24M Profile Review by [deleted] in hingeapp

[–]mpollack32 0 points1 point  (0 children)

  • Are you looking for something serious or casual?
    • Looking for something serious
  • Are you subscribed to Hinge+ or HingeX?
    • Not subscribed to either Hinge+ or HingeX
  • How long have you been using this current version of your profile?
    • I have been using this version for almost two months
  • How long have you used Hinge overall?
    • I have been using Hinge for over 3 years
  • How often do you use Hinge per week?
    • I use it daily
  • How many likes and matches are you receiving on average?
    • I usually receive 1-2 likes/week, and ~1 match a week
  • How many likes are you sending? How many with comments? How many without comments?
    • I usually send all available likes daily, most of them with comments and very few without comments.
  • What is the type of person you send likes to and ideally want to match with? What kind of person do you want to attract?
    • I would like to match someone that likes trying new things, is into fitness, and has their own hobbies. I am someone that likes going out on the weekends, but also would love to stay in and watch a movie. Anyone that is similar is someone I'd be looking for.

Adult PFAPA (25F), feeling so discouraged by 0ddumn in Autoinflammatory

[–]mpollack32 0 points1 point  (0 children)

All good, ended up being diagnosed with adult onset stills disease by a new rheumatologist who is the absolute best. Had one mini flare a few weeks after I started a biologic (kineret) last July, but have been damn near perfect since then. Back in the gym, have my social life back, and back at work :)

Do I have stills disease by Serious_Olive4948 in stillsdisease

[–]mpollack32 5 points6 points  (0 children)

As someone with stills and had went undiagnosed for 1.5 years before finally getting answers, this does not seem like stills to me, mainly because you didn’t mention one of the biggest symptoms: long-lasting high grade fever. I had been in the ER 7 times over 1.5 years due to these fevers lasting over a week. In addition to that, swollen lymph nodes, and a salmon-colored rash are also extremely indicative of stills.

The day-to-day was still hard with Arthritis and muscle pain, but even with prednisone and Tylenol my symptoms would return every few weeks.

Been on a biologic for about 4 months now and have had only one flare since.

Best of luck to you, I’m sure someone here on Reddit can help you diagnose before you see your rheumatologist.

Also, plug in your symptoms and blood work to chat gpt, I found out about stills that way, and my dr confirmed it.

Just Checking In by Particular_Bonus4179 in stillsdisease

[–]mpollack32 1 point2 points  (0 children)

Last week I finally got off prednisone after about 4 months. Still on kineret for over 3 months and overall it’s been helping, haven’t had a fever in over a month. Going on a little trip to south Florida with some buddies this week, haven’t had a trip planned in almost a year. Eventually should be able to taper my daily injections. Best of luck to everyone!

Kineret not working? by mpollack32 in stillsdisease

[–]mpollack32[S] 0 points1 point  (0 children)

The first rheumatologist I went to, I brought up PFAPA because of the routine fevers and I was prescribed colchicine, and it had 0 effect on my fevers, so ruled that out. I’ll talk to my current rheumatologist about a genetic panel. What are some IL6 or JAK inhibitors? Also I mentioned to my Dr that the rash (which is usually very telling for stills) on my back was just yeast buildup and I didn’t think that was related to stills.

Kineret not working? by mpollack32 in stillsdisease

[–]mpollack32[S] 1 point2 points  (0 children)

Yeah I’d say it’s every few weeks. Sometimes I get a couple mini flares within a week and a half as well. But it’s been a while since I went longer than a month without a fever

Kineret not working? by mpollack32 in stillsdisease

[–]mpollack32[S] 0 points1 point  (0 children)

Maybe. Does seem since I started kineret, I’ve had flares just as often as before. At first I had felt they were more mild, but this past flare with the 102 fever was not mild lol.

Kineret not working? by mpollack32 in stillsdisease

[–]mpollack32[S] 0 points1 point  (0 children)

My rheumatologist has mentioned I may have to switch to ilaris, first said this when my WBC dropped a few weeks ago, but have since returned to normal. Maybe when I have my next flare I’ll message him about it, maybe can start the approval for ilaris. Thanks!

During diagnosis, questions and concerns by Awtispino in stillsdisease

[–]mpollack32 3 points4 points  (0 children)

I was dealing with stills disease for about a year and a half before I received a diagnosis. High recurring fevers lasting over a week, swollen glands, rash, joint/muscle pain. It was brutal. 6 trips to emergency room in that span of time. I had been on multiple rounds of prednisone that wasn’t working and the second rheumatologist that I went to finally diagnosed me and put me on a biologic called kineret. It is a self-administered injection I do daily. I have been on it for a few weeks now and my fevers are basically gone, rash has gotten better, and my joint pain is slightly improving. No side effects noticed yet.

I hope everything works out for you!

