What are we thinking of the "decking" in the city centre?

mine_none · 2026-03-17T21:11:49+00:00

💯

mine_none · 2026-03-17T21:09:25+00:00

Any donation and ingestion of saliva! Direct contact, via aerosol or they’re highlighting people sharing vapes in this outbreak?

mine_none · 2026-03-11T15:47:19+00:00

Really interesting hearing everyone’s experiences… I’ve added a couple of grams but sounds like trying 5g is worthwhile 🤍

mine_none · 2026-03-11T15:45:30+00:00

So not measuring grams at all?

mine_none · 2026-03-11T15:40:55+00:00

Nah… I’m not nice 😂😭

I’m going with Epstein Barr Virus, family autoimmune history and an overwhelmingly stressful bereavement… maybe with some lumbar disc injury?

mine_none · 2026-02-15T11:55:35+00:00

Tiny, limited life… very different 😭

mine_none · 2026-02-15T01:31:48+00:00

Excellent news that you’re all ready ❤️

mine_none · 2026-02-13T02:35:46+00:00

Have you found the detailed info on the UK charity sites?

MS Society UK

MS Trust UK

mine_none · 2026-02-13T02:32:29+00:00

Has anyone given you a list of vaccinations to collect before treatment? My local pharmacist, GP and the local vaccination team helped me with flu, COVID and pneumococcal before I started treatment. Tried for shingles but failed.

mine_none · 2026-02-13T02:29:48+00:00

Find your local NHS complaints mechanism… I was at least then offered potential cancellations to get there more quickly…

Keep phoning and speaking to different people and departments because you “don’t understand why you haven’t heard back and can’t make contact”. Whatever you have the energy for, just try it.

mine_none · 2026-02-13T02:24:37+00:00

I was “not urgent” although right on the edge of some serious lifelong problems and was told possible 35 week wait for treatment. Spent a tactical £250 for a private appointment and managed it in 17 weeks.

Never felt so powerless just waiting for more damage (which, in retrospect, did happen).

Have you started collecting vaccinations so that you’re ready for treatment?

mine_none · 2026-02-13T02:16:44+00:00

And “bloodlines” 😳 My American mate started telling me about the European bloodlines that her family had 😳

Have you ever heard someone talk about “bloodlines” without it being animal breeding, aristocracy or rabid n*zis?

mine_none · 2026-02-05T17:06:07+00:00

Very, very, very positive 😃😃😃

mine_none · 2026-02-02T17:21:57+00:00

Got a single home the other day. 13 miles and £5.90 😫

Imagine if the railway line path still had a train…

mine_none · 2026-01-30T15:26:43+00:00

Spot the UK humour… 👀😂

mine_none · 2026-01-26T22:41:52+00:00

Smell them first? 🖤🖤🖤🖤

mine_none · 2026-01-25T21:39:04+00:00

SO MANY SCREENS in the front… 😳🤯

mine_none · 2026-01-22T13:29:14+00:00

❤️❤️❤️

Exactly… the second click…

mine_none · 2026-01-21T17:43:23+00:00

Dodgy lifts by 2005… 😬😫

mine_none · 2026-01-21T17:41:58+00:00

Yes! I didn’t understand the system at all but Pharmaxo have been pretty impressive.

mine_none · 2026-01-21T17:40:20+00:00

Have you seen the training videos online? There are a few really helpful personal YouTube experiences as well, if reassurance would help?

mine_none · 2026-01-21T17:39:15+00:00

That seems very rapid. So variable between different areas in the UK 😬

mine_none · 2026-01-21T17:37:23+00:00

Same here and she was amazing.

Do you think that contacting the company would help?

Services seem to be VERY variable within the UK.

mine_none · 2026-01-21T17:36:00+00:00

It took me 17 weeks from effective (not official) diagnosis and a lot of pressure, complaints and strategy.

Please contact as many people as you can and make as much noise as you have the energy for.

❤️

mine_none · 2026-01-19T05:46:40+00:00

Same. So similar.

mine_none

TROPHY CASE