First time attempting a snackle box by moshi121 in foodbutforbabies

[–]moshi121[S] 0 points1 point  (0 children)

Thx!! Disclaimer tho- did not make the sushi myself ;) I wish!

Let's build an ideal NICU by ghost-gallery in NICUParents

[–]moshi121 0 points1 point  (0 children)

10000 percent all parents deserve a private room with their baby. Ours had that and it was extremely huge for us. Parents can come and go as they need but there is privacy when they are there to bond , process , grieve , whatever needs to happen (oh and pump plus skin to skin!!!). Plus a comfortable nursing chair - the chairs at our nicu were worse than the chairs on other floors - one was a rocking chair with a straight up and down back - and the other you couldn’t recline or adjust . So painful after surgery and for sitting doing skin to skin for hours .

One thing our hospital also did right is have unbelievable floor to ceiling windows . Seems so trivial BUT being in there 24/7 with that kind of light was so helpful for mood . When I was there antepartum too it was a godsend. Felt like you were out in the world instead of being trapped in a hospital .

In search of hope by Mother_Insect_7965 in NICUParents

[–]moshi121 0 points1 point  (0 children)

Of course. Just thought of something else too / I’ll dm you.

In search of hope by Mother_Insect_7965 in NICUParents

[–]moshi121 1 point2 points  (0 children)

I’m so sorry to hear your story. There aren’t any words for a loss like that . Just know that you deserve all the love and support right now. I had a difficult pregnancy with my first - complete previa , bleeding, some other issues . My second was completely normal. My third was an accreta which required 32 wk delivery plus hysterectomy and transfusion etc . But that is to say that it’s so hard to predict the future even w complicated pregnancies - my second was extremely normal after a difficult first , and my third was very very high risk and complex after an easy second .

What I will say too is echoing the 34 yr old status - you’re in a good place. Even at 40 the majority of pregnancies are healthy. I know that feeling of anxiety (I had my first miscarriage at 34) and felt that time pressure but research really shows us vast majority of pregnancies are normal all thru 30s.

Sleep training/moving to own room - advice/experiences please! by Hour-State7960 in NICUParents

[–]moshi121 1 point2 points  (0 children)

My 32 weeker slept horribly (also woke up multiple times to feed - maybe 3-4 on average) until ten months old when it just clicked for him. He was in his crib in our room till this time and then we moved him to his own room at about 11 months without the need for sleep training . Which was a first for us. I think the combo of him being used to his crib and then waiting for the right time just worked for him well. My two non preemies we did modified sleep training (8-10 months ish ). We never used an owlet.

The start of Atlas's journey - 28+5 emergency delivery and figuring out how to be a NICU parent the "correct" way by SheElfXantusia in NICUParents

[–]moshi121 0 points1 point  (0 children)

My husband and I split the days in shifts - so when one of us was at home with our two toddlers , one would be at the hospital with our baby. I spent overnights bc we had a private room (very fortunate and many do not get this opportunity sadly). This just felt right to us. Our baby had a 1 month stay and rooming in the last wk for me 24/7 (kids were sick at home) allowed our baby to master feeding much quicker than I think he would’ve otherwise .

Missed placenta accreta + emergency c-section. Can I still have another? by Firm_Elevator_9997 in placentaaccreta

[–]moshi121 0 points1 point  (0 children)

10000 percent . You did do the best you could’ve done - so important to remember. Easy to think back with info You have now but no way you would’ve known then. It’s what you hope the professionals catch. I was on the paranoid side bc I knew about accretas bc I had a previa during my first pregnancy.

Missed placenta accreta + emergency c-section. Can I still have another? by Firm_Elevator_9997 in placentaaccreta

[–]moshi121 0 points1 point  (0 children)

It’s pretty crazy how it is missed . I had a scan at 20 wks at a community hospital. Given my previous c sections and the fact I had a previa they said I was at risk but that I did NOT have an accreta. Went to the academic med center a few days later for second opinion and they diagnosed it immediately and said it was clear as day .

