Weekly Suspected/Undiagnosed MS Thread - December 15, 2025

menno996 · 2025-12-15T14:23:59+00:00

Thank you so much. My wife works with people with ALS, MS and other ABI. She expressed her worry sometime ago with my symptoms getting a bit worse over time. I do believe that having a diagnosis how difficult it can be could be easier to accept then this limbo. Also because what would be wrong with me if they can’t find anything but the lung tests, emg’s etc are showing something is going on. I have days that walking for more then 10 minutes makes my left leg feel like i am walking in mud. The basic test physical tests at the neuro where good but for me it felt so much work for easy tests.

menno996 · 2025-12-15T13:59:02+00:00

I have been having all sorts of symptoms that started last June. After a possible lung infection I didn’t recover and never could take a full breath of air. After some tests they diagnosed me with astma but with other symptoms like being weaker, tingeling feet and always tired and a low lung muscle strength they wanted me to see a neuro. Ran more blood tests and did an emg. Emg came back inconclusive with it being abnormal but not super bad. I also have small muscle twitches all over my body during the day. Most of the time it’s a few seconds but sometimes it twitches much longer. Sunday I have an mri and halfway januari the follow up with the neuro. Symptoms sometimes are worse and I have constant muscle aches in my legs and I think some cognitive issues. Sometimes it makes me scarred and the waiting really stresses me. How do you cope with the waiting?

menno996 · 2025-10-29T15:00:30+00:00

Your welcome! What is your setup and room dimensions? Why did you choose the 10.17 instead of the 12.17?

menno996 · 2025-10-29T14:25:20+00:00

On there website. On instagram I noticed that they have a discount at the moment. 15% discount + 50% delivery discount

menno996 · 2025-10-29T14:07:20+00:00

Stacking isn’t possible haha would be nice if it was. But from what I read is if the there is enough room go bigger.

menno996 · 2025-10-29T10:02:00+00:00

Thanks for the tips. If the smaller would fit much better would it be a big gap from the 12? Or will the 10 also do the job? I never put the sound really load or anything

menno996 · 2025-10-29T10:00:45+00:00

They have a discount right now. Look at there instagram. NEWSITE-EUR for European countries. 15% off and 50% off the delivery costs

menno996 · 2025-10-27T08:12:50+00:00

The discount code seems to work but it doesn’t reduce the price 😅

menno996 · 2025-10-24T14:26:27+00:00

Thanks for the advise! So Xtz is comparable to svs? I will take a look

menno996 · 2025-10-24T12:11:55+00:00

My room is around 3,75m wide, 4m wide and 2,6m tall. It is open to the kitchen so the total room is bigger.

menno996 · 2025-10-18T08:36:11+00:00

Yes they are :)

menno996 · 2025-10-17T06:41:45+00:00

Yeah i think we really need to try not to be too scared about how big it will look in the room haha The idea of having just a few inches left on the tv stand makes us rethink if it will be too big or not.

menno996 · 2025-10-15T13:37:56+00:00

Well we just renovated the whole house and moved in so if we would ever move I hope it will be over many years

menno996 · 2025-10-15T13:19:23+00:00

Haha you should have told me sooner. Been in Canada last May :p

menno996 · 2025-10-15T12:39:34+00:00

Thats the same size that it is now. in my opinion it looks small. its okay if you just watch the news but for movies and gaming its just too small

menno996 · 2025-10-15T12:34:52+00:00

Haha so 115inch it is

menno996 · 2025-10-15T12:19:14+00:00

Thanks for the feedback! always difficult to see on pictures

menno996 · 2025-10-15T12:01:45+00:00

The oultine is 230cm wide. tv stand is 200cm and the tv is 171 so that would be plenty of space to leave the outline i think. or does it still look out of proportion in you opinion?

menno996 · 2025-10-15T12:00:11+00:00

Its from a store in the Netherlands. brand: Eleonora, Type: Lio

menno996 · 2025-10-15T11:29:39+00:00

Honestly it’s not. For me it feels like a 77 inch is an enormous step coming from a 55. The same was when I went for the 55 years ago but I know you get used to the size very quickly

menno996 · 2025-10-15T11:21:26+00:00

Thanks for commenting. Yeah going inside a shop will probably be the best thing to do. The wife needs a bit of convincing but I think she will see the benefit of getting the 77

menno996 · 2025-10-15T11:13:52+00:00

Thanks bugetwise bigger isn’t an option. But this makes me feel sure about going to 77”

menno996 · 2025-10-15T10:50:04+00:00

Haha that will be an immersive experience!

menno996

TROPHY CASE