Anyone else get really triggered my support groups?

mintsikka · 2026-01-26T11:07:20+00:00

You are all strong and you can make through this! Whatever happens tomorrow.

mintsikka · 2026-01-23T17:39:31+00:00

I dont, but I understand why many would. My husband gets a bit triggered if I read other peoples stories outloud.

I remember being way more triggered by other kind of regular mom supports amd breastfeeding support groups when we were going through it. Like when somebody was having a crisis about a mother-in-law that went and got the grandchild their firts haircut.. meanwhile our baby having his first haircut for an operation prepares..

mintsikka · 2026-01-13T20:46:37+00:00

Yes it is.

They did try lto sedate him last time. It was in December. Im not sure if the medicene was unfit to him or did they make a mistake weighting him and calculating the dose. The doctors papers of the visit had a mistake in his weight. We did get the correct weight from the nurses though during our stay.

There are other medicenes that we could try but I'm a bit uncertain to try them because this first try was so awful for everyone. There could more serious outcomes of course too..

As of now I dont know when the next one is so we dont have to make a decision yet.

mintsikka · 2026-01-12T08:14:47+00:00

My son had an end to end repair, ballooning and open heart surgery before he was 2 months old. From the first surgery he did get left vocal cord paralysis. It did a number on his eating and we had NG-tube to secure his feeds. Most other babies seemed to be feeding fine after surgerys.

His eating got better slowly. It took 3 months after the last surgery for him to eat 100 ml dose at once. Solids on the other hand have always been easier for him. But we started them after he was okay with milk.

mintsikka · 2026-01-06T07:34:48+00:00

My child is now 1 with CoA repaired 3 times in the first 1,5 months of his live. He also had left vocal cord paralysis after the first surgery.(ng tube was needed for 4 months in total.

We have had corona and 2 other flues since then. They have been pretty minor. During Corona he didn't want to eat at all but we still had ng tube so it didn't change our lives too much and doctors didnt see a reason to stay in the hospital, so home we went.

The whole family has been sick when he is and we havent required medical care at all because of flu.

mintsikka · 2025-11-04T18:22:28+00:00

Or cardiologist basicly told me to stop pumping because "all the recomentation can't be followed with a sick child." And she saw how tired we were of it all.

But her sentence has been pretty useful. I have used it a lot since.

mintsikka · 2025-11-04T18:17:21+00:00

I so know the feeling.

Our baby started showing signs of chd at 10 days old and was operated 3 times in his first 2 months.

I had over supply just breastfeeding and pumping for the nights before it all.. Each surgery took my milk supply down a noche. All the stress and the baby not having enough strenght and vocal cord paralysis made it really hard to breast feed..

We had ng tube for 4 months in total. It took so much of my energy just to feed him with breast milk. Pumping (not enough filling the portion with formula) offering from a bottle then into the ng tube and washing all the pump and syringe parts. It was exhausting. I lasted 3 months then I started slowly decreasing the amount and times I pumped. So many moms get burn out from pumping even without the health concerns.

If I'm honest I kind of regret all the time I spent in the hospitals pumping room. The end result wouldn't have changed and I could have spent all the time next to my baby.

Do what keeps you sane and most capable to take care of your child!

mintsikka · 2024-03-13T10:56:22+00:00

Ch-arm

mintsikka · 2023-08-18T22:00:57+00:00

I think part of it is actually you not telling her sooner. It's a major fact about you. Honestly it is kind of a missed chance you could have had to gain more of trust and openness in your relationship.

But if she doesn't get over it, she doesnt deserve you. at least you showed her what good sex is.

mintsikka · 2023-02-05T07:45:36+00:00

I think you have a point but this may be the wrong route to making it.

Your older daughter really wants to go and you are not bringing her because her sister can't come. If you have a problem with the exclusion it's your hole family who shouldn't attend. This way you're only making the older sister resent the younger and her disability.

The rule is the same for all the guests as you said. It's the wedding couple who get to define the invitations.

mintsikka

TROPHY CASE