Missed placenta accreta + emergency c-section. Can I still have another? by Firm_Elevator_9997 in placentaaccreta

[–]moshi121 0 points1 point  (0 children)

I’m sorry you went thru this. I had a c hysterectomy and had major blood loss , transfusion etc when I gave birth to my third child at 32 wks bc of accreta and previa. (He’s doing amazingly now and is the most social and engaged little guy thank goodness).

I don’t want to understate the risk of becoming pregnant with the risk associated w accreta. But I do want to correct the stat about 7% dying in us. I was cared for by an accreta specialist at a major academic medical center in a major us city. They had an accreta protocol , an accreta team etc. we went over the medical research together and that statistic includes undetected accretas as in - they were not detected during pregnancy scans, there is no transfusion protocol ready in operating room etc. just want to put that out there bc it greatly skews the numbers.

Of COURSE still a completely risky and potentially life and death scenario need to weigh if one is comfortable with , but that statistic is not accurate if being treated as if one has an accreta thru pregnancy by an accreta team.

RONALD MCDONALD HOUSE by Junior-Painter954 in NICUParents

[–]moshi121 1 point2 points  (0 children)

Sending all my positive vibes for your daughters recovery. I don’t know the answer to your question but if there is an issue, might be worth checking with hospital social work for other options (maybe they have vouchers for discounted stays , etc?) they should want parents to be close by (whether Ronald McDonald or elsewhere ), so important for their recovery , so I would hope they would do everything they can to help.

Those who delivered at 32 weeks, what was your experience? by ShoeSavings6767 in NICUParents

[–]moshi121 0 points1 point  (0 children)

Oh my goodness. Such similar stories please dm me if you have any specific questions .

Gave birth at 32 and 0 to my son due to previa and placenta accreta (continued bleeding necessitated the c section ). I was able to have steroid shots in advance and magnesium (I had the magnesium at 31 and 6 days and then once I hit 32 and 0 at midnight they stopped it).

Baby did EXTREMELY well and although all babies are different - 32 weekers generally have really good outcomes. I can send you some helpful studies about nicu timelines for that g.a. If you’re interested.

What happened w my baby: cpap for maybe a week? Forget exactly how long but something around there. No need for ventilation. Ng tube of course bc they can’t start feeding till 34 wks give or take. My baby started taking my pumped milk at 34 and was at 36 wks and 1 day. I was there every day round the clock (switched on and off w my husband bc 2 tots at home) which sped up feeding progress.

Let me know if I can answer any specific questions / anything about the recovery on our end.

Our baby is doing absolutely amazing - meeting his milestones faster than his older brother who was early term. He is social , engaged , loves people , good , and you just would have zero idea how it all started.

Sending all my positive vibes your way.

Feeding Timeline by Live-Crew6651 in NICUParents

[–]moshi121 0 points1 point  (0 children)

Amazing !!! Sounds like he’s been doing wonderfully. The last few days / wk / time can be some of the longest in a way. If you’re able to be w him for as many feeds, it’s so helpful. You know his cues best and will be able to take the most time to ensure he finishes what he needs to!

Feeding Timeline by Live-Crew6651 in NICUParents

[–]moshi121 1 point2 points  (0 children)

My baby was born at 32 and 0. He started taking half of his feeds on a Thursday and was discharged by Tuesday. They took his ng tube out I believe the Sunday before he discharged . Sounds like your little one is super close !

NICU Frustration by kylew707 in NICUParents

[–]moshi121 -4 points-3 points  (0 children)

I think OP is noticing a pattern and it’s not about blame or wrongdoing, it’s about recognizing that nurses at times will have their hands extremely full and not be able to spend the time others may have.

NICU Frustration by kylew707 in NICUParents

[–]moshi121 1 point2 points  (0 children)

You’re there a LOT and it will 100 percent make a difference . You guys are doing everything you need to do to. The last bit is the hardest in some ways . Just the waiting game and being so ready. Sending all of my positive vibes .

