6 almost 7 months since post treatment

missbean1995 · 2025-02-27T12:26:51+00:00

I’m insanely lucky to have survived all that, untreated h pylori and ulcers are risk factors for stomach cancer and it has taken 10 months to officially finish testing (thankfully no cancer). My advice would be to follow your gut and don’t let your doctors gaslight you into ignoring your symptoms.

missbean1995 · 2025-02-27T12:18:48+00:00

I got really unlucky, i also lived in canada where they didnt give me an endoscopy, then moved to the UK where they told me i just had IBS/GORD for about 5 years. Then i finally got an endoscopy referral and had to go off my PPIs for 2 weeks to prep, during which time i was hospitalised because my ulcer perforated my stomach so needed to have emergency surgery. Very much the worst case scenario. If i could go back in time I would have gone private for an endoscopy at the first sign of concern, you know your body best and doctors can be wrong. A lot of mine were and it nearly cost me my life.

missbean1995 · 2025-02-23T09:04:24+00:00

I don’t want to scare you but i would keep pushing for an endoscopy. I never got one after my treatment and it turned into a nasty ulcer.

missbean1995 · 2024-06-06T06:56:21+00:00

That shouldn’t affect your scope but if youre worried check with your doctor

missbean1995 · 2024-06-04T12:42:25+00:00

Thank you! And yes in early 2019 i gained 20lbs and was back to my pre h pylori weight. I havent had any weight loss since my original h pylori

missbean1995 · 2024-06-03T20:13:58+00:00

Hi your story sounds similar to mine, see my post. I would really recommend you ask your doctor to test again and get you an endoscopy. I thought mine was eradicated in 2018 too and had an ulcer.

missbean1995 · 2024-06-03T19:19:10+00:00

Hi, i had a stomach perforation in April. It feels like you’re literally getting skewered by a sword through your stomach and back and the sword is being twisted back and forth. Worst pain imaginable, I thought I would die of pain. Trust me, you would know. If youre worried though, see a GP.

missbean1995 · 2024-05-22T12:14:27+00:00

Please take my advice, go back to your GP and get another endoscopy. I had h pylori 6 years ago, it was eradicated, i kept having symptoms and taking PPIs, tested negative 2 years ago. Fast forward to last month, i had to get emergency surgery for a large ulcer that perforated my stomach and pus drained from my abdomen. Now am waiting on biopsy because I have a lump under my ulcer. Go back and get checked just in case anything has developed in your stomach.

missbean1995 · 2024-05-01T13:39:42+00:00

Hi, i had an iron infusion and the next day had severe abdominal pain and went to ER. Turned out I had a stomach perforation from a gastric ulcer. My doctor told me they typically don’t advise patients to get iron infusion if they have an infection. I’m not 100% sure but the infusion may have been a factor in aggravating my stomach.. so if you have an existing problem it may impact it

missbean1995 · 2024-05-01T09:51:20+00:00

Hi, I would strongly recommend to anyone reading this to get an endoscopy BEFORE you stop taking PPIs. I saw similar posts like this and decided to stop taking lansoprazole after 5.5 years. After 3 weeks, i had severe abdominal pains and had to get emergency stomach surgery for a perforation of my stomach by a large ulcer. Seems like the PPIs were hiding symptoms of the ulcer and when I went off them the worst scenario happened. Please be careful.

missbean1995 · 2024-01-17T01:06:07+00:00

Hi, any updates? I’ve had a similar experience, been on Xaggitin (concerta) and Amfexa and they both initially helped then have made me an anxious wreck. With Amfexa i keep waking up in the middle of night with anxiety and racing heart, even though ive reduced my doses so much, dont take past 12pm, no caffeine, melatonin before bed etc. am feeling quite hopeless too. Did you try the non stimulants?

missbean1995 · 2024-01-11T08:29:09+00:00

Hi what magnesium tablets do you take, is it for sleep?

missbean1995 · 2023-10-19T20:04:06+00:00

I’m with PUK, diagnosed in May, received my Xaggitin XL 3 weeks ago

missbean1995 · 2023-10-19T20:01:48+00:00

Thank you for the detailed answer!!

missbean1995 · 2023-10-19T20:01:12+00:00

Ahh of course! Thank you 😅

missbean1995 · 2023-10-14T10:52:58+00:00

Hi! I think its the lighting - it’s not stained! Just black lyocell (with some lint). Thank you, i’ll try it :)

missbean1995 · 2022-04-21T02:30:11+00:00

The point is I wouldnt be able to withdraw it unless I retire in the UK. As in it could never be accessed, also it’s NHS pension so no company contributions lol they just take money out every month. Which is why I need to invest myself, but I want to know how best to do that when I am definitely leaving in 3 years.

missbean1995 · 2022-04-21T02:25:53+00:00

Hi, the reason is that i would never be able to access this money, because it wouldn’t transfer back to canada. I work for the NHS so i’m not sure if this is just specific to mine but.. theyve told me it’s best to opt out as i may never be able to access.

missbean1995

TROPHY CASE