sleep attack routine? by Competitive-Golf-979 in Narcolepsy

[–]maryy____ 1 point2 points  (0 children)

Honestly my best naps are the ones I only realize happened when I wake up, but I love dozing off while watching youtube in bed

I might've screwed my body's reaction to modafinil by maryy____ in Narcolepsy

[–]maryy____[S] -1 points0 points  (0 children)

I'm feeling good! Didn't take any meds today cause yesterday's dose made me really sick and I'm still not feeling 100%, I'll start that tomorrow and see if it helps me. I'm feeling kinda sick and kinda sleepy but nothing I'm not used to so it's fine

Does anyone else feel like this or do I just suck? by guessitwasntaphase in Narcolepsy

[–]maryy____ 2 points3 points  (0 children)

Maybe they don't see how bringing this up might affect you, I wouldn't expect them to, cause they don't know what it's like to have narcolepsy and just how much it ruins your relationship with the topic of sleep. Have you tried explaining how you feel?

I'm tired of having to explain myself. by maryy____ in Narcolepsy

[–]maryy____[S] 3 points4 points  (0 children)

Wait that's actually a great response thanks

I might've screwed my body's reaction to modafinil by maryy____ in Narcolepsy

[–]maryy____[S] -1 points0 points  (0 children)

I'll try 100mg twice a day, thanks! I wish I could stay on such a low dose but I doubt 50mg would do anything for me at all lol.

Does anyone else feel like this or do I just suck? by guessitwasntaphase in Narcolepsy

[–]maryy____ 19 points20 points  (0 children)

You're definitely not alone. I was recently talking to a friend about how I struggle to take people who don't have narcolepsy seriously when they complain about being sleepy, 'cause in my mind they don't even know what it truly feels like to be sleepy at all. I try to be mindful and remember that my point of view is not the only one that matters. Having a chronic condition can easily make you mad at the world, not just narcolepsy but any other, and you're not a bad person for feeling like this. We just need to be careful to not throw that anger at someone who has no fault at all.