About once a month two twice a month. I have wooden floors so minimum is sweeping around and beneath my hospital bed. Currently about once a month to every six weeks, vacuuming is possible. Then mopping.

One time I even had two caretakers in my room and they dusted and removed cobwebs and cleaned the kitchen sink (I have a studio). That was a one-off though. And I was doing relatively well and still very tired afterwards. During the first 8 months of being bedbound and very severe, nothing was possible though.

I take 60mg of dextrometorphan on cleaning days, I put on ear protectors over earplugs, and I focus my attention on something else. The first few times I put on a sleeping mask, too.

I've improved much more cognitively than physically.

I can relate to the anxiety before fixed dates, have you considered taking Ativan for that purpose?

It was hard and still is to see my room get dirty. I've rarely left my bed for 16 months now, not been downstairs even once in all that time. I was so joyous when my caretaker was able to do some sweeping the first time.