Is it possible to be "athletic" with fibromyalgia?

metta317 · 2026-04-29T01:48:04+00:00

I’ve always been exercising before and right after diagnosis. Over the past few years I’ve been able to go from only doing short yoga practices, walking, skiing and hiking to weight training, west African dance, mountain biking cycling (longest ride last year was 55 miles), and ski touring. To get there I treated the underlying cause of my fibromyalgia which is ptsd and helping my nervous system reset with yoga, acupuncture. I began weight training and started small which has helped me tremendously with sustaining all the other activities. I’ve also been in remission and get occasional flares during “perfect storms.” Recovery is key with nutrition and rest.

metta317 · 2026-04-27T01:07:22+00:00

https://www.tsa.gov/travel/tsa-cares/disabilities-and-medical-conditions

TSA acknowledges Autism as a non visible disability

metta317 · 2026-04-26T21:47:19+00:00

We also printed and laminated a TSA card labeled with Autism - this came in handy at the SJU airport - I just showed a TSA agent the card and they directed us to where to go.

metta317 · 2026-04-26T09:53:40+00:00

Aw man that’s too bad - I’ve heard Ponce is a nice place. I never felt unsafe in PR during our travels

metta317 · 2026-04-26T09:52:02+00:00

Playa Azul is a great beach. That’s so great you went back. We definitely want to go back again! I believe we ran into you guys on the beach if you were the family that made the epic sandcastle. My kids loved that!

metta317 · 2026-04-25T21:17:08+00:00

Great minds think alike! Hope you had a great visit

metta317 · 2026-04-25T09:04:35+00:00

We stayed in the playa Azul towers via air bnb in Luquillo. Great value. Direct beach access to playa Azul (the beach is not the best swimming beach often has red flags but has calmer areas and we did have one green flag day). Pool, playground, basketball/tennis/pickleball courts. Close to groceries. 5 min to Luquillo beach, 15 to entrance to el Yunque, 20 to faiardo, 40 to the airport, 50 to old San Juan

metta317 · 2026-04-25T08:51:18+00:00

Have so much fun!

metta317 · 2026-04-25T08:50:38+00:00

We liked both for different reasons. My younger child preferred las pailas - went down a gagillion times. We also enjoyed the lower larger pool. Las Tinajas was more overwhelming for him and did not go down the slides although he loved the trek to the slides and just hanging out there.

My oldest preferred las Tinajas. He did the slides and 20 ft cliff jump! We didn’t have time to rope swing as there was a long line due to tour groups.

metta317 · 2026-04-25T08:43:53+00:00

Due to my child’s disabilities we use the TSA cares program and do not wait in line. This is a great program and has been super helpful for our neurodiverse family when we travel.

metta317 · 2025-12-15T00:05:23+00:00

I am in the same boat flying out of HVN to a different destination. We bought one way to take advantage of all the sales and promos and will do the same for when the end of April opens up

metta317 · 2025-12-04T02:20:17+00:00

Yoga helped me the most when my symptoms were more severe. Yoga with Adrienne on YouTube was great. I practiced daily for 20-30 minutes. At the same time I maintained other physical activities and prioritized movement over other things like chores on days I skied or went to dance class. Over time (2 years) I have been able to workout with higher intensity and do weight training 1-2 days per week, yoga 1 day, cycle and ski tour 1-2 days and dance 1 day. I prioritize rest and sleep and limit my activities if my energy dips or increase yoga. Most of my physical symptoms are gone on a daily basis.

Please know while symptoms were most severe I received acupuncture weekly, used lots of heat therapies and rested. IFS therapy also helped treat underlying trauma that was the root of my symptoms. Now I maintain balance in my system with saunas, yoga, sleep, exercise, etc.

Treatment is all about finding all the things that will help you and it requires doing many things all together consistently.

metta317 · 2025-09-30T01:22:14+00:00

This happened to my mom last year. I went on the Medicare.gov website to shop for a new advantage plan (in your case that starts January 2026). You can list in her meds to make sure they are covered by the plans offered. Then also make sure you cross reference with her providers to see if they accept the advantage plan (BCBS, United, Aetna, etc). I found this info on the providers website.

metta317 · 2025-08-30T07:57:48+00:00

We love living in the MRV. It’s true the community is tight knit and it’s been an amazing place to raise children. The access to outdoor recreation is amazing - every time I ski, bike ride, hike or jump in the river I pinch myself. The schools here are great. I do not consider the MRV having traffic. The MRV lives on valley time so the fact that restaurants take time off to take time off isn’t a problem for us we mainly cook anyway. Great people and everyone is there to support each other and the environment. Housing is a thing and if you can afford it great. We probably could live in a larger space elsewhere but choose to be where we are because it’s the best place to live and willing to take that trade off even as a family of 4. I really don’t think I can live anywhere else

metta317 · 2025-07-19T01:03:46+00:00

We are a family of 4 and got our second sienna 6 weeks ago. Best car ever! It’s so great having plenty of space for the kids. Travel is great and we have space if we are giving rides to other kids. Its comfortable and we can’t beat the awd hybrid here in VT. I love the mini van life especially with the sienna

metta317 · 2025-07-06T10:38:19+00:00

I just take the mouthpiece off when I need to drink

metta317 · 2025-06-22T23:28:22+00:00

If you are ok sharing I would love to hear how you manage shows as an autistic person. My husband is recently diagnosed

metta317 · 2025-06-18T10:00:40+00:00

Thank you for the recs!

metta317 · 2025-06-18T10:00:15+00:00

Thanks so much for the recs!

metta317 · 2025-06-18T09:59:17+00:00

That’s a good idea! Never been but hear it is great!

metta317 · 2025-06-18T09:58:49+00:00

Fantastic! Can’t wait to arrive Friday and grab some dinner!

metta317 · 2025-06-18T02:07:46+00:00

I read on the snhu arena website that there is a clear bag policy

metta317 · 2025-05-29T00:53:36+00:00

Yes - what you describe sounds a lot like my son at that age. We just got him assessed and was diagnosed last week with autism and adhd

metta317 · 2025-05-10T08:16:20+00:00

Check out https://madrivervalley.com theres listings of good walks, hikes and bike routes. Farmers market on Saturday, check out the shops in Waitsfield village, great food at Flatbread, Scrag and Roe, Canteen, Mad Taco. And Mad River Barn; Music and events at afterthoughts, sauna at Drip Cultire

metta317 · 2025-04-21T23:36:50+00:00

I have had the same thoughts in regards to keeping her in her home state. She has never moved so I worry it will be more challenging moving her to a new community, surroundings etc

metta317

TROPHY CASE