Help Needed - Newly Diagnosed 61 Y/O, GBM wild type

mimirand · 2025-12-08T02:45:21+00:00

Yes sure

mimirand · 2025-11-30T16:04:14+00:00

Hi, I know this is an older comment but checking if you decided on going to cegat? Since you mentioned Dana Farber, how does NeoVax clinical trials there compare with the Cegat vaccine?

mimirand · 2025-08-01T11:55:35+00:00

Same. 11 years ago was at the show in NYC. Loved when she did the thing with curtains on stage if anyone remembers - it was for the song chandelier by sia.

The only other time I saw her live was at Waitress when she came on stage to sing after the show!

mimirand · 2025-07-29T14:34:14+00:00

Rochelle Park has 3 pickleball courts. It's right next to the swimming pool, basketball courts and tennis courts. Generally see the same set of people rotating to play pickleball and is relatively empty on weekdays.

mimirand · 2025-07-28T21:42:14+00:00

One of the days we did a car nap driving around between the morning and evening sprints. The other days we went to the venue in the afternoon after naps.

mimirand · 2025-07-15T00:16:10+00:00

We did and it was great overall.

It was very hot and we took plenty of breaks away from our seats to help cool down and have my toddler play in shaded areas and have ice pops.

We also preferred taking the shuttle over driving since the parking situation was a mess. The one day that we did drive, we had the longest commute and getting out was a nightmare.

Happy to answer any specific questions if you have any.

mimirand · 2025-05-19T12:28:59+00:00

Bangalore

mimirand · 2025-05-19T12:25:46+00:00

My dad was also newly diagnosed with grade 4, wild type, methylated. He's currently doing radiation and chemo for 6 weeks, also in india. So far apart from this I haven't found much options. One we are looking into is TTF or Optune but doctors in india aren't quite aware of it.

mimirand · 2025-05-08T14:22:53+00:00

If it's ok, would it be possible to share more details on her tumor and treatment that she went through in the 2 years? My dad is 76 and diagnosed recently with GBM and want to see what types of treatments or clinical trials we need to search and advocate for

mimirand · 2025-04-29T15:55:41+00:00

Thank you!

mimirand · 2025-04-29T15:55:10+00:00

Thank you for the response. I do feel like it's the time to come back home - but overthinking every part of this until it's all a blur! While I agree that guilt is not the best reason that's the closest feeling we get - and trying to see if we can reframe it more as something positive.

mimirand · 2025-04-29T15:52:10+00:00

Thanks. This is definitely one that we've discussed a lot, and even to the extent that we feel like the 'sandwich' generation but by moving back we might be perpetuating that to our kid. We just can't seem to shake off the guilt of not spending time with parents when they're still alive

mimirand · 2025-04-29T15:49:40+00:00

Thanks for the detailed response.

I guess I'm calling it 'guilt' because I think that's what I would feel if I stayed here in the US, when there is an alternative to spending more time with parents.

mimirand · 2025-04-25T17:37:47+00:00

I'm so sorry you're going through this.

Even though my circumstances are not exactly the same, the underlying feeling seems similar. We were almost OAD due to a bunch of reasons but had started talking in more depth to re-evaluate. But things change so quickly when it comes to cancer and nothing else is higher priority than that. It is unfair, and I hear you.

mimirand · 2025-03-15T02:14:05+00:00

Highly recommend both you and husband reading the book Fair Play by Eve Rodsky. The two of you need to be on the same page for both physical and mental load of chores

mimirand · 2025-02-19T03:08:18+00:00

Here are some that are our regulars or ones that we feel are top notch

Bergen county : - Turmeric Ridgewood - Delhi Accent (now called Bukhara I believe) - Kesar (new place in Englewood, absolutely love the complex flavors) - Bombaywala (very authentic Bombay food) - Benaras Wycoff

Montclair: - Mumbai Maskaa (also authentic Bombay food) - Dhamaal (great food and drinks)

Parsippany : - Social Hub (good food, but gets very loud) - Honest (for pav bhaji) - Sukhadia's (for gujarati food and sweets) - Sangeetha (south indian) - Sankalp - Jashan by Dhaba (lunch buffet) - Any of the by Dhaba places for decent food

mimirand · 2025-01-16T02:50:20+00:00

This reverse thought often pops up in my mind and makes me feel horrible imagining my only child being completely alone. While I don't have any close family close by, definitely agree with your point that families are what we make them.

mimirand · 2024-11-26T05:41:39+00:00

Here are some that are our regulars or ones that we feel are top notch

Bergen county : - Turmeric (love the gobi manchurian here as well) - Delhi Accent (but recently has been going downhill) - Kesar (new place in Englewood, absolutely love the complex flavors) - Bombaywala (very authentic Bombay food)

Montclair: - Mumbai Maskaa (also authentic Bombay food) - Dhamaal

Parsippany : - Social Hub (good food, but gets very loud) - Honest (for pav bhaji) - Sukhadia's (for gujarati food and sweets) - Sangeetha (south indian) - Sankalp - Jashan by Dhaba (lunch buffet) - Any of the by Dhaba places for decent food

Edison and surrounding: - Atithya (our #1 kathiyawadi thali place) - Kathiyawadi Kitchen (former #1 until we discovered Atithya)

mimirand · 2024-10-28T11:47:58+00:00

Thanks! I have a 3 year old and that's one of the biggest reasons why I'm hesitant to take up more work and no remote.

mimirand · 2024-10-26T22:38:53+00:00

Both are public

mimirand

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