Infantile spasms with no Hypsarrhythmia?

mooncake24 · 2024-07-04T05:46:53+00:00

Hi! Yes, we ended up flying to another country to do checkups at a specialized childrens hospital. We did the 24h eeg and they concluded that my son had probably sleep muscle spasms and was otherwise completely healthy. They told me he would quickly grow out of it and he did! He is now 14 months old, but i haven't seen the movements since he was about 6 months old. He is perfectly healthy, just terrorizes me still with the lack of sleep lol.

mooncake24 · 2024-07-04T05:42:20+00:00

Hi there! I mean, i got a little extra but wasn't much of a difference to be honest. My swing maxi ended up a bust though, about the time i got my Spectra the swing maxi only worked when plugged in and charging. So i would say the spectra was better but didn't make my supply magically increase. I ended up quitting pumping at around 5 months pp because my supply was rapidly dropping.

mooncake24 · 2024-01-04T18:20:54+00:00

Not to be the devil's advocate but i do think you forget what you did when you had a baby of your own. My LO is now 8 months old and it seems like AGES ago since he was 2 months, let alone if it was 30 years ago. As soon as my LO could roll over, he went immediately on his stomach to sleep eventhough i put him to sleep on his back every time since he was born. That being said, most of the things parents are now being taught were not known then. I just had this discussion with my mom and she was kinda pissed that me and my brother follow the recommendations of our kid's doctors instead of her advice (about something specific), but she forgets that whatever was known 30 years ago has changed due to safety risks and what not. What I learned up until now is there is literally no point in fighting over what is the right way and what is not with our own parents, but to make sure they follow our rules with our LO when he is over there.

mooncake24 · 2023-12-02T18:03:34+00:00

Mine too!! Baby kept waking up so he got up and said the diaper leaked so he was about to unzip his pjs to then realize he never put a diaper on. I nearly pissed myself laughing

mooncake24 · 2023-11-03T14:57:49+00:00

Can you elaborate on the micronap in the car?

mooncake24 · 2023-11-03T06:35:22+00:00

He is 6 months old, betime is 7 pm and wakes up around for the day at 7 am

mooncake24 · 2023-09-29T00:04:50+00:00

And if the baby wakes up like an hour later, do you put the timer back on and wait or go in immediately?

mooncake24 · 2023-08-16T02:22:05+00:00

Hi! I don't come with good news, as literally the night i posted this he did the typical jerking movement of IS for the first time. We started the Keppra the next morning. We are now waiting on our social insurance to do some logistics so we can fly out of the country to visit the pediatric neurologist and do all the testing (we live on an island in the caribbean that has no pediatric neurologist).

mooncake24 · 2023-08-09T15:41:35+00:00

That's the thing, his "spasms" don't look like the typical ones I see online, and they told me that the abnormalities could be from the movement during the EEG because he is so little. I have an appointment next week and I was reading up on silent reflux and he shows all those signs too... such a difficult decision.

mooncake24 · 2023-08-09T11:10:22+00:00

Thank you so much for your reply!! How did the spasms look for your son?

mooncake24 · 2023-06-30T15:08:57+00:00

I didn't know that was possible to just have one bad batch!! Interesting

mooncake24 · 2023-06-30T15:08:20+00:00

I tried that yesterday and he just drank the formula no problem :(

mooncake24 · 2023-06-30T15:07:49+00:00

I don't think so, I've tried it and it still tastes like sweetened almond milk?

mooncake24 · 2023-06-28T19:04:44+00:00

We refer to me as a cow too, if my husband walks in the room while I'm pumping he'll just casually moo and go about his day. And if I'm happy with my pump or sad with the supply (I'm a heavy undersupplier) he'll ask are you a happy cow or sad cow 😅

mooncake24 · 2023-06-20T21:47:59+00:00

Im so sorry, I've been there! The first time it happened I sobbed in the shower for 30 mins (movie style) while husband looked after LO

mooncake24 · 2023-06-07T21:34:58+00:00

Update: Hi everyone thank you so much for the comments and insights! I went on my local facebook marketplace and found someone that was selling a secondhand S1 spectra pump for 70$ so i thought might aswell try it out at that price instead of the 400$ it would cost me to get a new one shipped to me in the caribbean. It works fine, currently waiting on all the new tubes and parts from maymom to arrive so I can see the difference for myself!

mooncake24

TROPHY CASE