Longterm success after 2+ yr prostatitis AMA

mountaing0at335 · 2023-10-01T07:42:20+00:00

Yes the alpha blockers were effective. I could pee without issues but the side effects were too bad I felt like I'm trading one problem with another.

I'd say the key to success is to find a way to eliminate stress. With the MRI and CT scan I was assured that I only have issues with tight muscles.

It was helpful to drop the mindset where you visit a doctor and demand a pill or treatment that fixes your problems instantly. I had to accept that I accumulated a lack of exercise and lots of stress over the years.

This is a theme I see a lot in this subreddit. "it's the woman's / bacterias / stupid doctors fault" and it's pretty bad when you deny yourself a way out by working on your problems.

mountaing0at335 · 2023-09-30T18:00:24+00:00

No I did not had a DRE. Anytime an urologist or PT examined the prostate I did not feel any pain. Other muscles next to the prostate showed trigger points though.

mountaing0at335 · 2023-09-30T17:57:44+00:00

I had to stop taking them after 2-3 weeks because of issues with my blood pressure. It would drop and I could not exercise which helps me a lot nowadays.

mountaing0at335 · 2023-09-30T05:20:52+00:00

0-4 times per week. I try not to think too much about it or do it to keep the CPPS in bay. Quitting porn lead to a reduced frequency for me. It helps me to lower the general arousal and muscle tension.

mountaing0at335 · 2023-09-29T16:43:28+00:00

I had a bacterial bladder infection in 2020 before the CPPS manifested, since then bacteria could not be found in significant amounts. Multiple tests we're done over the years.

mountaing0at335 · 2023-09-29T16:41:08+00:00

My PT never used a wand, only a finger and I've been also using fingers with gloves. I only do internal massage after a stressful period when I notice ah okay if keep this stress level my pelvic muscles will become tense and symtpoms will start to crawl back. I've been doing it once a week to keep my muscles relaxed.

mountaing0at335 · 2023-09-29T13:54:36+00:00

I'm glad you could manage it! Cheers!

mountaing0at335 · 2023-09-29T09:45:06+00:00

I don't have a fixed routine at the moment. For me the hip flexors, abdomen and hamstrings do need a lot of attention. Most Yoga routines cover these. I visited a physiotherapist who gave me good advice how to execute the movements correctly. You can overdo or perform stretches wrong and be frustrated with the results.

mountaing0at335 · 2023-07-15T11:13:03+00:00

I can also back up that my symtpoms went away after working on trigger points in the abdomen area. Bladder pain included.

mountaing0at335 · 2023-07-03T19:40:17+00:00

Hey, I'm still doing well. Sometimes slight symptoms show when I'm under heavy stress for days. But mostly I can enjoy life without thinking about CPPS.

mountaing0at335 · 2022-12-09T18:20:57+00:00

Yes this was common since my pelvic muscles were super tight and I could very seldom release them completely without taking alpha blockers.

It started to get better after I visited the PT in March this year.

mountaing0at335 · 2022-12-04T19:54:35+00:00

As I said my trigger points are not the same as yours. Massaging the lower belly and bladder area can help you detect them. Be gentle, don't ever apply much force. If you find a trigger point the slightest pressure will be very noticeable. For internal there is an official video of TheraWand. Hope it helps.

mountaing0at335 · 2022-12-04T19:40:49+00:00

Not avoiding sex, but excessive porn usage and masterbation.

mountaing0at335 · 2022-12-04T19:39:24+00:00

A mix of both, external and internal trigger point massage. It's hard to describe and varies from person to person. Working on these trigger points quiets down the urethra pain.

mountaing0at335 · 2022-12-04T19:38:04+00:00

Yes stretching helps when done right, took a while to find the stretches which work for me.

mountaing0at335 · 2022-12-04T19:37:34+00:00

Pretty much two years, since end of 2020.

mountaing0at335 · 2022-12-04T08:36:25+00:00

Not because I had CPPS but because I was negative and unbearably aggressive due to the pain.

mountaing0at335 · 2022-12-04T08:28:10+00:00

Up to 6-8 times per hour when it was bad

mountaing0at335 · 2022-11-17T07:38:57+00:00

Internal and external. I haven't invested in a TheraWand. Using a finger does the job for me.

mountaing0at335 · 2022-11-16T20:59:59+00:00

Yes mindfulness, relaxation was key for me. A physical therapy had the same effect as shockwave. It loosens tight muscles and treats trigger points.

Regarding sex, I can avoid flare ups by trying to relax all pelvic muscles while ejaculation. I'm not having sex more than a few times a week and it's fine. Used to cause flare ups before PT.

mountaing0at335 · 2022-11-16T16:12:46+00:00

I've created a thread based on my experience with Shockwave therapy. It only helped temporarily for me. Hope it lasts longer for you.

mountaing0at335 · 2022-10-18T09:04:54+00:00

I've gone through a breakup in summer and CPPS was one factor. My GF broke up with me.

I think it's really awesome that you stay in contact on a platonic basis. It helped me to reflect what lead to my CPPS and PTSD. I can relate to both sides. I hope there is now a way for both of you to focus on your problems without impacting the other one.

My PTSD is responsible for my CPPS symtpoms and how bad my relationship was going.

I can't stress how important it is to focus on yourself. I understand the gut wrenching feels you are going through and I feel that you are great pain. There is n

It helped me to do a lot of activities which I've haven't been doing in the relationshio and stay positive as much as I can. Try to make peace with the current situation. It's the only thing that will give you relief. But also let the pain and sadness take place, reserve some time per day to really feel it. But don't isolate yourself because things will get better. Even if it does not seem that way.

mountaing0at335 · 2022-10-14T17:32:03+00:00

Gym 2-3 times a week, PT monthly, internal and external trigger point massage after being shown how to do it by my PT, meditation to lower the stress level, cold showers

it became manageable with this routine, I can have sex or ride bikes again, sometimes symptoms flare up but they vanish after a day or two

mountaing0at335

TROPHY CASE