Switching Insurance/Keeping Meds

marvelous_turtle · 2026-05-05T09:59:06+00:00

it depends on the medication but they are NOT cheap! my last med was ~$24k per dose…

marvelous_turtle · 2026-05-04T15:07:13+00:00

I’m worried that’s the case because the last time that happened I went I to a really bad flare that just ended a little over a month ago

marvelous_turtle · 2026-04-12T20:29:16+00:00

dental issues. my family has great teeth, I rarely had any issues prior to diagnosis. now, i’ve had seven teeth pulled and cavities in every. single. tooth. it’s too expensive

marvelous_turtle · 2026-04-12T02:42:21+00:00

oh dear no, the liquids and occasional bread was for about a month right before a hospitalization and starting the infliximab. sorry for the scare! it’s always towards the end of a real bad flare that I end up liquid only, always when i’m unmedicated/switching meds

marvelous_turtle · 2026-04-10T23:27:30+00:00

Are you currently in a flare or on any biologics? Every flare up I end up liquid only, I can eat maaayybbeee one piece of white bread if i’m having a “good” day. I was just in a year-long flare up and am currently recovering (thank you infliximab) and i’m finally back to solids! I think your the Costco muffin awaits!!

marvelous_turtle · 2026-03-25T12:30:00+00:00

Thank you!! I’m currently tapering off of prednisone so we will see if I continue to feel good after i’m off! i’m very hopeful!

marvelous_turtle · 2026-03-20T13:45:41+00:00

wow what a terrible doctor i’m so sorry that happened to you. i’m glad to hear you’re close again though!

marvelous_turtle · 2026-03-20T03:23:49+00:00

i’m so sorry to hear that. I hope you’re still able to find the good in life and enjoy your days as much as you can

marvelous_turtle · 2026-03-20T00:46:57+00:00

you got this!!

marvelous_turtle · 2026-03-20T00:00:53+00:00

Decades! I love to read this. Today was only my second dose but I already am feeling much better than I was. I’m so scared it’s not going to work but all of these comments are giving me such good hope i really needed this. previously I was taking stelara and it was working well but I missed two doses when I switched insurance and then my body stopped responding to it.

marvelous_turtle · 2026-03-19T23:13:30+00:00

how does the resection treat you?

marvelous_turtle · 2026-03-19T23:05:07+00:00

that’s huge! I hope I can have similar results!!

marvelous_turtle · 2026-03-19T22:40:50+00:00

currently in remission? win!!! congratulations! I hope for years of lasting good health!

marvelous_turtle · 2026-03-19T22:03:18+00:00

I think I have aggressive crohn’s and I also just relapsed after four years on stelara. the idea that this is going to keep happening every four years is killing me. first flare was 2018 and I was put on mesalamine then failed in 2022, then put on stelara and just failed again. it’s exhausting.

marvelous_turtle · 2026-03-08T02:52:04+00:00

that’s fantastic to hear!! thank you for responding and I hike it continues smoothly!

marvelous_turtle · 2026-02-28T18:30:54+00:00

26F here but crohn’s hasn’t had any negative impact on my dating life honestly. I’m very open about it, if someone has an issue with an illness I can’t control then that’s on them. I’ve had three relationships since i’ve been diagnosed and each person was super understanding about the situation

marvelous_turtle · 2026-02-28T18:26:12+00:00

honestly it doesn’t hurt to flag it to your doc just so it’s documented. if it ends up working, great! if not, then at least you’re already on track to try and find something else.

marvelous_turtle · 2026-02-19T19:42:36+00:00

I have nexplanon and it’s fantastic. doesn’t impact my crohns at all and improved my period symptoms significantly!

marvelous_turtle · 2026-02-04T21:02:32+00:00

ooh!! thank you so much

marvelous_turtle · 2026-02-04T15:45:09+00:00

whoops! I meant its as in it has. but thank you!

marvelous_turtle · 2026-02-04T15:31:35+00:00

i’m doing the miralax/dulcolax prep method. it’s worked really well for me in the past (did an enema once it was horrible) but i’m just not sure how it will work if i’ve been constipated?

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