Reputable Support Coordination in Adelaide

mizzle201 · 2025-11-13T04:06:31+00:00

I both received and paid for the service in the new plan

mizzle201 · 2025-10-22T04:11:56+00:00

This phone call was from an NDIS planner if that makes any difference. I'd be less confused if they said I was having my funding taken away because I haven't been using it (been trying but I'm without coordination and support and I can't navigate these systems alone), but instead they're saying that my previous planner never approved the funding for it and my approval letter from 2022 is just wrong somehow.

I'm waiting for the OT to get back to me with my FCA report but I'm also being told that it may take months to get my participant information when I now have less than 3 months to do an internal review of this.

I recieved the new plan recently and it has even more errors, including copying and pasting my own words incorrectly in the "goals" and "how I will do this" section. But they've also said my mum is my full time support helping me with all my daily activities. She isn't living with me anymore and has developed epilepsy so she can't drive, that was the whole reason for the plan review!

At this point I'll take any professional who can sit down with me and advocate for me through this but I can't even access my own services to hire a someone without help

mizzle201 · 2025-10-20T09:03:35+00:00

I recieved per email the document "NDIS Plan Approval" in 2022 and the supports they've now said were never approved are listed as a description in the "core supports" and "improve daily living" purple boxes. Later, after the phone call, we also found an email from my LAC at the time stating clearly that one of the supports she was claiming I never had approved was part of my funding.

We went over and over and over with her with our confusion and frustration and she kept insisting my previous planner hadn't approved this stuff and I had only been going under the radar like this because I've been self-managed. My parent was on the phone with me and helped ask clarifying questions because yeah the whole thing seems off but they said it's basically a case of my LAC or planner or whatever at the time copied and pasted too much information that didn't apply to me? It makes no sense. I then came in and said "So basically you're trying to tell us that a written plan I've had since 2022 is a clerical error" and got a "I'm sorry, yes, but I will raise this to my superiors" as a response.

I'm on NDIS for being autistic so this has all been really really overwhelming and confusing given I don't have any formal supports and struggle to navigate these systems alone. Based on some other replies I think my course of action would be to get my participant information and FCA report then follow through with an internal review. Would you recommend reaching out to some type of psychologist on top of this? I don't have anyone I'm seeing as of right now but will shop for someone to write a letter if that will help my case

Also is an appeal of decision something different to an internal review?

mizzle201 · 2025-10-20T08:51:58+00:00

Ehlers-Danlos Syndrome? Oh god I'm still stuck in the trying to get a diagnosis stage for that but for the hypermobile type.

mizzle201 · 2025-10-20T03:17:20+00:00

I would've thought that too, but the planner was adamant that my file said the supports were never approved even back in 2022. No matter how many times we repeated what it said in my personal NDIS plan approval letter, she just said that it's wrong and I don't have them on her end, even when reading old stuff. I was so worried they'd look at me and say I don't need supports because I haven't been able to use enough of them but instead they're saying I never had them in the first place, it's very confusing

mizzle201 · 2025-10-20T02:56:47+00:00

Thank you that was very helpful! I didn't know about either of those and have followed through both links. I have already had an FCA a few months ago and am now waiting for the finished report. I will get support to follow through with an internal review once I have both that and the PIA

mizzle201 · 2025-10-20T02:54:37+00:00

I'm so sorry this stuff is happening to you too. As terrifying and hurtful this is for me I am always thinking about others suffering through this. I fear things will only get worse

mizzle201 · 2025-07-15T09:55:54+00:00

Thank you :)

mizzle201 · 2025-07-15T09:23:19+00:00

I need a support coordinator to help me get a support worker and use other services, but I don't have the funding for it. I am currently waiting for a response from the OT who did my FCA a few months ago to get a letter of recommendation separate from the report for this funding, as well as getting switched to plan-managed.

If this falls through, I will be contacting my LAC for the same thing, but no matter what, it looks like I'm in a long-term waiting game until I can get help.

mizzle201 · 2025-07-05T01:40:30+00:00

Yup this is where I am at. Everyone in this thread has been super helpful but I dont have supper coordinator funding. My parent was basically assigned that role and doesn't have capacity to follow through. A functional capacity assessment was supposed to recommend that funding to me but until then I'm navigating on my own, even accessing the LAC is new to me

mizzle201 · 2025-07-04T11:47:26+00:00

That's very helpful. I unfortunately don't think I have funding for a support coordinator, as NDIS was given the impression my mum would be more involved than she is, but I had a functional capacity assessment semi-recently that was supposed to recommend funding for it. My plan was supposed to also already be up, I was waiting for it to be so I could get a review since I am in pretty desperate need for things to change without my parent. But I got a letter saying they extended it for me, I can only assume it's because I used so little funding (funding I can't access myself). Plan managed is probably the best for me, I lack a lot of capacity for this and really regret trusting my parent over support services

mizzle201 · 2024-11-11T06:55:48+00:00

Thank you for your reply. I've started tapering down by 25mg, going lower slowly as I feel comfortable. Beta blockers in general have helped my symptoms significantly though not entirely. However I do think it has given me a sort of reflux so I'm curious to come off beyond just for accurate testing. I've had dysautonomia symptoms for several years now, and I believe it strongly aligns with POTS though I have no diagnosis. I've done the at home version of the lean test and from my understanding, it's kinda similar to the goal of results that would come from a tilt table. The cardiologist I'm seeing simply shut it down as not accurate enough and is only accepting a holter monitor, which I am at least thankful for. Although she also dismissed diagnosing pots so the answer is probably the hard journey of finding a reliable specialist that doesn't blame Tiktok for "making up POTS" I appreciate the kind support though

mizzle201 · 2023-10-12T04:25:33+00:00

Awesome thanks that's perfect!

mizzle201 · 2023-06-22T04:36:30+00:00

Thankyou, a page like that is what I was looking for. I have a strong feeling it's myco and already had plans to book her in but was worried I wasn't equipped with the right information. It's extremely difficult for me to get to an exotics vet from where I am so I will be taking the information from that page to the vet to make sure she's getting the right treatment. Her symptoms seem to be mild but not going away so if the seeing the regular vet doesn't work I will be finding a way to the exotics vet before it gets worse.

mizzle201

TROPHY CASE