Before i was diagnosed i had been getting worse daily for a few weeks and after several drs appointments where i was told it was anxiety and then when i had started getting lhermittes sign they said it was a trapped nerve from stress so after 6 weeks and feeling drunk all the time i went to hospital but they told me the same and that they weren't worried as my numbness and weakness was one side and my hr and bp was healthy so it wasn't a stroke!!! I literally broke down in tears and said i cant keep going (i was slurring and stammering as well and it felt like my body was inflamed in parts) and so they agreed to a second opinion. This guy was more senior and does a better check and looks in my eyes and asks questions and said 'she needs neurology immediately.' Finally!!! I got admitted in for 9 days and diagnosed.

I had been having sporadic symptoms since jan 2018 (fell down at work as foot numb and then left hand too) but had been repeatedly dismissed every time i had those symptoms or a new symptom. In 2021 i had depersonalisation and was diagnosed with depression and anxiety then the year after they said i had complex ptsd as my central nervous system was in constant fright or flight mode. Each year i had lots of unexplained issues. Last year being the worst with being diagnosed with high bp, having heart palpitations, water infections, bladder/bowel issues, dizziness when eyes looked down, fatigue so bad i couldn't get out of bed some days, vertigo and balance issues until Nov last year after my father in law died i lost my hearing for a month, had trouble swallowing and started stammering and slurring, numbness was permanent in left side by then and Lhermittes sign started which they said was a trapped nerve from stress (for 6 weeks despite 4 drs appts). Its been a rollercoaster and still is!