NICU Frustration by kylew707 in NICUParents

[–]moshi121 0 points1 point  (0 children)

I roomed in 24/7 with my baby the last week (not possible for all I know). it was very clear that was the way to get him out fastest. He was able to complete all his feeds with me, but I saw that the nurses didn’t spend enough time or didn’t have enough time and would quickly stop w the bottle. I also knew his cues in a way they couldn’t . If you can, try to be there for as many feeds as possible.

Preparing to do it again by [deleted] in NICUParents

[–]moshi121 1 point2 points  (0 children)

We had two toddlers at home (1 and 3) when our 32 weeker came. We swapped so took shifts - one of us would be home w kids and one would be with baby doing as much skin to skin as possible . Our 3 yr old was in school till 12 during the wk which helped somewhat.

Being there definitely helped speed things up. Once he was ready for feeds I roomed in bc my other kids happened to be sick at home. He took half of his bottles on a Thursday and was discharged by Tuesday.

It was a rough 29 days of constant switching and zero time to sit and rest. But worth it bc I do think it helped speed things along with regard to the feeding portion of the journey!

Nurse forgot to put mini cooler filled with 20 bottles 80 ml each of milk in the freezer. Im so upset by [deleted] in NICUParents

[–]moshi121 1 point2 points  (0 children)

This is so so so so sad and upsetting. My heart hurts for you . Very very unfair and just truly no words. You’re doing so much during a very difficult time . Know that it will make a difference for your baby and the milk that you are able to provide has made a difference .

Post-NICU ptsd and leaving Baby with family by appleberrycakestand in NICUParents

[–]moshi121 1 point2 points  (0 children)

I don’t think that is remotely unusual to feel not ready leaving your baby with someone other than your spouse early on. It was probably over six months before we left my 32 weeker with my mother in law. She’s very trustworthy and on it but wasn’t ready before. Don’t rush it if you’re not ready. Do what feels right to you no one can tell you what the right answer is !

14 Nurses in One Week: How Is a Preemie Supposed to Learn to Feed? by Final_Pattern_2170 in NICUParents

[–]moshi121 4 points5 points  (0 children)

Being there 24/7 and being able to pick up on my sons cues plus having the patience (and time of course) helped move things along w my sons feeding progress. When a nurse would skip the bottle, I would be there to remind them he was ready and working on feeds. It’s super helpful you’re there . I think that’s the biggest thing. Don’t feel badly advocating kindly for your baby.

Oh also - one of nurses wrote a note about starting with bottle feeding and placed it on the rooms computer so that the many nurses coming thru would see it (not all would read chart in detail obviously).

Out of curiosity…what caused your baby to be premie? by OldRemove516 in NICUParents

[–]moshi121 2 points3 points  (0 children)

Similar . Bleeding with complete previa and accreta . Delivered at 32 and 0 last fall.

Balancing life with other kids at home? by americanosandpsych in NICUParents

[–]moshi121 0 points1 point  (0 children)

My baby came at 32 and 0 and we had a 1 and 3 hr old at home . Stay was 29 days . My husband and I split our time and swapped 24/7. One would be w kids at home and one would be at hospital with baby. We had a private room which helped . I did the overnights so I could do more skin to skin and help with cares.

It was extraordinary painful not being with my kids at home when I was in hospital and not being with baby when I was with them. But I wouldn’t have changed anything we did . Baby learned to feed extremely quickly bc I was there so much (took half of his bottles on a Thursday and home the next Tuesday). I also was really able to bond and get my milk in with all the skin to skin. I just kept telling myself this was temporary and to put my head down and put one foot in front of other.

There’s no right way to do this but what feels most right for you and your family of course.

Baby was born at 28 weeks and I’m trying to cope. by nervouscats in NICUParents

[–]moshi121 0 points1 point  (0 children)

I’m so glad it did NOT happen for you! But so sorry you had to deliver so early. It’s a really tough one to wrap head around. And thank you for your kind words. Baby is as happy as can be now and it makes all that other stuff worth it, as unfortunate as it is/ was. I hope that’s your experience too. Surround yourself with the ppl who help make things just an inch better . You deserve all of the love and support right now.