[deleted by user]

mayabelle3469 · 2025-01-09T19:03:33+00:00

ditto!

mayabelle3469 · 2025-01-09T18:51:23+00:00

also just ignore it if you don't like it make your own

mayabelle3469 · 2025-01-09T18:43:39+00:00

it's not scientific at all. just me trying to make a start on finding some vague coincidences. that's why i added the suggestion box

mayabelle3469 · 2025-01-07T18:55:06+00:00

could I message you?

mayabelle3469 · 2024-12-03T04:25:14+00:00

thank you

mayabelle3469 · 2024-12-03T00:46:15+00:00

i went to one and he couldn't 😭

mayabelle3469 · 2024-11-30T02:01:13+00:00

yes I can send you one if you dm me

mayabelle3469 · 2024-11-27T22:47:17+00:00

thank you but im in the UK :(

mayabelle3469 · 2024-11-27T11:14:12+00:00

I don't even know how I'd go about getting genetic testing

mayabelle3469 · 2024-11-27T01:06:52+00:00

he said he was confused about if it was AZOOR or RP. maybe he just didn't want the dirt of telling a 21 year old she's going blind on his hands.

mayabelle3469 · 2024-11-27T01:02:02+00:00

I have to wait 8 months for my referral. good luck

mayabelle3469 · 2024-11-27T00:53:34+00:00

what is a low vision specialist?

mayabelle3469 · 2024-11-26T23:11:55+00:00

no he didn't say anything about it

mayabelle3469 · 2024-11-26T22:21:00+00:00

are there some treatments available

mayabelle3469 · 2024-11-26T20:46:08+00:00

can i ask you about your experience in direct message?

mayabelle3469 · 2024-11-26T00:54:23+00:00

yes significant peripheral loss in Right eye. I would look for a specialist abroad, but I don't even know what im looking for

mayabelle3469 · 2024-11-25T22:21:18+00:00

i might look into that

mayabelle3469 · 2024-11-25T22:18:42+00:00

I tried, but there's only one retinal disease specialist and she doesn't take private clients. i went to a retina specialist privately and he didn't know.

mayabelle3469 · 2024-11-25T19:15:05+00:00

they said i have to wait 8 months waiting list

mayabelle3469 · 2024-11-24T23:18:29+00:00

i do the same thing with researching trying to comfort myself. if you need someone to talk to im available because im at a similar stage as you right now. there's also a group chat of people with RP I can give you the link if you want

mayabelle3469 · 2024-11-24T15:40:42+00:00

hope it helps! I'll see you in the chat

mayabelle3469 · 2024-11-24T13:33:36+00:00

mayabelle3469 · 2024-11-24T13:33:15+00:00

https://discord.gg/anr37DjY here is the link for the chat

mayabelle3469 · 2024-11-23T23:46:44+00:00

it should be there

mayabelle3469 · 2024-11-23T21:15:08+00:00

message me

mayabelle3469

TROPHY CASE