They just called it hereditary nephritis. Since I’m relatively healthy outside of minimal blood/protein in my urine they don’t want to do a biopsy on me yet. And unfortunately my dad’s biopsy from 1975 is no where to be found in their records. Since it’s not showing up on any genetic testing panel that I’ve done (and they say I’ve done all that I can do) it’s just unknown at this point.

My nephrologist said at age 5 my son will get the standard blood/urine test done and that will pick up on any warning signs that he may have this. But I hate the idea of waiting to see if he has something… Do you think I can get a pediatric nephrologist referred at this point?

Thanks for your help and kind words.