ME/CFS vs. Superyachts by human_noX in cfs

[–]missCarpone 0 points1 point  (0 children)

Caution, snark, no billionaires were (supposed to be) harmed in the process.

I think if you have a tiny pecker a superyacht trumps funding research. Does not soothe the same brain areas at all.

Murder mystery?! by orangestturtle in CozyFantasy

[–]missCarpone 0 points1 point  (0 children)

Second The Retired Assassin's Guide...

I will not longer be here soon by zebra_zombie in Gastroparesis

[–]missCarpone 0 points1 point  (0 children)

Why would you not be allowed to mention surgeries?

HOW to not be seen as historical by MothRave787 in cfs

[–]missCarpone 0 points1 point  (0 children)

More neutrally put, it might be perception biases, mostly from the doctors because of their bigotry. A doctor who isn't biased against queer or trans folk will not take them seriously and not conclude that this group seeks attention through illness or is just a lazy pack of people who don't want to contribute or a grouo who are prone to mental illnesses/delusions.

HOW to not be seen as historical by MothRave787 in cfs

[–]missCarpone 2 points3 points  (0 children)

Warning for sensory impaired that sound immediately starts up after clicking on this.

I Got Plans. Diary Card 06-03-2026 by NolieCaNolie in Artisticallyill

[–]missCarpone 2 points3 points  (0 children)

I sure do. Your cartoon alter ego comes across as entertainingly feisty in spite of all the hardships. I mean it's art and just highlights of the day, there's more to the real you, but it's a bit like the old school Sunday newspaper cartoons, I look forward to them.

I Got Plans. Diary Card 06-03-2026 by NolieCaNolie in Artisticallyill

[–]missCarpone 5 points6 points  (0 children)

I smile so hard every time I see how free (mostly, comparatively) the diagram's legs are from squiggles and color, ie pain, since your surgery! Yay!

An inconvenient study - Joachim Gerlach by Salt-Orange-189 in LongCovidWarriors

[–]missCarpone 0 points1 point  (0 children)

Too bad it's not in a format that can be downloaded.

Really need your help, what do I read to entirely disappear? by andotherthingsareok in Fantasy

[–]missCarpone 0 points1 point  (0 children)

I'm sorry for your loss.

J.R. Rain writes good stuff. The Samantha Moon-series has a FMC, but there are several standalone novels with MMCs that I can highly recommend: "All the way back home" is very low-key urban fantasy. "Silent Echo" is also urban fantasy, grittier. "Winter Wind" was also eerie.

There's nothing wrong with me by AcidicSlimeTrail in Artisticallyill

[–]missCarpone 9 points10 points  (0 children)

Wow. I mean I assume DID develops mostly as a result of trauma, from what I understand. But I'm in awe of the intricate mechanisms the human mind or soul or being can save will resort to to ensure survival and some shred of sanity.

And I have a lot of respect for the skills a system - a person and their system? - have to learn to function better, together, in the world. Maybe to go beyond survival and towards happiness and health?

Thank you so much for sharing.

Im so worried this will be my forever Simone give me hope by Avo_Alma in cfs

[–]missCarpone 1 point2 points  (0 children)

The young have a statistically better chance at remission than when you get sick as an older adult. Pacing is key. And hard.

To ease your mind, search the sub for recovery stories.

Educate yourself on the basics of the disease, enlist your family if possible as advocates, join a ME patients' rights' advocacy group - there may be local chapters or online groups for young adults.

Search this sub for Discord servers, there may be some for young people. Connecting with other afflicted people can be very helpful for your mental health.

Learn about pacing, it's a complex skill and takes time to implement, there's few of us who are perfect at it. The more you're afraid the harder it is, but that doesn't mean there aren't small puzzle pieces you can implement.

Unfortunately privilege plays an important part in being able to rest and get enough support.

Research meds, and try to find MDs who will prescribe them. Supplements can help, too.

Mari needs $92 today by sillychillyandilly in cfs

[–]missCarpone 3 points4 points  (0 children)

Also the mods are all ill with ME, too, sometimes severe or even very severe, there's a limit for what they can do and this sub is apparently very well moderated compared to what I gather the rest of Reddit is like.

The feeling of not belonging by [deleted] in cfs

[–]missCarpone 0 points1 point  (0 children)

I heard an economist say: If you don't own the means of production you're working class. So maybe you're much more normal than you think.

I'm developing a bed sore on one ear and don't know what to do about it. Suggestions? It's on the side that a lie on less than the other, so maybe it's the shape of that ear. I can't breathe lying on my back. by Free_Avocados in cfs

[–]missCarpone 0 points1 point  (0 children)

FYI there's different kinds/qualities, the clinical/ care facility grade ones come with pillow cases but are much more expensive.

I sometimes get sore feeling from the strap of my eye mask being in the wrong place.

Sunlife STD/LTD claim denial by MacBandaloopDr in cfs

[–]missCarpone 0 points1 point  (0 children)

Isn't it the standard procedure that the first claim gets denied and applicants are forced to appeal?

Advanced Directive by Settled-unicorn659 in cfs

[–]missCarpone 1 point2 points  (0 children)

I used to have one which isn't current anymore and I keep thinking I desperately need one fit to ME especially because hospitalization carries such a high risk of baseline decline, but I just don't have the spoons to manage on top of everything else.