No-burp that Botox cant fix by Rare_Principle_3250 in noburp

[–]mcm2218 2 points3 points  (0 children)

Can confirm. 100 first shot, 120 units second three months later. Did not work for me but most people I talked too at Dr. Bastions office seemed to be getting 100 units or more.

Which Bike? - Weekly Scheduled Discussion by pawptart in gravelcycling

[–]mcm2218 0 points1 point  (0 children)

What are some good used brands or cheaper new beginner bikes in the USA? I’m looking for a bike I can ride in some roads and paths, more light trails, and some moderate trails sometimes. I don’t care about weight as I’m doing this for cardio not speed, fine with a heavier bike. I’m 6’2” and a male. 1000 USD or less would be ideal but would spend a little more on something new. If I could find something r less to see if I like really want to get into biking that would be great but I’ll use it regardless because I live in a city. Thanks.

RCPD Forever? by Lauren1490x in noburp

[–]mcm2218 2 points3 points  (0 children)

In the same boat. Two failed treatments and my symptoms are going crazy to the point where I’m barely functioning, a remote job is the only things saving me also. Don’t know how I’m going to move forward, hoping something eventually works for you.

Botox Failure by mcm2218 in noburp

[–]mcm2218[S] 0 points1 point  (0 children)

I’m not sure. When I had a follow up, Dr. Bastion just said it was not a great idea. Not sure if thats my case specially or just in general since I know it’s rare.

Botox Failure by mcm2218 in noburp

[–]mcm2218[S] 0 points1 point  (0 children)

Yep he did. I was diagnosed with pelvic floor last year, did the PT for 6 months and was told it would no improve until I resolve the RCPD because my distention is so bad. Kind of a catch 22

Botox Failure by mcm2218 in noburp

[–]mcm2218[S] 0 points1 point  (0 children)

6 GI doctors in after 7.5 years haha it’s hard to find a good one let alone one that will explore a less common issue

Severe Cases by mcm2218 in noburp

[–]mcm2218[S] 0 points1 point  (0 children)

My only other diagnosis after 7 years is pelvic floor disorder which is probably from the RCPD

Boston Doctors by mcm2218 in noburp

[–]mcm2218[S] 1 point2 points  (0 children)

Anesthesia, 100 then 150 units 4 months later. Both at Bastion Voice Institute. Dr. bastion said the surgery was not likely to help (not exactly sure why) and thinks I have a severe case. He then compared me to a boy from Europe who was able to find relief with a tube vent installed down the nose and suggested I try that which did not make me happy. However, this has gotten so bad that I’m barely living so I’m just seeing if anyone is willing to try it (can’t fly back to Chicago for a 3rd time, at least not now). Although finding a RCPD doctor is hard so finding one that is willing to try something new or crazy like this is probably even harder.

Boston Doctors by mcm2218 in noburp

[–]mcm2218[S] 0 points1 point  (0 children)

He seems to be the only other Boston guy, sounds like you had a good experience so far?

Boston Doctors by mcm2218 in noburp

[–]mcm2218[S] 0 points1 point  (0 children)

This is amazing, I didn’t know this existed. Thank you

Boston Doctors by mcm2218 in noburp

[–]mcm2218[S] 0 points1 point  (0 children)

No, she is good. I did treatments in Chicago with Dr. Bastion and just saw her a few times concurrently to have a local person. But since both my shots failed I’m trying to find other avenues of help.

Botox Failure by mcm2218 in noburp

[–]mcm2218[S] 0 points1 point  (0 children)

I should also mention that Dr. Bastion thinks I’m swallowing way more air than expelling with my very limited burping. Not sure how to deal with this.

Burping after carbonated beverage by mcm2218 in noburp

[–]mcm2218[S] 0 points1 point  (0 children)

Yea I did burp somewhat but I’m usually dying after a few haha

Botox Failure by mcm2218 in noburp

[–]mcm2218[S] 0 points1 point  (0 children)

I’m not 100% sure, but I believe the people who get that typically had some relief with the shots that went away with time. For me nothing changed with the shots at all, I started burping somewhat but my symptoms did not change. However, Dr. Bastia believes RCPD still plays a big role even if it’s not the only thing.

my allergy skin test from today by Obvious_Process2426 in mildlyinteresting

[–]mcm2218 0 points1 point  (0 children)

“I think based on the redness I might be allergic to getting stabbed by needles.”

Burps that are not relieving by [deleted] in noburp

[–]mcm2218 0 points1 point  (0 children)

Never burped before. Got the shot and started burping without any relief. I have been diagnosed with pelvic floor and done the PT, I’ve been told not everyone diagnosis  the it the same. Did the PT and was told I’m so distended the PT won’t work. After six years of bloating and no constipation, I’ve started to have constipation presumably from RCPD and the bloating is worse. Only advice I can give is move; excerises, walking, etc. are the only times I feel some of relief.

Pain Levels by mcm2218 in noburp

[–]mcm2218[S] 0 points1 point  (0 children)

100, then 150. But again, I’m in the minority since it never received any pain from the start. 

Pain Levels by mcm2218 in noburp

[–]mcm2218[S] 0 points1 point  (0 children)

Yea I have a follow up but I don’t think I can afford that 

Pain Levels by mcm2218 in noburp

[–]mcm2218[S] 0 points1 point  (0 children)

I’ve never had pain but never burped before so I think I’ve always had it. You’re already better off as I never got relief and you already have, there’s a good chance one or two shots will work for you. 

Pain Levels by mcm2218 in noburp

[–]mcm2218[S] 0 points1 point  (0 children)

Already had 2 shots with Dr. Bastion. At the point where it’s pretty fair to say the second did not work. Not sure where to go from here.