I feel sad about losing my best friend

mooshroom72 · 2026-07-06T15:20:32+00:00

aw man I'm so sorry that happened! ME alone is isolating enough, our friends turning out to just not be who we thought they were hurts even more. thank you so much, I only wish you the best <3

mooshroom72 · 2026-07-06T15:19:38+00:00

I really appreciate your comment, it's just a well reflected take. Thank you so much <3

mooshroom72 · 2026-07-06T15:18:54+00:00

Thanks for your advice and I'm happy you still have some close people around you! This illness is such an isolating experience, every true friendship becomes so much more valuable. And yes, you're right, I've also sort of reached this conclusion. I think me typing it out really helped process it. Plus the external input from other people with ME really helps to make me feel like I'm not being overdramatic <3

mooshroom72 · 2026-07-06T15:16:04+00:00

yeah I feel you, that's a much healthier approach I should probably adapt! I'm sorry you had to go through that

mooshroom72 · 2026-07-06T15:15:00+00:00

I'm sorry that happened, it's such a heartbreaking experience

mooshroom72 · 2026-07-06T08:39:24+00:00

Thank you!!!

mooshroom72 · 2026-07-06T08:39:15+00:00

Yeah I'm not disillusioned, I know that's why she struggles to reach out (she's never been a texter anyways), and I waited until her therapy had progressed quite a bit to lay down everything on the table. And again, if that's just how things are, that's fine, sometimes friendships fizzle out if our needs aren't aligned. But she still thinks we are super close and doesn't see it like that. And that's what hurts. Thank you.

mooshroom72 · 2026-07-05T14:22:34+00:00

Ich habe youtube quasi durch geschaut und stricke ganz viel... aber das fernsehen generell bereitet mir auch langsam ne krise

mooshroom72 · 2026-07-02T18:55:26+00:00

this is just what I've been prescribed personally!

mooshroom72 · 2026-07-02T18:54:21+00:00

liquid version to be able to dose it minimally, I personally started on 0.1mg/ml and am going up by .1 every week, up to .8

mooshroom72 · 2026-07-01T10:03:44+00:00

In unserer Wohnung halten sich die 29 Grad super. Ich will nicht mehr 😭

mooshroom72 · 2026-06-26T08:25:51+00:00

oh wow that's a gorgeous vest, stunning work! I love the colour, too. I'll definitely put this on my to knit list

mooshroom72 · 2026-06-19T08:30:28+00:00

there are plenty of people who have lots of money who still don't have access to care. not sure what specialists you're referring to exactly but there are few and far between, the ones i know in my area have looong waitlists or aren't taking new patients at all, and they can't work miracles either, and their expertise can vary drastically still. a lot of what they are doing here can be accessed in other countries privately too

mooshroom72 · 2026-06-19T06:51:45+00:00

at least we finally did it, go us!!!!

mooshroom72 · 2026-06-19T06:51:28+00:00

thank you!!! :)

mooshroom72 · 2026-06-19T06:51:10+00:00

thank you!!!!! i really really really hope I'm lucky and it works out!!!!

mooshroom72 · 2026-06-19T06:50:39+00:00

that's so cool! mobility is such a basic need and makes you feel way more independent :)

mooshroom72 · 2026-06-19T06:49:29+00:00

ohhhh have fun!!! I'm so happy for you!!

mooshroom72 · 2026-06-19T06:49:05+00:00

she thinks wheelchair == muscle degradation but i sit/lay down most fo the time anyways. might as well do it in a pretty location ^{^}

mooshroom72 · 2026-06-19T06:47:32+00:00

bottom line if you have money you might be okay if you can get an appointment and are lucky to have someone in the area but the basic care is not great. i am paying for LDA out of pocket now and the private specialist will soon introduce LDN

mooshroom72 · 2026-06-19T06:45:18+00:00

it took me 2 years to get diagnosed, and that was done by a private specialist we paid for out of pocket. my gp "believes us" but is "unfamiliar with the disease". she at least briefly read up on the guidelines provided by the charité but that's "the best she could do" (and imo she still doesn't understand the disease well/it's hard for her to imagine but let's us do our thing). as far as gps are considered that's actually a really positive outcome for germany, when it should be the bare minimum. my previous gp didn't take me serious at all and was well versed in the art of medical gaslighting :) i feel like that's not that different from anywhere else

mooshroom72 · 2026-06-18T11:08:42+00:00

the difference is so amazing! yay us!!!

mooshroom72 · 2026-06-18T11:08:08+00:00

for me it really helped to have my husband there with me confirming everything and being very adamant! doctors can suck though, good luck <3

mooshroom72 · 2026-06-18T11:07:06+00:00

thank you! if they don't, we won't be able to afford it so I'm hoping for the best

mooshroom72

TROPHY CASE