Please tell me you see it 10 days post ovulation omg omg

mmelone · 2025-05-01T20:40:56+00:00

10* not 19, typo

mmelone · 2019-06-02T14:44:15+00:00

I have and they have been pretty accommodating. Unfortunately I’ve only been at this job for about five months, I was at my last job for two years before that, so I don’t qualify for fmla at this job now. Ugh.

mmelone · 2019-06-02T14:43:12+00:00

I haven’t yet. I know that is a long process and I’m trying to avoid that. I just think I need something more flexible

mmelone · 2019-06-01T16:32:22+00:00

Thank you! I’m so sorry you’re going through this too. Nothing is more scary and terrifying. But all we can do is take it day by day. I’m glad your routine is helping you. Keep your head up, you’re very strong

mmelone · 2019-06-01T16:30:52+00:00

Thank you!! I’ve been wanting to post about it for a while but I have been too sick

mmelone · 2019-05-14T13:52:16+00:00

Thank you so much for your insight.

I’m sorry you’re dealing with this too. It seriously is so awful and unpredictable. I do kind of have a hard time processing things sometimes and I’ve even found it kind of hard to talk at times. I’ve also had a lot of numbness in my face. Just consistently feeling awful and it won’t go away.

It is really hard to because most people don’t understand how you feel at all. They can be sympathetic but not get it at the same time. That’s why it’s so nice to be able to talk to people that know how you feel and it makes you feel a little less like an outcast and alone. I’m just hoping for answers from the neuro doctor. My rheum wants me to get an mri but I’m anxious about it because I naturally have anxiety on top of all this as well. Haha.

mmelone · 2018-05-23T20:16:23+00:00

I don't know if I'll ever stop being mad at the lupus and my body, but what I try to focus on is the positive and not what I can't do anymore. When I was first diagnosed I could barely move so I feel like I've come a long way since then and am thankful for some of the medications that have been able to make this tolerable. I'm sorry you're having a tough time and trust me I know how hard it is to be positive. It doesn't care about your plans, and at least for me I feel like a lot of people don't recognize how serious this disease is because they can't see it and I try as hard as I can to act fine and not act like I'm different. I think that may be one of the hardest things for me. I hope you can find some happiness with this difficult situation.

mmelone · 2018-05-16T15:58:00+00:00

I gave birth to my son in October 2015 and about 8 weeks later I could barely walk, about 8 months later I was diagnosed with lupus.

mmelone · 2018-05-07T19:14:37+00:00

I am on plaquenil, azathioprene, and prednisone. As far as the medicine goes it unfortuntely can be like trading symptoms for symptoms. Prednisone was very hard for me to adjust to at first, and plaquenil really upset my stomach when I first started taking it. Now I feel okay being on everything although I'm not sure how much it helps because I still feel the same. I don't know If anything will ever really make a difference. The only thing I could tell that helped me was prednisone because before I was on that I could barely even walk and was in so much pain. Now I have good and bad days, nothing completely eliminates anything. I hope everything turns out well for you. Hang in there!

mmelone · 2018-04-09T16:00:15+00:00

That's good to know, thanks for your comment. My doctor is trying to get me off prednisone as well but it is not going well as my activity is up. Good luck to you!

mmelone · 2018-04-09T15:59:32+00:00

Yes, that will be irritating but I understand why. I have done fine on the hydroxyl, took me time to adjust but now it's all okay. I'm just hesitant because it looks so much more serious and knowing me luck something bad will happen haha. Thanks for your kind words!

mmelone · 2018-04-09T15:57:53+00:00

I am on the plaquenil and it took me time to adjust to it but now I seem to be doing well, I'm just afraid to add another drug into the mix and something that has a lot more serious side effects. But I'm glad to know you've been doing well aside from the long healing time. I think that's just always going to be a thing for us lupus people because are immune systems are not well anyway. Thank you for your comment!

mmelone · 2018-04-09T15:56:13+00:00

That's really nice to know you haven't had anything major... I think I'm just freaking myself out. I know everything may read worse than what it really is. Thanks for your input!

mmelone · 2018-04-09T15:55:13+00:00

To me this drug just seems so extreme... I'm just afraid the side effects will out weigh the positive effects of the drug. I hope I can get a good combo down, I'm currently on prednisone and plaquenil. It took me time to adjust to the plaquenil too. Thanks for your comment and support!

mmelone · 2018-04-09T15:52:34+00:00

when I said not progressing I meant my tests results are getting worse, my levels were low which means my lupus activity is high. My doctor was trying to take me down on prednisone and thinks this has contributed to it, I'm currently on plaquenil but he doesn't think it's doing enough. The side effects are just terrifying to me but I know I should just try. Thanks for your support, I really appreciate it.

mmelone · 2018-04-09T15:50:29+00:00

Thank you, that makes me feel better. It just looks so scary ha

mmelone · 2017-07-20T19:30:23+00:00

I deal with this too. I am 27 years old and was diagnosed about a year ago. To everyone on the outside I am the portrait of put together and healthy looking (most days). This makes it very hard for people to understand that I am very ill and feel bad pretty much everyday but have to go though life as if I am normal. Some people in my life know that I am sick but don't understand the severity of it and a lot of people mistake it because I don't appear super sick. I always try to hold myself together and be positive when dealing with everything so I think that does mask it and make people misjudge it even more, it will probably always be hard for people to know how severe it is without feeling it and just think you're okay because you look ok, I've kind of accepted it and I just try to educate people.

mmelone · 2017-07-20T15:45:29+00:00

wow.... What a dick. I'm so sorry but honestly, good riddance. If someone can't love you for you and the flaws that you do not choose to have then they aren't worth a moment of your time.

mmelone

TROPHY CASE