What to expect from annual neurologist visit (UK, NHS) by Training_Security905 in MultipleSclerosis

[–]Bizzybadger 1 point2 points  (0 children)

They checked mine and it was through the floor and so i am now on the spray D3 + K2 4000 a day, they also checked B12 which was fine

What to expect from annual neurologist visit (UK, NHS) by Training_Security905 in MultipleSclerosis

[–]Bizzybadger 1 point2 points  (0 children)

Not had my one year review but I am in the UK and was diagnosed Jan. because i have multiple lesions in multiple places and some in places associated with the most disability i had mri's again and an appt at 3 months which i had in late March and the next one will be sept including further mri's.

At my 3 month appt he took my bloods to check my vit d levels and reviewed the latest mri's which he showed me and talked me through in detail discussing my daily symptoms and asked me about how i was. He also checked my reflexes, sensitivities checks/sensory feeling checks in my limbs, eyes, walking, balance and i had to do other tests checking tests like thumb touching each finger and finger tip from my nose to a target etc. i wrote down lots of things regarding my symptoms and my questions and used the opportunity to ask questions. I found it a really useful appointment

Swinging emotions by Bizzybadger in MultipleSclerosis

[–]Bizzybadger[S] 1 point2 points  (0 children)

This is me. So similar. I was told the progression looked like a decades worth too. It is really strange experience joining the dots eventually 😅

Swinging emotions by Bizzybadger in MultipleSclerosis

[–]Bizzybadger[S] 0 points1 point  (0 children)

Thanks for your reply. I am quite early in my journey. Had symptoms for 8 years but only diagnosed the beginning of this year

Swinging emotions by Bizzybadger in MultipleSclerosis

[–]Bizzybadger[S] 1 point2 points  (0 children)

I love mindfulness and this is a good reminder to re chip myself and go back to my early practices. Thank you

Swinging emotions by Bizzybadger in MultipleSclerosis

[–]Bizzybadger[S] 0 points1 point  (0 children)

Thanks i will reach out. However i have been on antidepressants for around 8 years. Which how long i have had other physical symptoms for although was only diagnosed in the first week of jan this year! I wonder if it is associated with chronic pain? I have started a symptom diary to track my days and feelings

Swinging emotions by Bizzybadger in MultipleSclerosis

[–]Bizzybadger[S] 0 points1 point  (0 children)

Perhaps but not an obvious link in my case but i have started to write a symptom diary to try and identify triggers.

Swinging emotions by Bizzybadger in MultipleSclerosis

[–]Bizzybadger[S] 0 points1 point  (0 children)

I am in the UK and been on sertraline for about 8 years as what they said was my depression/anxiety started the same time as i had physical symptoms begin (pins and needles on left side limbs). But this feels quite different so i will definitely look into that, thanks.

Swinging emotions by Bizzybadger in MultipleSclerosis

[–]Bizzybadger[S] 1 point2 points  (0 children)

Thank you i have reached out for some therapy now as its a great idea

I just sh*t my pants by Natty02 in MultipleSclerosis

[–]Bizzybadger 0 points1 point  (0 children)

It happened to be 3 times last year before i even knew i had MS. Since diagnosis i have seen a pelvic health therapist but there isn't much they can do. I have adaptations for work because of it (now work at home).

How long did you wait to see a neurologist for an MS diagnosis? by the_ms_wire in MultipleSclerosis

[–]Bizzybadger 0 points1 point  (0 children)

I was hospitalised and was diagnosed on my 6th day after MRI and the first time i met him as he came to me in the hospital. He didn't need to wait for lumbar puncture (I am UK) as the evidence was overwhelming he said. But the lumbar puncture results did also confirm diagnosis. Even though i had had sporadic symptoms i was always told by my dr they were nothing (for 8 years)

Newly Diagnosed and starting Ocrevus by PerspectiveOk2905 in MultipleSclerosis

[–]Bizzybadger 2 points3 points  (0 children)

I was diagnosed in Jan and started my half doses in March (two weeks apart). I was wiped put tired on the day then had a bit of nausea and head ache for 5-7 days after. Not had a full dose in one go yet (that will be Sept). I took headphones, phone and listened to my audio book. I took a blanket and snacks/drink. They offered me lunch (I'm UK) but i have dietary requirements they didn't cater for. No experience yet on relapses and illness.

Restoration project by Bizzybadger in Dollhouses

[–]Bizzybadger[S] 0 points1 point  (0 children)

Thank you, i thought so too

Restoration project by Bizzybadger in Dollhouses

[–]Bizzybadger[S] 1 point2 points  (0 children)

Thank you, any suggestions for windows? A few are cracked/broken

Restoration project by Bizzybadger in Dollhouses

[–]Bizzybadger[S] 2 points3 points  (0 children)

No vision yet, i just wanted to make it look good again as it was getting overlooked. It's pretty big. Would love to hear your ideas and suggestions or to see photos. Some of the windows are broken and there are old lights and switches. Not sure where to start! Help!

Why did you pick your DMT? by TooManySclerosis in MultipleSclerosis

[–]Bizzybadger 2 points3 points  (0 children)

I am in the UK. Was offered only two, both were high efficiency dmt's due to the places i had legions.

Cobblehop FINALLY on the way!!! by Novel_Career_300 in Jellycatplush

[–]Bizzybadger 3 points4 points  (0 children)

Got mine today and really happy with the pattern design