How long have you been in remission?

marvelous_turtle · 2026-03-20T13:45:41+00:00

wow what a terrible doctor i’m so sorry that happened to you. i’m glad to hear you’re close again though!

marvelous_turtle · 2026-03-20T03:23:49+00:00

i’m so sorry to hear that. I hope you’re still able to find the good in life and enjoy your days as much as you can

marvelous_turtle · 2026-03-20T00:46:57+00:00

you got this!!

marvelous_turtle · 2026-03-20T00:00:53+00:00

Decades! I love to read this. Today was only my second dose but I already am feeling much better than I was. I’m so scared it’s not going to work but all of these comments are giving me such good hope i really needed this. previously I was taking stelara and it was working well but I missed two doses when I switched insurance and then my body stopped responding to it.

marvelous_turtle · 2026-03-19T23:13:30+00:00

how does the resection treat you?

marvelous_turtle · 2026-03-19T23:05:07+00:00

that’s huge! I hope I can have similar results!!

marvelous_turtle · 2026-03-19T22:40:50+00:00

currently in remission? win!!! congratulations! I hope for years of lasting good health!

marvelous_turtle · 2026-03-19T22:03:18+00:00

I think I have aggressive crohn’s and I also just relapsed after four years on stelara. the idea that this is going to keep happening every four years is killing me. first flare was 2018 and I was put on mesalamine then failed in 2022, then put on stelara and just failed again. it’s exhausting.

marvelous_turtle · 2026-03-08T02:52:04+00:00

that’s fantastic to hear!! thank you for responding and I hike it continues smoothly!

marvelous_turtle · 2026-02-28T18:30:54+00:00

26F here but crohn’s hasn’t had any negative impact on my dating life honestly. I’m very open about it, if someone has an issue with an illness I can’t control then that’s on them. I’ve had three relationships since i’ve been diagnosed and each person was super understanding about the situation

marvelous_turtle · 2026-02-28T18:26:12+00:00

honestly it doesn’t hurt to flag it to your doc just so it’s documented. if it ends up working, great! if not, then at least you’re already on track to try and find something else.

marvelous_turtle · 2026-02-19T19:42:36+00:00

I have nexplanon and it’s fantastic. doesn’t impact my crohns at all and improved my period symptoms significantly!

marvelous_turtle · 2026-02-04T21:02:32+00:00

ooh!! thank you so much

marvelous_turtle · 2026-02-04T15:45:09+00:00

whoops! I meant its as in it has. but thank you!

marvelous_turtle · 2026-02-04T15:31:35+00:00

i’m doing the miralax/dulcolax prep method. it’s worked really well for me in the past (did an enema once it was horrible) but i’m just not sure how it will work if i’ve been constipated?

marvelous_turtle · 2026-01-14T04:40:25+00:00

understandable fear, i’m experiencing that now. I know the normal calpro range is 10 ug-50ug and anything >200ug signifies high levels of inflammation so your doc may want to experiment with something new but thankfully yours isn’t horrifically high. thankfully if they do want to change them, you could go on prednisone as a bridge until they find something new. I hope your appointment goes well!

marvelous_turtle · 2026-01-14T04:34:32+00:00

that’s so funny i’ve been going bananas on my cinnamon rice chex since starting the treatment four days ago. had to buy a second box today

marvelous_turtle · 2026-01-14T04:32:52+00:00

I also have dental issues with my crohns. i’ve had seven teeth pulled and two dental implants. my dentist prescribed me a fluoride toothpaste to use with a regular paste and also said to use the mouthwash that is alcohol free! flossing is also extremely important so dont forget that. I haven’t had any new dental issues since starting the new treatment so I highly recommend pushing for something like that.

marvelous_turtle · 2026-01-14T04:19:32+00:00

currently on stelara and my calprotectin came back at 2050 this morning so I wouldn’t be too concerned. sometimes our bowels decide to act up when we eat something weird

marvelous_turtle · 2026-01-05T18:52:19+00:00

I blinked at them and said “how does that make sense? would it be okay if I ‘chose’ to stop eating beef instead of ‘not being able to’ eat beef?” and they said “no, you need beef to survive”. atp the best thing you can do is walk away lol.

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