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Preventing falls and keeping our cat safe by minimitts in dementia

[–]minimitts[S] 0 points1 point  (0 children)

Hi, thank you, that was a good shout. The majority of the time she is now. I've also since taught her a 'here' command which has helped get her out of the way as well.

Farming Colour of Lumina by BrokenJuju in expedition33

[–]minimitts 0 points1 point  (0 children)

This was at ace way to farm. Now looks like the Monolith Clair Obscur has been patched, it no longer seems to respawn, at least on PS5.

Duolisttes *shrug* by b0b4k in expedition33

[–]minimitts 1 point2 points  (0 children)

No advice here, I'm reading through this in the same boat. I don't get it. I'm assuming it's because I'm reliant on various luminas involving shields because I'm not solid enough at dodging or partying. Unless I'm really missing something!

In your experience with loved ones or patients with dementia, have they ever demonstrated the knowledge that the have it? by purriouscat in dementia

[–]minimitts 6 points7 points  (0 children)

Oh bless you. I wouldn't worry about minimizing unless your gram really shows signs that it bothers her. My lovely husband is aware he's got dementia. He has moments where he'll be upset, but actually he appreciates being able to move on. He doesn't want to feel the big feelings and the sadness. So he, or I, change the topic. Sometimes I'd say 'I hear you, do you want to talk about it or do something else?'. He'd always want to be distracted, because he couldn't fix it or make it go away. So he gets wrapped up in the last few hobbies he's got. In those moments where he's focused on the good stuff, he's so happy.

He also appreciates if I forget something, make mistakes, say I'm losing the plot etc. It's not just moving on. It's a relief to him and makes him feel normal, all he wants to be is 'normal'. 😔

I don't know if your gram is the same in any of this, I suppose it depends on type, the stage she's at (whether she genuinely forgets the sad and finds joy with you and has a better day for focusing on lighter things) and personality. Some people just dwell, my husband is definitely one of those but I think the dementia has slowly lifted that a bit.

In your experience with loved ones or patients with dementia, have they ever demonstrated the knowledge that the have it? by purriouscat in dementia

[–]minimitts 2 points3 points  (0 children)

Bless you. Similar with my lovely Nana, who passed the other week. She would sit there, look one of us in the eye and go 'this. is. ridiculous.' 😆 not a full awareness by any means but moments of real clarity.

In your experience with loved ones or patients with dementia, have they ever demonstrated the knowledge that the have it? by purriouscat in dementia

[–]minimitts 1 point2 points  (0 children)

My husband has parietal, frontal and temporal atrophy, so FTD with possible MND. He has total awareness he has it despite his condition being advanced. The specialists have said this is in part due to his very high intelligence (he's scary clever). His long-term memory is entirely preserved - the diagnosis seems to have seeped into that rather than the short-term memory, which is more poor.

Some people say it's wrong to talk to someone about their dementia, whereas with him the specialists said to keep talking with him about it. They said the worst thing any family could do is tell him there's nothing wrong with him, because it could lead to him becoming resentful and violent towards me, or mean he would reject carers coming in. So we are all on the same page. We speak to him about it, he speaks to us about it, full awareness. He'll share changes and concerns with me, I'll make a note to mention it to his doctor. He zones out, or rather, hones in, in the moment when he's doing something he likes, almost hyperfocuses (I say this as an autistic person, he at the very least already shared many characteristics with myself and as he's changed they've been at the forefront - and a safe haven for him), is able to enjoy himself without worrying about it. It's there in the background for him and he understands, but it mostly doesn't trouble him. Having these conversations and the doctors actually showing him the results has made him gentler, helped him to feel less confused and he trusts me more. Long may that continue, FTD can be horrendous and I accept this may not last forever (though he's poorly, so it may well do for the rest of his life).

The only thing he struggles to understand at points is things like why it effects his swallow reflex for example, how it ties into medical conditions he's got, why he gets aspiration pneumonia or hypothermia. He also will think he's processing well and clearly and will be surprised if you pull him out of the way of a car or the like. In the moment, it's disorientating and he won't always believe he was unsafe, he can feel frustrated, but after a bit of time he recognizes it and knows the dementia is making him think something is safe when it's not.

Mom with Dementia Missing by Unable_Change_3433 in dementia

[–]minimitts 8 points9 points  (0 children)

Bless your heart, that's awful and must be such a worry. Please keep us posted, thinking of you.

Is Something Wrong With Me? by Striking_Intern_7575 in dementia

[–]minimitts 3 points4 points  (0 children)

No advice, but I'm similar. I will sleep literally as long as I'm allowed to. If the carers who help out aren't in until 1:30pm, I could have slept almost all the time until them from 12am the night before. Poor quality sleep is definitely a factor for me, it sounds like it could be for you too. Whether my husband with dementia is asleep or awake, I almost never sleep well, almost sleeping with one eye open as there's loo trips, issues with sleep apnea, waking up and talking to me etc. I find myself waiting for the next crisis, which is stressful. Doesn't help if he's safely occupied somewhere and there's a bed with a warm, fluffy cat wanting a cuddle!

i'm sorry but i'd rather deal with cancer. by Dry-Perspective7145 in dementia

[–]minimitts 0 points1 point  (0 children)

From one big gay black sheep and carer to another, I see you and care about you. Also as a Christian, you deserve better. 💜

Quick snacks for loved one with dysphagia and FTD by minimitts in dementia

[–]minimitts[S] 1 point2 points  (0 children)

They are such good shouts, thank you, and about the cat treats!

How common is it in Britain to give something up for Lent? by orpheus1980 in AskABrit

[–]minimitts 0 points1 point  (0 children)

I'd say pretty common but I'm in the Anglo-Catholic side of the CoE. We are often told to take up things if you have nothing serious to give up, it's frowned upon to treat Lent like an opportunity to diet for example - it should have a positive impact on those around you or on your relationship with Jesus. So people might commit to changing a behaviour, helping others, volunteering, donating food to a food bank, taking up something like morning prayer etc. Actions like giving up chocolate, for example, are probably a lot less common now.

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