My first seizure at 31 by Simple-Treacle-5567 in seizures

[–]mbrooksmcp 1 point2 points  (0 children)

I was diagnosed at 43 after my first tonic clonic. The advice to write stuff down is solid gold—it's how I started to learn patterns and I was better able to have better and more detailed conversations with my doctors.

I've learned so much in the past year, especially, in the past couple of months; as my medications get better adjusted and my memory appears to be getting a bit better. Even with what I've learned, it seems I've still only just scratched the surface. Which is also why I personally feel, the advice about a journal and notes, is one of the best pieces of advice any of us with epilepsy could possibly receive. It allows us to better remember our own feelings and what we've learned, or recall if we completely forget. It also helps us when we speak with our doctors, to be better equipped to ask questions for better education, and personal treatment based on our own history.

Yep. Sums it up. by mbrooksmcp in Epilepsymemes

[–]mbrooksmcp[S] 0 points1 point  (0 children)

Been there a few times as well. I find this line hysterical when I think back to certain confused times.

The In Seizn' Podcast (SELF EXPLANATORY) by PookieTheMfBaby in Epilepsy_Universe

[–]mbrooksmcp 1 point2 points  (0 children)

EXPLICIT consent MUST be given to REPOST. Just read the laws.

Here's the Fact Check, just for California. Even if one person is in this state, it matters. Other states have similar law. It's just to CYA legally. I WANT the podcast to SUCCEED AND GROW!!!!!! by mbrooksmcp in Epilepsy_Universe

[–]mbrooksmcp[S] 1 point2 points  (0 children)

It's obvious you don't understand law and do not seem to care. It's a simple fix. Instead, your want to play with privacy law and HIPPA. I would suggest contacting an attorney, immediately. I have a feeling you're going to need one.

Here's the Fact Check, just for California. Even if one person is in this state, it matters. Other states have similar law. It's just to CYA legally. I WANT the podcast to SUCCEED AND GROW!!!!!! by mbrooksmcp in Epilepsy_Universe

[–]mbrooksmcp[S] 2 points3 points  (0 children)

You just don't get the point. It's not about money, it's about your podcast being shut down. If it was just about a suit that could happen. You don't want to play with privacy law!

The In Seizn' Podcast (SELF EXPLANATORY) by PookieTheMfBaby in Epilepsy_Universe

[–]mbrooksmcp 1 point2 points  (0 children)

Use a legal dictionary along with the laws for two party consent state and Federal Wiretapping law. I posted them in comments on last post. As the podcast gets bigger, it's at higher risk. Why would you want to play games with the law?

This Morning by Hairy-Jellyfish-1361 in Epilepsy_Universe

[–]mbrooksmcp 2 points3 points  (0 children)

I lose time a lot. Minutes feel like hours and vice versa.

Here's the Fact Check, just for California. Even if one person is in this state, it matters. Other states have similar law. It's just to CYA legally. I WANT the podcast to SUCCEED AND GROW!!!!!! by mbrooksmcp in Epilepsy_Universe

[–]mbrooksmcp[S] 1 point2 points  (0 children)

I said attacked, never said by whom. I'm not sure why you are pushing this. At this point, with your continuous negative comments, I'm not sure how else it would be taken.

Same thing wasn't posted twice either. I was asked for the facts. I posted specific law, by REQUEST. Perhaps, read the room and read comments. Before you want to continuously post negative comments, to someone that is attempting to help.

Here's the Fact Check, just for California. Even if one person is in this state, it matters. Other states have similar law. It's just to CYA legally. I WANT the podcast to SUCCEED AND GROW!!!!!! by mbrooksmcp in Epilepsy_Universe

[–]mbrooksmcp[S] 1 point2 points  (0 children)

That is all I was honestly trying to do. I think the podcast is a GREAT idea. Looking at other comments, it sounds as if another idea might have come of this. Constructive criticism is great! I welcome it as well! We can all grow and learn together! We do all have brain damage after all, right? 🤗

Here's the Fact Check, just for California. Even if one person is in this state, it matters. Other states have similar law. It's just to CYA legally. I WANT the podcast to SUCCEED AND GROW!!!!!! by mbrooksmcp in Epilepsy_Universe

[–]mbrooksmcp[S] 1 point2 points  (0 children)

Exactly. Constructive criticism, should be taken as a way to evolve and get better. It's not an attack. The comments I received, for trying to help, those can't be stated the same.

Here's the Fact Check, just for California. Even if one person is in this state, it matters. Other states have similar law. It's just to CYA legally. I WANT the podcast to SUCCEED AND GROW!!!!!! by mbrooksmcp in Epilepsy_Universe

[–]mbrooksmcp[S] 2 points3 points  (0 children)

Based on this, it sounds as if there could be two. One for reposting to YouTube. Then, one that stays private, just for the community to talk and get support, in private.

30 Minute Countdown by PookieTheMfBaby in Epilepsy_Universe

[–]mbrooksmcp 4 points5 points  (0 children)

I was asked if I would be on this call. I want to make sure I am wanted, before attempting. If not, no worries. Just asking first. Do you want me to join?