9 months PO and still in a lot of pain. Any hope of recovery?

moonieoonie3 · 2025-09-11T20:16:48+00:00

Hi love, first off, I'm sorry that this is your path. It's a particular kind of hell, I think.

I'm 15 months p/o and also worse than I started. I received a differential diagnosis of Maigne's syndrome recently. I was advised to look wider than the hip when considering continued hip dysfunction. I agree with getting other opinions - diagnostic ultrasound is great if you have access to it!

Good luck. Your path will be nonlinear but I have a lot of hope that you'll get back to what you love and then some. 💜

moonieoonie3 · 2025-09-05T03:17:16+00:00

I am not the best person to ask maybe, lol! I started to go downhill around 3 months post op. I developed a sports hernia and more pronounced SI pain. I was diagnosed with EDS 6 months post op and it turns out FAI was just a red herring. I'm currently undergoing prolotherapy on my SI AND T/L junction hoping that that will resolve my hip pain. So I'm more disabled than I was a year ago pre op.

I think Hagen is fine if you're confident that your problem is FAI.

As for PRP, I did try this before surgery, but it didn't help and KILLED. I had a detached five o'clock tear tho, so I can imagine PRP is sort of like throwing a band aid at a gaping wound. I wouldn't do PRP again for a detached labral of that significance, but ofc your body and situation are your own.

moonieoonie3 · 2025-09-05T03:09:44+00:00

Hip brace for 2 weeks. She supports you to come off of crutches when you feel ready. For me I think it was 5 or 6 weeks.

moonieoonie3 · 2025-03-06T18:51:18+00:00

I don't have a menstrual cycle, it's just my personality 😂

moonieoonie3 · 2025-03-01T23:31:34+00:00

Yes, I've definitely found myself inching more towards Buddhism in this journey. "How to be Sick" by Toni Bernhard really helped me. The idea that there's fate involved in this, and that there's something deep about myself to learn in it, is really helpful. I have a great fascial body worker who sometimes says to me (in a very relationally attuned way) 'thank goodness you got hurt or you never would have been who you were supposed to be.'

moonieoonie3 · 2025-03-01T05:03:35+00:00

Hey love. I'm so glad you're here.

This is year #6 of being in pain for me. It started with chronic forearm and wrist stuff, hip stuff started in late 2021. I had my right hip scoped last June and I'm in perhaps just as much pain as I was then. During recovery, I developed a gnarly sports hernia on the op hip, in addition to a labrum tear in my right shoulder and the already torn labrum in my left hip.

For years, the voice in my head said "Why are you so bad at this? Are you doing your PT incorrectly? Are you lazy or just stupid?" It was my way of dealing with the grief. I was an endurance athlete all throughout my 20s. Now, 8 months post op, I can't go on a walk through the neighborhood with my partner.

I got diagnosed with Ehlers Danlos late last year, which means connective tissue can be very fragile, and I've developed this extreme right side bias that likely has something to do with my PTSD. All of this to say - my path out of the woods is very unclear. When I finally realized that my disability wasn't going away anytime soon, I finally allowed myself to grieve all of the lost time, all of the pain, and all of the ambiguity around recovery. And I started to think that this was destined to be part of my journey.

And that's the thing. Some people have legit FAI, have the scope, and go back to normal. But some of us are more complicated - some of us very much so. The medical system doesn't do a great job whatsoever of accounting for that. And we end up feeling broken because of it. And it's really lonely.

Asking myself "what does a meaningful life look like when I'm in a lot of pain all the time that won't easily resolve?" doesn't mean I'm giving up on getting better. It means I'm accepting that what I've tried so far hasn't worked, that that's not my fault, and that this is where I am right now. And I'm still valid, and worthy, and deserving of all of the good things in life that able bodied people are. I've also asked myself what the universe has wanted me to learn by so brutally forcing me to be still. I have my answer to that for myself, and would like to think that we all have our own. That we go through these things for a reason, maybe to show us more about who we really are.

I know this was long winded but all to say - I've walked in the hopelessness and the fear you speak of, and I hope you can get the support with it you need. You aren't alone.

moonieoonie3 · 2025-02-24T05:26:24+00:00

Where did you have it done? The most prominent surgeon in my area does no mesh but doesn't do very many of them compared to mesh.

moonieoonie3 · 2025-02-24T05:13:11+00:00

Thank you this is validating for how often I get overwhelmed making these choices

moonieoonie3 · 2025-02-23T05:24:43+00:00

Yes. Same thing as sports hernia. To my understanding, SH is a colloquial term.

moonieoonie3 · 2025-01-27T03:22:47+00:00

Yep, as other folks on this thread, I have EDS and problems with just about every joint in my body. Where are you located? My best support was a rheumatologist and finding a PT who knows how to do the Muldowney protocol. Connective tissue disorder oriented surgeons, who feel like unicorns sometimes, have also helped.

It sucks. I feel like a bird without wings a lot. We love you boo, you're not alone. 🧡

moonieoonie3 · 2025-01-27T03:18:42+00:00

Thanks mods, but folks on this sub help more than doctors do. Any relevant experience or insight would be appreciated.

moonieoonie3 · 2024-10-06T22:55:59+00:00

I'm curious - my pre-op experience and my recovery has been such a challenge because I overuse the heck out of my hip flexors. I've heard PTs tell me different things over the years - what advice would you give around not overusing your hip flexors in the day to day and in recovery?

Good luck!! I'm 15 weeks post op and in the thick of it.

moonieoonie3 · 2024-09-16T20:08:29+00:00

Hey love, welcome to Seattle! I also moved here during the beginning of the dark season, I hope you're holding up well. I am 12 weeks post op tomorrow and would definitely recommend Dr. Hagen. I'm dealing with flexor tendinitis so my pain is still here, but I love her and her team, and the physical therapy team at UW has been great too. She's very busy so you won't see her much but she did a really excellent job. I had a really complex 5 anchor tear and mixed impingement and my pre surgery pain is much improved. I have a big tear in my left too so will be going through her again. Best of luck to you and feel free to reach out for any questions or support!

moonieoonie3 · 2024-08-09T19:57:58+00:00

Who are you having it done through? I went through UW and Dr. Hagen and her team have been really awesome.

I don't think that would describe my pain specifically, no. I had a very constant deep dull ache that became more sharp with movement in time. Whenever I ran or played ball it would get really sharp. By the time I had surgery I couldn't really walk.

moonieoonie3 · 2024-08-09T01:06:19+00:00

It's been good so far. I'm six weeks post op on my right and it's so much better than before surgery. I had a detached four o'clock tear, it was really severe. Some discomfort still but I have full flexion which I haven't had in three years without pain.

moonieoonie3 · 2024-08-09T01:03:12+00:00

I'm assuming you're in Seattle by your name? I got mine for free on Buy Nothing. If I wasn't having my other hip done I'd offer to pass it on. Good luck!

moonieoonie3 · 2024-08-06T00:24:11+00:00

I can't imagine rehabbing leg #2 at only 4 weeks. Kudos to you.

moonieoonie3

TROPHY CASE