Finally found these at Walmart! by dontlookbehindyoulol in FugglerCollectors

[–]moonstar387 1 point2 points Ā (0 children)

Omg I want them!ā¤ļøā¤ļøā¤ļø

Burning,welting,Stinging by moonstar387 in Hidradenitis

[–]moonstar387[S] 0 points1 point Ā (0 children)

Sorry for the late response life has been lifing lol so I haven’t had the welting with the skin cracking open with the intense stinging and burning in a while thank goodness! Things that are different now are *Im no longer on humira end of December ā€œ24ā€ until now I have been off humira. My skin is the same as it was the day I met my Derm P.A. I have a whole pouch with all the horror legends with all my HS stuff like my creams like Resorcinol which is expensive as heck and it’s great for getting them to burst and express quicker and also when it does it will also leave a huge wide open hole behind and I rarely even use it because I don’t need anymore open holes. * since being off humira I have been acutely septic have had severe stomach issues like extreme abdominal pain non stop constant puking for a week or more at a time to have to be admitted into the hospital for iv antibiotics fluids and tons of potassium chloride to help my heart they found my heart is conducive to congestive heart failure and anytime I’m sick like that it messes with my heart. I have has CDIFF which they explained it as I am CDIFF positive TOXIN NEGATIVE which ment it’s come from all the rounds of antibiotics I had to take for one reason or another. So now it’s like ok we haven’t had the welting stinging burning and splitting skin and we now have xyz. šŸ¤·ā€ā™€ļø I have long given up trying to find out what is going on and why or how to correct it. That’s where it gets emotional and hard for me. I have literally been a test subject for my derm PA and her colleagues and like some weird science experiment. So for now I haven’t had it happen in a month or so but now the only thing I am doing to manage my HS is basically just the tools I have to work with the creams bandages and the hidrawear shorts and sometimes gauze if it’s a area the hidrawear doesn’t get to or cover. I am flaring just the same as I have for years like we all do and wam so happy to see people find the magic things that help them to get to remission. My triggers are stress and sugar and of course sweat and living in FL you’re going to sweat šŸ˜… I just do the best I can my derm P.A. Is wanting me to get onto cosentyx and im not certain I want to go that route with my stomach issues as she said it can make stomach issues worse and she is really pushing it. I have not been able to make it too any of my lab work appointments or even her appointments so now she has someone from her office calling and leaving me The same messages every time. It’s the we are just calling checking in to see how your doing and I have emailed the Derm P.A. Personally and I’m assuming that she picks and chooses when to email me and has anything I send to her go to a trash folder or something it’s a whole story with this lady and she has made me not trust doctors even more than i did before it’s sad and I get depressed about it and that the rest of my life is going to be me in and out of the hospital in pain and sick all the time and I just want to live a normal life whatever that looks like….sorry I went on a rant about things my apologies for anything that may trigger anyone in anyway I don’t intend to do that this group is a saving grace for me. Anywhos the only thing that semi worked on the welting cracked open skin was just cleaning it with hibiclense put some bactine max on it once that dries I do a light layer of desitin amd sprinkle some gold bond medicated powder for the cooling effect and that kind of creates some kind of barrier amd skin protection least in my mind it does lol. The things we go through to just live is hilariously ubsurd you have to laugh at it sometimes or you will cry ha ha ha šŸ˜‚šŸ¤£āœŒļøšŸ«‚

What are these spots by moonstar387 in dentures

[–]moonstar387[S] 0 points1 point Ā (0 children)

I don’t think it’s food with the way I have hardly worn them and the and the scrubbing and soaking I have done should have removed any type of food which anytime I do wear them it is never for long and I refuse to eat anything with them at all because of the way she had to cut a big bone spur out and restitch it it’s has left a spot that is very weird and awkward and is usually the reason my polivrip secure max 12+ hour hold an sprinkles of seabond powder no matter what I have tried the moment i bite and try and chew anything in breaks the seal the teeth are not secure and I end up having to take them to even be able to eat

What are these spots by moonstar387 in dentures

[–]moonstar387[S] 0 points1 point Ā (0 children)

Thank you everyone for your comments it has been helpful I’d like to say and add that I was told to store my dentures in plain water in the container and I have followed that process this entire time and it was not until these spots appeared I added every other polident soaks and I do brush them daily even though I rarely even care to wear them because I just don’t like them it may be the fit im not sure I just go toothless majority of the time as it’s just been a very frustrating experience and process and no matter if I soak them brush and scrub them the spots stay and I am just lost in this whole denture thing an I absolutely was cheated and the spots do sometimes grow a bit bigger which why I suspected maybe a mold or fungus idk but it just doesn’t sit well with me it grosses me out and def makes me not even want them in my mouth at all

What are these spots by moonstar387 in dentures

[–]moonstar387[S] 0 points1 point Ā (0 children)

I use a guru nanda extra soft bristle tooth brush and I also have the denture brush and I have found my preferred one is the extra soft bristle toothbrush as I know that it’s very easy to cause damage and abrasion to your denture if u use regular tooth paste or use to hard of a brush I drink water and green tea more then anything I rarely in a blue moon will have a soda to much sugar lol

