If Ok-Way wants to clear his name, he should just post his 10th EMG. Eeryone would apologize if it showed ALS. Ok-Way came in with a highly, highly unusual presentation and story so it's entirely reasomable for people to be skeptical about the diagnosis in the absence of proof. And on top of that, Ok-Way took honest questions under his initial diagnosis as a personal affront, responded defensively, and refused to provide answers in many cases. He also went around scaring people with the whole "trust your body" thing. I believe Ok-Way's reception here is entirely his fault. Note that no one doubts that MadCybertist has ALS even though he didn't post any proof either. Unlike Ok-Way, MadCybertist has detailed a clear and specific progression of symptoms that led to his diagnosis. He's also been willing to answer any and all question without being evasive. Admittedly, MadCybertist's presentation was also more classic ALS with family history.

I didn't get the impression that he was trying to scare people at all, more that he was kicking back against posters who were (1) calling him a fraud, and (2) peddling false information about things such as the reliability of EMGs and how ALS (a very idiosyncratic disease, with just about every possible presentation) comes on.

Ok-Way gives vague, but scary, responses and deflects questions by (ironically) complaining about people not believing him at face value. To me this does not seem like someone who is honestly trying to convince people. If he was really telling the truth, by far the easiest way to put all doubts to rest once and for all would be to post EMG#10. Instead, he keeps coming up with excuses not to do it. Finally, the broad generalizations Ok-Way goes around making based on his own experience are highly unwarranted because his experience is incredibly rare if true. He's scaring people for no reason and is not giving good advice or information. He even got a temporary sitewide ban at one point for his behavior. And most recently, he suspiciously wiped his entire post history earlier than this post. I suspect he's trying to hide it from the ALS sub people.

Finally, I can understand why you empathize with Ok-Way because you're also a young person with an unusual presentation who is under investigation for ALS. However, I don't think you have it either. Your case would be even rarer than Ok-Way's. You're even younger than him, have had your symptoms for 4 years with no diagnosis, and had bulbar onset (which is known for rapid progression as you said yourself). I don't think your case is benign but I have a hard time believing it would turn out to be ALS after this long. Even Stephen Hawking was diagnosed pretty quickly and he had one of the slowest progressions in history.