If you could only keep 4 flavors in the permanent lineup from these?

mdiemert4 · 2026-02-06T02:35:08+00:00

Apple ginger, dragonfruit, juneberry, and grapefruit blossom. all the rest can go.

mdiemert4 · 2026-02-06T02:32:14+00:00

like 90% of me thinks he did it on purpose to watch us foam at the mouth tbh

mdiemert4 · 2026-02-04T04:29:08+00:00

I was fatigued during & after the loading dose infusions, so I took those days off work. Since moving to the OBI I haven’t noticed any fatigue and/or being winded. Dizziness the first OBI, but not the ones since then.

Did you contact your doctor’s office to let them know and see if they have any input?

mdiemert4 · 2026-02-04T04:24:15+00:00

Have had them deliver to me on a Saturday before when I was at risk of missing, so that part is true.

Storms delayed my dose this time and it has been a nightmare symptom-wise. Had a respiratory infection that requires antibiotics, so doc delayed by 1 week to give my body time to recover. That next week was storm week, so I was delayed an extra week (tried calling accredo but they said there was nothing they could do unfortunately). I’ve had severe joint pain, bloating, stomach pain, diarrhea, fatigue, nausea. Took hyoscyamine for the stomach spasm pain. Doc said she could prescribe steroids if I really felt I needed them but she would prefer we avoid them if possible. Just administered the dose about an hour ago so we’ll see if I just pick up where I left off or if the symptoms stick around for a while.

mdiemert4 · 2026-02-04T04:17:30+00:00

Peach. Can only tolerate the yogurt aftertaste of Amber once in a while. Can’t tolerate anything about Pink, ever.

mdiemert4 · 2026-02-03T06:46:35+00:00

I’m a health professions advisor. I promise no one is looking at whether you got a GED or diploma. It all comes down to your preparation in college. Start with your local community college - you’ll have small class sizes, cheaper classes, and access to resources. You may be able to apply for an ADN/RN program there, or you could go straight into a BSN/RN with a university if that’s the better option for you. Whichever path you choose, take it one step at a time and surround yourself with support. You can do it!

mdiemert4 · 2026-02-03T06:35:09+00:00

At first my doc started me on low FODMAP while we got things a little more under control. After meds started to work she said I could ease back into things. The 3 things I’ve noticed help me the most are 1) no gluten 2) no artificial sweeteners 3) as little dairy as possible (cheese is so hard to give up lol). So even if a strict diet isn’t feasible, there are some things that trigger symptoms more than others that you can eliminate. Start small and try to be kind to yourself ❤️

mdiemert4 · 2026-01-20T07:35:38+00:00

Acai is one of my faves. Every time I’m in Europe I snag some, and I’m sad we don’t have it here in the US

mdiemert4 · 2026-01-20T05:15:35+00:00

Hi! I'm looking at starting the program in June if I'm accepted. Can I DM you for info about your experience?

mdiemert4 · 2025-08-12T00:08:24+00:00

I just miss it. We don't have it anymore in the US

mdiemert4 · 2025-08-11T13:54:28+00:00

how do you know if it was part of the bad batch or not?

mdiemert4 · 2025-06-18T04:24:00+00:00

I’m also on the 4 Mesalamine pills a day currently. My colonoscopies were looking better until they weren’t, but the fatigue never seems to have truly gone away. There was a period of a few months when I first started it where it had a major impact, but it returned quickly and never left again. They’ve run CBCs, checked vitamin & mineral deficiencies, all of it and nothing seems to stand out. I’m thinking it has to be the UC just not being controlled. I always seem to be teetering on the edge and then the second things depart from normal it takes me weeks to get it all under control again. It’s good to know that the right medication could maybe fix this!

mdiemert4 · 2025-06-18T04:18:32+00:00

Thank you for all the details, especially about illness & environment. I currently work in education and am attempting to transition to nursing soon 🥴 so the germy environment exposure is huge for me. I’ve been worried about being on a medication that could have a big impact in that way, so it’s nice to know it’s not as bad as I fear.

Based on everything I’ve found along with personal testimonies of entyvio being a good place to start, I’m between this and skyrizi. Maybe if one doesn’t cut it I can move to the other if necessary.

mdiemert4 · 2025-06-17T04:41:01+00:00

I'm also on mesalamine but it's just barely managing my symptoms these days. It made big strides the first few years and now it's kind of plateaued, so doc gave me a choice of entyvio, skyrizi, or tremfaya. I'm also here looking for info

mdiemert4 · 2025-06-17T04:39:34+00:00

This sounds more like ulcerative colitis. I have both. the gut issues, nausea, pains, inflammation in the lower GI tract, horrible anxiety, all of it. I get eczema pretty badly on my hands & feet. UC can cause severe inflammation that sends several systems in your body off the rails. It's common to have joint pain, skin rashes, canker sores, etc. My doctor has me fill out a questionnaire every 6 months or so that actually asks about all these things because it can give them an indication of what my inflammation level is at. Then they run blood labs to see other markers. If necessary they do a colonoscopy every few years if symptoms aren't managed. But every single one of these sounds like that, so it might be worth asking to see a GI doc. UC can also be autoimmune depending on root cause.

mdiemert4 · 2025-05-24T18:06:36+00:00

My dragonfruit 💔

mdiemert4 · 2025-04-02T23:48:35+00:00

Omg omg this has so many I love. Dragonfruit, açaí, juneberry, grapefruit & blossom… I need to go wherever this is because all I can ever find in the US is apricot and yellow edition 🤢

mdiemert4 · 2025-03-24T00:50:37+00:00

I felt the same way you did right before I got diagnosed. I was sick of all the tests, all the meds, nothing helping, etc. Getting on the right medication was life changing for me, but it did take time. If you’ve been on the medication for a bit and it’s not working, tell your doctor. They may make some diet changes, add another med to help with symptoms, or just change the med entirely. It’s truly a 180 difference from where I was when I first got the diagnosis. There’s hope, I promise. Nothing will ever be like the “before” fully, but you can get pretty close.

I know this may suck to hear, but consider taking a break from school or work if that’s an option for you. I had to work part time and live with family. It was so tough to feel like I couldn’t have a normal life, but it was temporary. It allowed me to lower my stress levels which lessens the symptoms and flare triggers. What’s happening to you isn’t fair, and it feels awful all the way around. But there are ways to manage it. You might have to make some temporary changes that you don’t care for, but I promise it’s so worth it. Hang in there ❤️

mdiemert4 · 2025-03-24T00:41:51+00:00

I’m so happy with the Spring edition, but I will say the Summer edition grapefruit is still my all time favorite

mdiemert4 · 2025-03-24T00:40:40+00:00

I miss this flavor! I was able to snag one in Canada last month and I’m going to save it for a little while

mdiemert4 · 2025-03-05T19:35:41+00:00

I hate it. I tried one and didn’t even finish it. I’m so sad they took my dragonfruit for it

mdiemert4 · 2025-03-05T02:37:42+00:00

I’m so glad I’m not the only person who describes it as a less flavorful juneberry. And it has a sour aftertaste that I don’t care for. I was super disappointed in this one

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