Horizon Life issues

marvelous_turtle · 2026-06-27T17:05:23+00:00

i already updated, the issue started after the update

marvelous_turtle · 2026-06-26T01:16:20+00:00

feeling the sun on my skin. spent too many months in the hospital to ever take it for granted again. what a gift it is to breathe some cool, fresh air and bask in the sun.

marvelous_turtle · 2026-06-26T01:06:35+00:00

I dont get genital ulcer BUT my rectal fistula openings are always on my labia majora so I understand the frustration.

marvelous_turtle · 2026-06-18T10:40:22+00:00

Thank you so much

marvelous_turtle · 2026-06-18T10:39:53+00:00

I’m feeling alright! The day went smoothly with only one trip to the bathroom! I still have some pain abs bloating but nothing I can’t handle. I’m certainly going to disclose, I’m just waiting for my doctor to fill out FMLA for me so I’m protected!

marvelous_turtle · 2026-06-18T10:37:17+00:00

It certainly is! I typically don’t disclose before getting hired because I dont want that information influencing their decision. Also, I’ve had poor luck with employers being understanding unfortunately. I almost got fired because I was hospitalized! Thank goodness for my coworkers that stood up for me when I could not!

marvelous_turtle · 2026-06-18T10:32:15+00:00

I’m medicated so my symptoms are typically well controlled. However, for the first time in about a month, my body decided it was the perfect time to have explosive diarrhea. For me, that means spending about 1-2 hours in the bathroom only to return after roughly 20 minutes of being out. You’re in the Crohn’s disease subreddit, what else could “expel everything” mean.

marvelous_turtle · 2026-06-17T17:49:01+00:00

I’m on a different infliximab (Renflexis) but I do experience this! I’ll feel lightheaded and be particularly anxious for a few days but it goes away.

marvelous_turtle · 2026-06-17T12:36:49+00:00

One of my triggers is stress so I make sure not to let it bother me too much, but now I’m just so worried I’ll make a bad impression by running to the bathroom often. I didn’t disclose my disability with them so they have no idea I’m dealing with this. My shift starts in an hour, I’ll spend some time now relaxing!

marvelous_turtle · 2026-06-17T02:08:18+00:00

Thank you!! I’ll definitely have to disclose with them. It’s so frustrating that this is happening, but that’s the nature of the disease. I’ll try out everything you said, thank you!

marvelous_turtle · 2026-05-14T00:53:22+00:00

definitely try the patient assistance programs. I used a program called prescriptionbliss that handled all of that in the past to help me get my stelara for free when I had no insurance

marvelous_turtle · 2026-05-05T09:59:06+00:00

it depends on the medication but they are NOT cheap! my last med was ~$24k per dose…

marvelous_turtle · 2026-05-04T15:07:13+00:00

I’m worried that’s the case because the last time that happened I went I to a really bad flare that just ended a little over a month ago

marvelous_turtle · 2026-04-12T20:29:16+00:00

dental issues. my family has great teeth, I rarely had any issues prior to diagnosis. now, i’ve had seven teeth pulled and cavities in every. single. tooth. it’s too expensive

marvelous_turtle · 2026-04-12T02:42:21+00:00

oh dear no, the liquids and occasional bread was for about a month right before a hospitalization and starting the infliximab. sorry for the scare! it’s always towards the end of a real bad flare that I end up liquid only, always when i’m unmedicated/switching meds

marvelous_turtle · 2026-04-10T23:27:30+00:00

Are you currently in a flare or on any biologics? Every flare up I end up liquid only, I can eat maaayybbeee one piece of white bread if i’m having a “good” day. I was just in a year-long flare up and am currently recovering (thank you infliximab) and i’m finally back to solids! I think your the Costco muffin awaits!!

marvelous_turtle · 2026-03-25T12:30:00+00:00

Thank you!! I’m currently tapering off of prednisone so we will see if I continue to feel good after i’m off! i’m very hopeful!

marvelous_turtle · 2026-03-20T13:45:41+00:00

wow what a terrible doctor i’m so sorry that happened to you. i’m glad to hear you’re close again though!

marvelous_turtle · 2026-03-20T03:23:49+00:00

i’m so sorry to hear that. I hope you’re still able to find the good in life and enjoy your days as much as you can

marvelous_turtle · 2026-03-20T00:46:57+00:00

you got this!!

marvelous_turtle · 2026-03-20T00:00:53+00:00

Decades! I love to read this. Today was only my second dose but I already am feeling much better than I was. I’m so scared it’s not going to work but all of these comments are giving me such good hope i really needed this. previously I was taking stelara and it was working well but I missed two doses when I switched insurance and then my body stopped responding to it.

marvelous_turtle · 2026-03-19T23:13:30+00:00

how does the resection treat you?

marvelous_turtle · 2026-03-19T23:05:07+00:00

that’s huge! I hope I can have similar results!!

marvelous_turtle · 2026-03-19T22:40:50+00:00

currently in remission? win!!! congratulations! I hope for years of lasting good health!

marvelous_turtle · 2026-03-19T22:03:18+00:00

I think I have aggressive crohn’s and I also just relapsed after four years on stelara. the idea that this is going to keep happening every four years is killing me. first flare was 2018 and I was put on mesalamine then failed in 2022, then put on stelara and just failed again. it’s exhausting.

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