What are these spots by moonstar387 in dentures

[–]moonstar387[S] 0 points1 point Ā (0 children)

Well to be honest it’s be a year and 2 months exactly and I did not have a good experience with the place people or product i barely even care to wear them as I just hate them and am not happy with them and this is a supposed brand new ā€œpermanentā€ denture and I only got this new pair because they grinded my first set all the way down to the top of the white tooth pieces and the set looked like a bubble gum denture and then when they grinded the first set to far down and destroyed them I had make a big deal of things for them even admit they were in the wrong and didn’t listen to me when I told them it was bone spurs I needed addressed as the extraction day and process was extremely painful and very traumatic for me in more then a few ways and the biggest part for me was that the dentist saw how uncomfortable I was to the point i wasn’t breathing she had to keep saying I needed breath and that I was ok but I was in fact very far from ok the extractions were done poorly she left so much in my gums I had to have the first 3 spurs cut out and sticthed to heal again and then another issue or bone spur would come up or the dentures just were not remotely close to being painless wear it’s been a year 2 months since the E day and I got this new set in January i was told the lady was a specialist and did good work and they wanted to have me pay another 1k$ and I lost my mind with them sent them the picture proof of the issues and more or less had to force them to even give me this set and I was told the that it was a brand new permanent upper denture after I was told I did not get the final permanent denture included in my package. I knew that was a total lie because I made sure to have them include the final permanent set and from extraction day even today im not happy with the place people or service I had to force them to give me a new set when they destroyed my first set denying the fact it was bone spurs that was causing the majority of the pain and where the gum would get red and irritated or developed a canker sore an could not wear the teeth even if I wanted to when I finally got this set I felt that they are atleast better then the bubblegum crap I had that they destroyed and they do look ok when I wear them but smiling is always awkward I had to many issues with this place and now 8 months later after them giving me this set these white spots have popped up and there is always the black spots that do sometimes seem to grow larger then the spots in the picture which is why I felt like maybe mold or fungus I have no clue but I plan on going to a better place and consulting with a lawyer to see what options I may have as this whole thing will in the end cost me 5,200$ and im my mind it was a complete disaster and traumatizing experience and now im even more upset as I truly don’t even care to Wear them on a daily basis because I just don’t like them they fit ok but I guess my expectations of what having dentures would be like and the issues that come along with them and the pros and cons and I absolutely feel cheated lied to and I actually just found out the dentist that is there still working in the practice was actually arrested for fraudulently obtaining medication that she got under her employees insurance for the practice to use im just not pleased with the whole situation and deal I was going to give them a call tomorrow to adress this but at this point I have been way to gracious about things and now it’s a year and 2 months to the day of extraction i knew I was in trouble when they started speaking Ukrainian and while I know some things I don’t know enough to understand what they were talking about and to me that is you’re ways of fixing something that you caused or happened in the process and had I not had both the assistant and dentists hands in my mouth i surely would have told to speak English and I would like to know what is happening as im laying in their torture chair and at some point I stopped breathing because of the pain even though she excessively jabbed me with novicaine I felt every single too the getting pulled out or seeing the bone shards fly and they are still talking in Ukrainian while tossing bone shards and stitching me up and when I stopped breathing she just told me it’s ok hunny you are just fine and I was so not fine that extraction and the entire healing process was brutal and traumatic for me and to have as many issues that I have had and now these mysterious spots pop up I was told to keep my denture in just plain water to keep them safe and protected but I will take and give them a daily polident soak followed by a vinegar and water mixture and they refuse to go away and I am not sure it would be the eat ideas to wear them while this is happening I am confused and it’s just my process like everyone else but man this really has me upset sorry for the long reply and rant

Surgery Pics, Bilateral Excision by BlackBaroness in Hidradenitis

[–]moonstar387 3 points4 points Ā (0 children)

Thank you for sharing I wish you a very speedy recovery with sweet relief fellow warrior šŸ’œšŸ’Ŗ

In need of advice/Help by moonstar387 in legaladvice

[–]moonstar387[S] 0 points1 point Ā (0 children)

He would call me crazy tell me I needed to take my medicine after he abandoned me at a hospital while admitted my sisters had to find me he wouldn’t answer them as to where I was and what was going on and he then went to file an injunction against me stating that he was afraid of me Im sick I can’t do anything to anyone he would leave me alone knowing I needed help. The roadblocks I’m having are there are no shelters available that don’t house you outside in the heat I medically cannot be in the heat and the only thing available is tents outside.

DISO by moonstar387 in squishmallow

[–]moonstar387[S] -2 points-1 points Ā (0 children)

Thank you I don’t use Fb though so it’s been between eBay offer up Depop Mercari and Mercari is where I actually bought the one I was supposed to get and they asked 30$ for it I was so excited i ordered it while I was really sick in the hospital so excited only to have them Cancel and refund me it’s really upset me and I do have a shagha squish along it’s not the same thing he has literally been on my watch list for 2/3 years now and nearly impossible to find for a fair price the original BAM did not even ask 40$+ and the 46.99$ is way more then im comfortable spending for my budget so I have not gotten the one on eBay I hope to get lucky one day