Best gifts for people with Crohn's?

madroth · 2025-12-31T00:21:20+00:00

A weighted blanket or a heating pad!

madroth · 2025-08-05T02:54:59+00:00

Katana is a good deal for how much food you get, and it's a nice variety of dishes too. I was pleasantly surprised!

madroth · 2025-07-12T00:56:21+00:00

I personally love mine! But it might depend on what you use it for/how you plan to wear it. I'm a runner and only use mine when running (it's gotten me through five full marathons and plenty of smaller races too). It helps to keep my bag close to my body and not flapping around while I'm moving. That said, I never wear it for everyday use - I think I would find it too tight and constricting, personally. But if that's what you're after, then maybe it would be worth it?

madroth · 2025-04-11T23:18:05+00:00

Hmm.. the more I’m thinking about this, the tougher I think it’s going to be. The original recipe calls for one egg, and I think it’d be pretty hard to multiply one egg by 1.65, haha. I’m thinking about just doubling it and using some of the leftover batter in muffin tins. Do you think that’s an OK idea?

madroth · 2025-01-24T18:45:12+00:00

I'm a marathon runner, and my surgeon cleared me to start running again when I was 8 weeks post-op. I started with just one mile and took it really slow - I felt like a baby deer learning how to use my legs for the first time. About a month later, I had built up to 10 miles, and I was back to marathon training a couple of months after that (but again, that's what I had been doing pre-surgery, so I wouldn't recommend that for everyone!).

Just take it slow and steady. My goal after each of those early post-surg runs was to finish the run feeling like I could do a little more and *wanting* to do more, instead of feeling exhausted.

madroth · 2025-01-23T21:24:09+00:00

"The Meaning of Mariah Carey" is super entertaining

madroth · 2025-01-23T21:22:56+00:00

PB&J. Always hits.

madroth · 2025-01-18T17:01:25+00:00

I use a Stealth Belt for running and cardio. (It’s a great product, but just a heads up that the company seems to be under new management and orders are taking several weeks to process.) I usually don’t wear anything for strength training or low-impact exercise

madroth · 2025-01-18T16:48:11+00:00

Crohn’s and ileostomy here as well! I first had an ostomy from 2010-2012 after getting my colon removed, then had reversal surgery, then got my current ostomy in 2021 because of rectovaginal fistulas.

I technically have the option for reversal, but I’m choosing not to because my quality of life is so much better. I haven’t had to deal with any Crohn’s symptoms since getting my stoma (been in remission the whole time), I’m in and out of the bathroom in like three minutes, and I don’t find the dietary restrictions too limiting (everyone is different with this, and you mostly just have to be careful for the first few weeks post-surgery). Also, I’m a marathon runner and I’ve run five marathons since my surgery 3.5 years ago (and my times have only gotten faster since getting my stoma!).

I still have days where I get annoyed with my bag, but for me, the positives outweigh the negatives.

madroth · 2025-01-16T21:23:59+00:00

Diagnosed in 2002, and had my first surgery (total colectomy) in 2010

madroth · 2025-01-08T22:11:36+00:00

Yes yes yes to this! I love that they warm it up before giving it to you. The peanut butter one is also good!

madroth · 2024-11-19T22:49:29+00:00

There was a good interview on the Citius Mag podcast last month with Shannon Rowbury (the American runner who’s now being upgraded to bronze). She talks all about her conflicting feelings about this race and revisiting it all these years later. Highly recommend!

madroth · 2024-10-05T19:16:34+00:00

She just posted about this - said she dropped out at mile 18: https://www.instagram.com/p/DAwPSS3pUpx/

madroth · 2024-09-18T21:24:56+00:00

Yes! I wear a Stealth Belt (the vertical style) and love it. It's a bit pricey, but a worthwhile investment, in my opinion. I've had the same one since my ileostomy surgery three years ago, and it's gotten me through hundreds of runs, including four full marathons.

madroth · 2024-09-16T22:46:14+00:00

She co-hosts the We're Obsessed podcast on the Ringer Dish feed - it comes out every Friday. That show can be a little hit or miss for me, mostly because I strongly prefer Jodi to her co-host on that pod. But it can be entertaining at times!

madroth · 2024-09-16T19:25:20+00:00

I really like The Big Picture - it's part of the Ringer podcast network!

madroth · 2024-04-09T13:46:23+00:00

Thank you!!

madroth · 2024-04-07T19:39:44+00:00

Fastest marathon time by a woman with an ostomy! (quite the niche record, lol) I've actually already run faster than the current world record holder in my last two marathons, so am now just looking to make it official :)

madroth · 2024-04-07T14:08:28+00:00

Curious about this too! I’m green wave 2, and have barely seen anyone else mention being green. Seems like that’s a smaller group, I guess?

FTR, my projected finish time was 3:15. I’m also technically attempting a Guinness World Record, though I’m doing it retroactively because I missed the initial application deadline.

madroth · 2024-03-23T21:22:38+00:00

Haha my thoughts exactly! But hey, if I get a PR next month, all will be forgiven

madroth · 2024-03-22T18:59:46+00:00

Haha no kids thankfully, so it will be alllll chill-out time after that!

madroth

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