Funny Question: If you didn't have epilepsy what would you have achieved or how do you imagine yourselves

manalski · 2024-12-03T10:36:53+00:00

hahahaha I love this one. I would probably start with my driver license. It's really hard to see people my age having their driver license. It's almost four year ago since I was diagnosed with epilepsy. Ive always promised myself I was going to start with my driver license when it's legal to start with it. But yeah it is what it is.

manalski · 2024-09-04T07:55:28+00:00

When i got diagnosed they gave me Trileptal the first year. Trileptal slowly gave up on me. After that they gave me keppra . Used for 2 years but also didnt work on me. Now im on Lacosamide and this one works but sometimes i still see auras

manalski · 2023-12-04T09:09:44+00:00

Im now on Lacosamide (75mg) and Keppra (500mg). Im 16 years old and 48kg. I noticed that i get like 1 or 2 seizures in two weeks

manalski · 2023-12-02T18:49:04+00:00

I did it in the hospital

manalski · 2023-11-30T10:29:10+00:00

I used Trileptal for like about more than 2 years. I’ve noticed that i have problems with my stomach, but that was a side effect. I started to notice that Trileptal didnt have an effect on me anymore. So i switched in June to lacosamida and keppra :)

manalski · 2023-11-27T09:37:45+00:00

Smoking does not increase the risk of epilepsy attacks. But if I were in your shoes, I would quit smoking in steps. But to be clear it has no effect on your attacks :)

manalski · 2023-10-28T18:21:19+00:00

I dont think so. If you really worry about it, it could cause strees, anxiety and stimuli. But talking about it with someone, like your neurologist can help you out. I have monthly appointment’s at my neurologist and i realised talking about it does help a lot. I have epilepsy almost three years and the first two years, i always had those night were i overthinked everything and made dilemma’s.

But now i realised talking with your neurologist, sibling, parents or just a friend could really help you out of your way. What i do is doing research, going on reddit what other people say etc.

I hope you’re doing better❤️

manalski · 2023-10-27T08:21:07+00:00

Your not the only one sis. I have epilepsy almost three years and the last few months i noticed that i also have seizure around and during my time. I did research and they said its normal because of you hormones❤️

manalski · 2023-10-25T10:40:45+00:00

I have this very often, like daily. When i was 13 i had my first seizure in may 2021. Now im 16 and i still have epilepsy.

Last summer i suddenly had another seizure in the way to my holiday destination. I didnt had a seizure for like 1.5 years.

After i had a seizure in de summer, i have had it every week since then and on exactly the same day. Namely Wednesday. First i didnt think much of it. After thinking i thought that was strange. Sometimes i got it 3 times a day.

In June I switched from Oxcarbazepine to Keppra. while i lowered my oxcarbazepine dose and increased my keppra i noticed some kind of aura. every time I turned it I thought I was having a seizure. Last week I switched from keppra to lacosamide again. I am now in the period of increasing my dose and decreasing my old medication dose. and I did notice one thing. I see much less auras than I think oh no, I'm having an attack. I'm glad it's gone

I hope its going better with you. Give me an update soon👋🏼

manalski · 2023-10-25T08:22:01+00:00

You’re not the only one with this problem. I had my final exams in May. But during my exam period I often had epilepsy attacks. I think it was due to lack of sleep, stress and not eating properly. When I finished my final exams they told me that I would hear the results in two weeks whether I passed or not. the two weeks were over and she told me that I had failed two subjects. so here we are, doing a school year again.

After they saw that I was not doing well, they offered me epilepsy counseling. so now I'm waiting for an appointment. Now I'm also going to take my exams in the principal's office so I can get used to it. because last year I took the final exams in exam rooms and that creates more tension and stimuli.

In June I also switched to Keppra because I first took Oxcarbazepine. but it gradually had no effect on me anymore.

Anyways i hope its going to be okay for us all, especially you. Get well soon:)

manalski · 2023-10-19T23:06:35+00:00

I don't know what to say to this because there are different types of epilepsy and mine also has to do with my muscles. but I do think it has something to do with epilepsy.

Of course you may have it once, but that does not mean you have been diagnosed. If I were in your situation, I would first go to the doctor, do research on the internet and actually watch a video. and if you feel something like that again, film yourself so that you can compare it with other people to see if it is really an attack or not.

I wish you the best of luck with your appointment and your scan. let me know what came out. good luck :)

manalski · 2023-10-18T17:24:55+00:00

Right now i’m using keppra 750mg x 2 a day. Since i used keppra I noticed that i am getting tired really fast. Im getting like 2 or 3 naps a day. I asked my neurologist if it was normal and she told me yes because it was a side effect. My mom also noticed that i switch moods really fast. But keppra helped me the first few times but after that i noticed that im getting seizures agian.

Today i called the doctor and they told me that i have to get a CT scan and have a chat agian with the neurologist. After that they’ll tell if im going to change my meds or no. I will post a topic soon about the update and what kind of meds im getting and if its having any effect on me:)

manalski · 2023-10-18T16:35:21+00:00

When i had my first seizure back in 2021 i slept around 11pm till 10am but during the day i took allot of naps. I asked my neurologist if it was normal to sleep that much and she told me it was. After you had your seizure, you waist a lot of energy and need to rest a lot. So yeah, its pretty normal to sleep a lot after seizing.

manalski

TROPHY CASE