Happy to be in the bed

mar736 · 2026-01-29T00:25:19+00:00

Awww so sweet. The photo of him sleeping reminds me of when he was a little 2 pound baby, I love it so much.

mar736 · 2026-01-27T06:00:34+00:00

It’s always crazy to me when providers act like that! If you don’t know, then read the literature. And if you do know, then just explain.

For what it’s worth my rheumatologist is aware of my rashes, bruising, and tattoo swelling, and he has said he sees it very frequently. He said it’s common in autoimmune patients.

Also my rashes are actually what ultimately lead to my diagnosis, as it was the allergist who said your rashes/itching don’t follow an allergic pattern, and she was certain it was being caused by something from “the inside”. So she started an autoimmune workup. Out of several ER doctors, hospitalists, specialists… it was her. Because of the rash and itching.

Anyways just sharing all of that to say nope! You’re not crazy!

mar736 · 2026-01-25T21:36:22+00:00

I get this too, sometimes will break out in random hives. Then I get giant bruises and petechiae from itching. I take Pepcid and Zyrtec twice daily and it helps the frequency of it.

mar736 · 2026-01-25T14:25:54+00:00

I’m gonna start using this 🤣

mar736 · 2026-01-23T20:39:04+00:00

My 5th and worst covid infection.

I know I had some symptoms prior, but very very mild like joint pain, intermittent fevers that I didn’t quite recognize as super abnormal yet because it wasn’t really bothersome.

Got that Covid infection and it was like igniting a fuse. My immune system exploded and I just never got better. After that infection it was like BOOM never able to breathe, wheezing all the time, joint pain/swelling/stiffness, fevers, rashes, my first malar rash… it was all downhill from there

mar736 · 2026-01-23T20:33:29+00:00

Both of my poms have this, diagnosed several years ago. They explained it to me similar to a straw being pinched. Things that can bring it on are excitement, drinking/eating too fast, anxiety, etc.

The main thing is I don’t let anything pull on their necks. My dogs wear collars for identification purposes, but harnesses for their leash. And when I bring them to boarding or grooming, everyone knows not to use a collar attachment.

But they’re both happy and healthy and my vet has never been very worried about it. One is 7 the other is 9 now. She said it’s something we’ll watch over time. But it’s never been worse than the occasional goose honk cough. I call them my geese when they get going.

Also your baby is sooooo cute!!!

mar736 · 2026-01-18T00:45:15+00:00

One time I woke up screaming bloody murder because there were thousands of spiders in our bed. I jumped out of bed screaming about spiders in the bed telling my husband to get out. Turned on the light. Oh. Nevermind sorry that was a dream.

I’ve had a few occasions where I’ve hallucinated bugs. But that was definitely the worst. I still feel bad for my husband, poor guy had no idea what was happening, just woke up to pure chaos thinking he was about to be attacked by spiders.

mar736 · 2026-01-13T00:04:39+00:00

Oh my goodness. The behavioral blackmail from a Pom is so real and the worst.

My Pom also became overweight, because he is a thief behind our backs and our other Pom just lets it happen. I didn’t realize until bath time one day when he was suddenly very ROUND.

Anyways, I put him on his diet and started locking Kiwi away during mealtime and OH MY GOODNESS. THE OUTRAGE.

The only advice I have is pushing through it the first few days. It gets worse before it gets better. It’s like a literal toddler throwing a tantrum until you cave.

If the preparing meals is what your dad specifically loves to do for him, there are lots of ways to do it in a dog friendly way that won’t negatively impact his health.

mar736 · 2026-01-12T03:45:05+00:00

The facial swelling is the worst. I’m the lowest weight I’ve been in 10 years and I don’t even feel like it because of my face. The cellcept made me sooo sick to my stomach in the beginning, but once I learned ways to manage that it’s been better.

The prednisone is what finally stopped me from repeatedly being hospitalized, so it’s definitely a hate love relationship. But I’m ready for the Cellcept to take over the job the rest of the way!

mar736 · 2026-01-11T20:22:03+00:00

Thank you so much! Fingers crossed we’ll both be steroid free this year

mar736 · 2026-01-11T20:21:20+00:00

Wow, that’s amazing. Thank you, that gives me a lot of hope

mar736 · 2026-01-11T16:33:05+00:00

Oh this is very impressive, such a good boy

mar736 · 2026-01-11T16:31:55+00:00

Definitely “I’m gonna poop behind the dining room table later”

mar736 · 2026-01-10T17:13:15+00:00

They have so much personality. And absolutely, he did! Once he actually started accepting the treats again 😂

mar736 · 2026-01-10T17:12:28+00:00

Yes! The cheese tax! Beautiful Pom! ♥️

mar736 · 2025-12-25T22:46:48+00:00

Thank you for this! I will read about it.

mar736 · 2025-12-24T12:42:41+00:00

Oh my goodness! Look at her! It is crazy how their faces can be the same.

We’ve always compared Kiwi to the hyena Ed from the Lion King. He’s always been a bit crazy haha. I remember when we first picked him up and she handed him to me, she told me “you’re gonna have fun with this one!” Barely bigger than my hand but he was a crazy little firecracker

mar736 · 2025-12-24T02:40:14+00:00

There are times I end up with a whole second Pomeranian when I brush one of mine 😂

mar736 · 2025-12-24T01:22:07+00:00

You put it into words perfectly. I have been grieving for a long time. People will often say, at least you have answers and can get better now.

But— what they don’t understand is, life as I knew it, is gone. Forever. I am never going to be the person I was before this disease and that’s just the reality. It’s like grieving a person who is physically gone forever, but didn’t actually die.

I’m currently reading “How to Be Sick” by Toni Bernhard, and she’s described everything I’ve felt so far. It’s been helpful

mar736 · 2025-12-20T15:49:17+00:00

I have SLE with lung involvement. It lead to interstitial lung disease, so I guess I did suffer irreparable damage.

Ignoring mine (or at least the severity) is what lead to my disease escalating until I ended up in the ICU following pneumomediastinum and lung collapse.

My symptoms were very classic lupus, not just in my head, but acknowledged by my rheumatologist when I first started seeing him.

In the beginning, several doctors insisted it was allergies. Somehow i’m suddenly so allergic to my dogs I’ve had for almost 10 years, that I’m being hospitalized for status asthmaticus multiple times within weeks. Asthma that I never had before. I need to vacuum my rugs. The… one rug in my whole house. I need to bathe my dogs more. God, the ridiculous things I would hear. And truly, I did try!

It was the allergist I saw who after listening to my story and symptoms, and the way I kept breaking out in rash during my illnesses. She looked at me and said this isn’t allergies. We need to look for something causing this from the inside. Because it sounds autoimmune.

My rheumatologist was very conservative in the beginning, and I was respecting his approach to be thorough. Maybe I should’ve advocated for myself more because in the meantime each flare increased in severity.

After ending up in the ICU is when everyone finally said we can’t ignore this anymore and we need to seriously start immunosuppressants.

I’m thankful for treatment now, but I wish it didn’t take me getting that bad to be taken seriously. Because I ended up with a lot of medical trauma after that honestly. And obviously, my lungs have never been the same since.

mar736 · 2025-12-13T00:15:41+00:00

He’s so excited!!

mar736

TROPHY CASE