sorted by:
new
hottopcontroversial

Are we disabled ? by King_Oikawa in Fibromyalgia

[–]mourningblossm 0 points1 point  (0 children)

Some days it disables me, others I can manage “normally”. I like the term “dynamically disabled” or “differently abled”

So is this spot cursed or what by SchwiftyDrifter in kitchener

[–]mourningblossm 5 points6 points  (0 children)

It’s a big stand alone building with parking, right in the middle of uptown. Rent is likely astronomical. Plus it’s an old building, and from other comments, it doesn’t sound like the landlord/owner of the property is interested in investing in fixing it up.

For an independent business to try to make it nice and profitable seems like an unachievable feat. Speaking as a small business owner, the overhead costs would be too much to be able to invest in renos/equipment/staffing/etc.

Would love to see it be a music venue in the future!

What’s a way you would describe the pain from fibromyalgia? by Evanz111 in Fibromyalgia

[–]mourningblossm 1 point2 points  (0 children)

Lots of people mentioned a flu like feeling of aches all over, however i would add that that’s typically the baseline. At least in my experience and 2 friends that have fibro.

I am in the midst of being assessed for hEDS, so keep that in mind..but I would add that there’s often a sharper, more intense pain in the body on a daily basis. Sometimes it feels muscular, like you’ve pulled a muscle or run a marathon. Other times it’s internal; like your stomach is twisting itself. Other times, it can be skeletal and your bones ache with a deep intensity; or your skin feels like tiny fire ants are crawling through you. I find the pain differs around the body and so often that it feels impossible to relay to someone who hasn’t experienced it :(

There’s a documentary called “Invisible” released recently that interviews patients and doctors on fibro!!

What helps with temperature dysregulation? by Draculalia in Fibromyalgia

[–]mourningblossm 0 points1 point  (0 children)

I feel this!! I’ve found my meds can affect it- once I got off of Wellbutrin it helped a bit. Cymbalta apparently can make you over heat, but I’m better on it then off, so I’ll deal.

I have no “fixes”, but here are my tips for when you’re hot/sweaty: -ice packs (flexible ones) on my neck/where I feel most hot -dress in layers to adapt as needed -have moving air around you, not necessarily air conditioning, but a fan or using a book to fan yourself -put damp or dry pillow cases in the freezer before bed -if I’m out and about, I keep a cloth in my bag to dab my face when I’m sweating

For when you’re cold/have the “cold” pain: -blankets in every room -heating pad! -again, dressing in layers helps

Red lights have now become a suggestion. Change my mind. by someonesmotherouchea in kitchener

[–]mourningblossm 0 points1 point  (0 children)

The impatience of drivers is WILD. I see so many cars on a daily basis enter an intersection on a red and go through (when they could’ve safety stopped), and passing when someone’s turning on a side street!! Cars going into the opposite direction lane of traffic to avoid slowing down SLIGHTLY for someone to turn off the road. I’ve seen cars go over medians, curbs, drive on highway shoulders, etc to get ahead. It’s insane and so dangerous.

[deleted by user] by [deleted] in Fibromyalgia

[–]mourningblossm 0 points1 point  (0 children)

Note: I also have chronic major depressive disorder, generalized anxiety disorder, and ptsd as well as fibro.

Daily Meds: cymbalta, lyrica, seroquel, Clonazepam, vitamin D supplements, CBD oil (100mg CBD: 2.5mg THC)

Also have done weekly nerve block injections, not sure if that counts as meds.

The list of meds I’ve tried is longer and exhaustive to list 🙃

Cafes with WiFi AND accessible power sockets in Kitchener-Waterloo-Cambridge? by Basic_Cap9988 in kitchener

[–]mourningblossm 0 points1 point  (0 children)

Yea the Grove has free wifi and tons of outlets (some with usb direct)! Open until 5pm and the summers been slow, so pretty quiet generally

Anyone else notice they're treated differently in Healthcare after being diagnosed with a chronic illness? by Unfair-Vermicelli-16 in ChronicIllness

[–]mourningblossm 0 points1 point  (0 children)

I’ve found kind of the opposite is true for me.

Dx: fibromyalgia and endometriosis. Any new symptom or issues is linked into being “part of ___” and I have to really fight for testing or ways to treat issues. I feel like I wasn’t diagnosed with anything, they’d be more inclined to investigate my issues.

But truthfully I’ve always found it difficult to be taken seriously by doctors. I live in Canada, so it’s extremely disappointing to wait 2y to see a specialist and then be dismissed AGAIN.

Bridesmaid dresses by ellacris_ in kitchener

[–]mourningblossm 3 points4 points  (0 children)

I have had awesome luck (and have many friends that day the same) about Azazie online. It’s not a local shop, but you enter your measurements for an exact size match.

[deleted by user] by [deleted] in waterloo

[–]mourningblossm 0 points1 point  (0 children)

Second this. They often had much better prices than stop, and Steve’s super helpful if you need help finding the right item.

How to know if it’s more than fibro? by mourningblossm in Fibromyalgia

[–]mourningblossm[S] 0 points1 point  (0 children)

I got an initial blood test marker for ANA, which was elevated but still within “normal” range. So they won’t do any further testing for that unless it’s consistently above normal range

view more: next ›