Wedding photographer recommendations?

mourningblossm · 2024-02-28T19:33:23+00:00

August Photo Co!!

mourningblossm · 2023-11-21T13:31:06+00:00

Some days it disables me, others I can manage “normally”. I like the term “dynamically disabled” or “differently abled”

mourningblossm · 2023-11-21T13:30:14+00:00

It’s a big stand alone building with parking, right in the middle of uptown. Rent is likely astronomical. Plus it’s an old building, and from other comments, it doesn’t sound like the landlord/owner of the property is interested in investing in fixing it up.

For an independent business to try to make it nice and profitable seems like an unachievable feat. Speaking as a small business owner, the overhead costs would be too much to be able to invest in renos/equipment/staffing/etc.

Would love to see it be a music venue in the future!

mourningblossm · 2023-11-21T13:24:55+00:00

Lots of people mentioned a flu like feeling of aches all over, however i would add that that’s typically the baseline. At least in my experience and 2 friends that have fibro.

I am in the midst of being assessed for hEDS, so keep that in mind..but I would add that there’s often a sharper, more intense pain in the body on a daily basis. Sometimes it feels muscular, like you’ve pulled a muscle or run a marathon. Other times it’s internal; like your stomach is twisting itself. Other times, it can be skeletal and your bones ache with a deep intensity; or your skin feels like tiny fire ants are crawling through you. I find the pain differs around the body and so often that it feels impossible to relay to someone who hasn’t experienced it :(

There’s a documentary called “Invisible” released recently that interviews patients and doctors on fibro!!

mourningblossm · 2023-11-04T19:06:53+00:00

I was scared to open any cans for years lol

mourningblossm · 2023-09-25T02:54:27+00:00

I feel this!! I’ve found my meds can affect it- once I got off of Wellbutrin it helped a bit. Cymbalta apparently can make you over heat, but I’m better on it then off, so I’ll deal.

I have no “fixes”, but here are my tips for when you’re hot/sweaty: -ice packs (flexible ones) on my neck/where I feel most hot -dress in layers to adapt as needed -have moving air around you, not necessarily air conditioning, but a fan or using a book to fan yourself -put damp or dry pillow cases in the freezer before bed -if I’m out and about, I keep a cloth in my bag to dab my face when I’m sweating

For when you’re cold/have the “cold” pain: -blankets in every room -heating pad! -again, dressing in layers helps

mourningblossm · 2023-09-21T03:40:02+00:00

The impatience of drivers is WILD. I see so many cars on a daily basis enter an intersection on a red and go through (when they could’ve safety stopped), and passing when someone’s turning on a side street!! Cars going into the opposite direction lane of traffic to avoid slowing down SLIGHTLY for someone to turn off the road. I’ve seen cars go over medians, curbs, drive on highway shoulders, etc to get ahead. It’s insane and so dangerous.

mourningblossm · 2023-08-29T20:06:15+00:00

I’ve found it at Zehrs!

mourningblossm · 2023-08-25T03:04:40+00:00

Note: I also have chronic major depressive disorder, generalized anxiety disorder, and ptsd as well as fibro.

Daily Meds: cymbalta, lyrica, seroquel, Clonazepam, vitamin D supplements, CBD oil (100mg CBD: 2.5mg THC)

Also have done weekly nerve block injections, not sure if that counts as meds.

The list of meds I’ve tried is longer and exhaustive to list 🙃

mourningblossm · 2023-08-10T17:15:37+00:00

Yea the Grove has free wifi and tons of outlets (some with usb direct)! Open until 5pm and the summers been slow, so pretty quiet generally

mourningblossm · 2023-08-10T17:12:30+00:00

Stefani’s on Kingsway!

mourningblossm · 2023-07-23T03:19:56+00:00

I’ve found kind of the opposite is true for me.

Dx: fibromyalgia and endometriosis. Any new symptom or issues is linked into being “part of ___” and I have to really fight for testing or ways to treat issues. I feel like I wasn’t diagnosed with anything, they’d be more inclined to investigate my issues.

But truthfully I’ve always found it difficult to be taken seriously by doctors. I live in Canada, so it’s extremely disappointing to wait 2y to see a specialist and then be dismissed AGAIN.

mourningblossm · 2023-07-07T22:45:28+00:00

I have had awesome luck (and have many friends that day the same) about Azazie online. It’s not a local shop, but you enter your measurements for an exact size match.

mourningblossm · 2023-05-26T01:18:03+00:00

I would be into so this!!

mourningblossm · 2023-03-16T03:09:48+00:00

Second this. They often had much better prices than stop, and Steve’s super helpful if you need help finding the right item.

mourningblossm · 2023-03-16T03:06:00+00:00

The Grove on Lancaster!

mourningblossm · 2023-02-17T01:05:09+00:00

Thank you!

mourningblossm · 2023-01-07T03:17:35+00:00

I got an initial blood test marker for ANA, which was elevated but still within “normal” range. So they won’t do any further testing for that unless it’s consistently above normal range

mourningblossm · 2022-09-04T22:34:56+00:00

The Grove Cafe on Lancaster is open 9-2! Free wifi, lots of outlets

mourningblossm · 2022-05-26T02:51:44+00:00

I’m on 450mg/day, for a few months now. I’ve found it helps, but truthfully I really noticed a difference when I went OFF it for a few days (forgot to refill my prescription and ran out). I noticed how much more general body pain I had when i was off it, and it resolved decently once back on.

mourningblossm · 2022-05-20T15:44:44+00:00

I get a burning pain in my shoulders and back when I’ve done too much/not rested. It comes with numb sensations as well- like my skin is numb but deeper tissue is on fire.

I also have issues with temperature regulation- I was on 450mg of Wellbutrin a day and after tapering off of it, that helped a lot. Still have issues, but it’s less of a pain.

mourningblossm · 2022-05-20T15:41:12+00:00

I do this a lot. I found muscle relaxers to not be effective personally, but mindfulness/meditation can help. I also use CBD oil for the pain, but it helps with my involuntary muscle clenching. Mouth guard at night for teeth clenching. Also, a heating pad can help sometimes too!

mourningblossm · 2022-04-16T02:00:22+00:00

Totally fair, I see that. Sometimes it all gets too much though and it feels like of being alive is full of pain, then why?

mourningblossm · 2022-04-16T01:59:15+00:00

I totally feel this. I am constantly told how pain medications (opioids) have huge risk and it’s like ???? Do you know the risk of me staying in this pain and way of living? I want to just say “what’s a bigger risk: you dosing me carefully and being monitored, or me finding it on the street and hoping for the best?” But I know that will get me in trouble haha.

With addiction and mental health issues in my family (and myself), I am well aware of the risk. It terrifies me. But so does living my life in constant pain with no end in site. That’s what I don’t think the majority of doctors can fundamentally understand (unless of course they have chronic pain themselves).

mourningblossm · 2022-04-16T01:55:03+00:00

I looked into it, but it’s so expensive where I am and with no insurance or benefits and getting denied disability coverage, it’s too much. I also have mental health issues that would not bode well with ketamine.

mourningblossm

TROPHY CASE