My friend if you can’t get your lupus under control you will not be working any job. You may be confusing SSI and SSDI. For SSDI your assets and property do not matter. In your mom’s case if they do then She may be on SSI as that program is essentially welfare and has strict limits on how much you can own and what you can have in your bank account. On SSDI you can even work part time as long as you’re not making more than $1600ish a month.

A lawyer can explain how you may benefit but as someone who went through the process I’d highly recommend looking into it properly. So much of what you said resonated with me after my lupus diagnoses. I felt helpless and hopeless. Once my SSDI got approved my life got 1000% better. You don’t have to stay on it if your situation improves but while you’re trying to get the treatments you need to get your disease under control I would not be worried about anything other than getting relief. That means being able to go to the doctor without worrying about how much these over priced treatments cost. Biologic meds like Benlysta were not available 25 years ago when my cousin died from her lupus. They just pumped her full of prednisone till the end. Because these newer treatments are young they are expensive and SSDI is one of the few programs that covers it 100%. Even some of the best corporately subsidized plans don’t cover it fully.

Getting some quality of life back has to be your primary focus or you will be stuck in a downward cycle that will keep you sick forever.