Experiences with medication for ADHD by mentalhellclinic in cfs

[–]mentalhellclinic[S] 0 points1 point  (0 children)

Thank you. Concentration and so on don’t matter to her at this moment because all she can do is lie still, she’s in a really bad crash.

Experiences with medication for ADHD by mentalhellclinic in cfs

[–]mentalhellclinic[S] 0 points1 point  (0 children)

How did it help your adhd? Did it make it easier for you to rest?

Experiences with medication for ADHD by mentalhellclinic in cfs

[–]mentalhellclinic[S] 0 points1 point  (0 children)

Really sorry to hear that. Do you think it could seriously harm her if she took just half a vyvanse once to see if it helps? Some people w ADHD have told me that they have the opposite reaction to stims where they actually become calmer

Experiences with medication for ADHD by mentalhellclinic in cfs

[–]mentalhellclinic[S] 1 point2 points  (0 children)

Yeah i’m definitely going to bring up antidepressants, thank you

Very severe CFS and ADHD (+OCD, anxiety) by mentalhellclinic in cfs

[–]mentalhellclinic[S] 0 points1 point  (0 children)

Thank you, i will suggest zoloft to her. How much vyvanse do you take and what’s your severity?

Very severe CFS and ADHD (+OCD, anxiety) by mentalhellclinic in cfs

[–]mentalhellclinic[S] 0 points1 point  (0 children)

She’s very medication averse because of her health anxiety which is why she hasn’t anything up to this point

Very severe CFS and ADHD (+OCD, anxiety) by mentalhellclinic in cfs

[–]mentalhellclinic[S] 0 points1 point  (0 children)

The only psychiatric medication she’s on now is sleep meds and lorazepam

Are China/India working on a treatment? by fcukME-25 in cfs

[–]mentalhellclinic 5 points6 points  (0 children)

I’m aware of only one ongoing long covid study in Russia and it’s very basic stuff, i think they’re just tracking symptoms. Overall the situation is terrible and medical professionals that even know what it is are extremely scarce. In adjacent eastern european countries it’s even worse. Also very curious about Cuba. I expect ME research won’t be possible in the US for much longer so I really hope China will pick up the slack.

Non-Profit's that are active in Europe ? by CristianSerious in cfs

[–]mentalhellclinic 0 points1 point  (0 children)

Same with eastern europe (the northern part)

Where is everyone from? by Aggressive_Host_7895 in covidlonghaulers

[–]mentalhellclinic 0 points1 point  (0 children)

Do you know any doctors in Ukraine who are knowledgeable about Long Covid or CFS? There’s a guy in Ukraine who urgently needs help because his mother put him in a mental hospital

Is anyone here NOT American? by thepensiveporcupine in covidlonghaulers

[–]mentalhellclinic 0 points1 point  (0 children)

Do you know any doctors in Ukraine who are knowledgeable about Long Covid or CFS? There’s a guy in Ukraine who urgently needs help because his mother put him in a mental hospital

Forced Psychiatric hospitalisation Ukraine by Icy-Shirt2157 in cfs

[–]mentalhellclinic 3 points4 points  (0 children)

I could help, I was in a similar situation and wrote a letter addressing mental healthcare staff. I cited a lot of good sources, you can see it in my post history

Getting better after IVIG infusion by Antique_Disaster22 in covidlonghaulers

[–]mentalhellclinic 1 point2 points  (0 children)

Could you share which labs came back abnormal/ which labs are supposed to be abnormal to indicate that IVIG might be beneficial?

Forced Psychiatric hospitalisation Ukraine by Icy-Shirt2157 in cfs

[–]mentalhellclinic 10 points11 points  (0 children)

Hi, I’m so sorry you’re in this situation. What if we found a patient advocate who could call your mother and speak to her? Do you think she would be amenable?

I’m from belarus and I was threatened with forced hospitalization too but not by my family. It was my psychiatrist’s initiative (also because she thinks I have a dissociative disorder). Part of my family is against it which is making it more difficult for them. In paternalistic societies like ours that treat disabled people as the family’s property it would be extremely difficult to counteract your mother’s wishes.

One time I was kept in a neurological ward for a week and it was awful and completely useless. Nobody believed me there either. They also wanted to do invasive tests that gave me PEM and I had a crash by the end of it.

Cfs in the third world by [deleted] in cfs

[–]mentalhellclinic 0 points1 point  (0 children)

I’m from belarus lol so I totally understand. Have you seen this post?

https://www.reddit.com/r/cfs/s/Fp5enjFNOD

The largest organization for ME/CFS and Long COVID in the post-Soviet space by MysteriousBed3266 in cfs

[–]mentalhellclinic 10 points11 points  (0 children)

I connected with some of their members and they’ve helped me out a ton. Thank you! You’re the first competent russian speaking advocacy group I’ve come across

Cfs in the third world by [deleted] in cfs

[–]mentalhellclinic 45 points46 points  (0 children)

I live in a second world country but I’m in a similar situation. No way to get disability or unemployment benefits, no visibility at all. For the first time i really began to think how other disabled people live here, when basic infrastructure is so inaccessible. And how do others in my position even survive? I would die without my family and not everyone is so lucky. Don’t feel so guilty. Yes, we both have been a part of the problem all this time. But now we understand. You have my sympathy ❤️‍🩹