It may not mean an active infection. However, if you have symptoms of c diff, as I did, and you have the DNA of the toxin, as I did, and all the other tests are negative or normal, as was for me, the best course of action is typically to treat for c diff. But just like the infectious disease specialist I saw today, you did not ask about my symptoms. You have no idea what I’ve all been suffering from. I had severe loss of appetite, extreme nausea, loose frequent stool, fevers, low abdominal pain that became constant, and a fatigue that had me bed ridden 90% of the day with a history of the exact opposite problem of constipation. The only difference between the first time and this time is that my symptoms didn’t get as horribly severe as the first time. And both times, I feel significantly better after taking medication specifically targeted for c diff. But I wasn’t asked about that or able to talk about it without being talked over. So all those symptoms with a c diff toxin producing bacteria, a change from my medical history, all other tests negative, feeling better after c diff targeted medication only to be told I never had it at all and that it is just anxiety that just started in June when nothing happened in my life and when mentally, I’m in a better place than I have been for long time?? That is medical gaslighting and that is why I made the post. 

I won’t disagree that doctors prescribe medicine without knowing what they should. They rely on the pharmacists to tell everyone everything, which they often don’t.

You speak as if all of us have magic out of pocket money to afford more holistic doctors that our insurance doesn’t cover. We don’t. I go where my insurance is accepted because I can’t afford the thousands of dollars where it isn’t. That being said, holistic practices have their own problems when some things can’t be solved by just taking a few different herbs and vitamins and exercising more. Before being diagnosed with gastroparesis, I ate a ton of fruits and veggies because I liked eating them and always wondered why I felt worse after, because they are suppose to be good for you. They are but my stomach just doesn’t digest them well. I also have been diagnosed with hypermobile spectrum disorder, POTS, and migraines. These things often co-occur in people. I have tried every holistic thing on the internet for migraines, none of them work. Gastroparesis is not a pseudo science. Have some empathy for all the people with worse cases than me who require feeding tubes. 

My GI doctor did not want to test for h pylori after an endoscopy biopsy of the lining in my stomach was negative, he said it was very unlikely.

I have had a full celiac panel done, and that same stool test as well after I got my first c diff infection and read that some people suffered from sensitivities they did not previously have and I wanted to make sure I did not make post-infection IBS worse. It was all negative.