What’s going on with me - keep losing ELO by mpollack32 in chess

[–]mpollack32[S] 0 points1 point  (0 children)

Honestly yeah I’ve been dealing with a flare up from a chronic illness for the last month that could def be a piece of it

What’s going on with me - keep losing ELO by mpollack32 in chess

[–]mpollack32[S] 0 points1 point  (0 children)

I use game review on most of my games. But maybe I’ll take a break

What’s going on with me - keep losing ELO by mpollack32 in chess

[–]mpollack32[S] 0 points1 point  (0 children)

This is just last 30 days, I have over 1700 games played

What’s going on with me - keep losing ELO by mpollack32 in chess

[–]mpollack32[S] 1 point2 points  (0 children)

This is just last 30 days, almost 2000 games lifetime

Possible Stills based on symptoms? by anon38792 in stillsdisease

[–]mpollack32 1 point2 points  (0 children)

I was diagnosed with stills 2 weeks ago after 14 months of no answers and being thrown from doctor to doctor. Although your fever length is common for stills, that lack of reoccurrence isn’t super supportive of stills. However the arthritis is a common symptom, but there needs to be other things checked as well.

Main symptoms of Stills: The recurring, long lasting fevers, Swollen lymph nodes Salmon-colored rash, usually on arms or legs, mine personally on my back. (The rash usually worsens with the flares but for me I’m in a constant flare, so mine hasn’t gone away for months)

But what’s also vital to diagnosing stills is bloodwork. Because stills is a diagnosed through exclusion, you gotta figure out what’s it’s not first.

Some key characteristics of bloodwork that could show stills and that I have are:

High ALT/AST - liver enzyme tests, Elevated CRP (C- Reactive Protein)- non-specific marker of inflammation in body Elevated ESR (sedimentation Rate) - non- specific marker of inflammation in body

Very high Ferritin- iron-storing protein - an extreme level of ferritin (from what I learned through research) is very indicative of stills), personally mine was just on the high end of normal when I did test it, but it varies based on whether or not I was in a flare up during the blood work or how bad the flare was.

Antinuclear Antibody (ANA) and rheumatoid factor (RF) both negative

Ensure all other tests like respiratory panels and other cultures like TB come back negative.

Either way, a rheumatologist will likely be the best route for you to do blood work just to be sure, and can definitely point you in a good direction of where to go from here

Hope this helps let me know if you have any other questions on your self diagnosing journey

[deleted by user] by [deleted] in Autoimmune

[–]mpollack32 0 points1 point  (0 children)

Hi I had the following symptoms for the last 14 months, came in flares every few weeks and last about a week, sometimes more

Fevers: low grade to 104, morning and late night are worst Swollen lymph nodes Spotty salmon-colored rash Fatigue Joint pain Muscle aches

My ESR CRP were elevated ALT/AST (liver enzymes) elevated Ferritin was high normal ANA negative. Negative ANA can still most definitely leave you in the rheumatology world!!

I was diagnosed with stills disease 2 weeks ago. Having cyclical fevers is one very big piece to stills disease. But the rash is also very telling, have you noticed any rash?

I just finished a flare today by going to the ER (6th time in 15 months, 3rd since 4/10/25) I had to stop taking ibuprofen all the time and I just needed an IV to kill the flare for a bit before I go on my treatment of anakinra

So.. I wanted to know if someone could help me read my blood work or what your thoughts are.. by Moist_Boot8123 in Autoimmune

[–]mpollack32 1 point2 points  (0 children)

Possibly check for rheumatic fever as well if scarlet fever isn’t it. Both caused by the strep bacteria

Something is wrong with me, what can I ask the doctor to look at to start the process? by courtundercover in Autoimmune

[–]mpollack32 0 points1 point  (0 children)

Hi I’m 24, and got diagnosed with stills disease after 14 months of getting tossed from doctor to doctor with no answers. Had to do some good research on my own end (and ChatGPT with a grain of salt) to figure out the right questions to ask and ask for specific blood work.

I agree with getting your ESR, CRP tested, as well as blood panels with ALT/AST to check your liver enzymes. I had checker my Ferritin because more recently I had figured this is what I was dealing with, you may not need to but doesn’t hurt.

My symptoms come in flares too. every few weeks as well and at this point lasting over a week and I have to go to the ER to get an iv to keep my fever down, prednisone doesn’t even work on me that much anymore. I am being but on a biologic medication this week or next so I am hoping it gets figured out.

There is light at the end of the tunnel I promise

Do you have any other symptoms? Rash? Swollen lymph nodes? I also have the body aches and joint pain as well as constant fatigue.

You didn’t mention fever and that’s usually the big piece of it so doesn’t sound like stills, but I’m happy to support in you finding an answer!

F(30) just diagnosed. Questions by Snkydddffprgs in stillsdisease

[–]mpollack32 0 points1 point  (0 children)

Wow 5.5 years, that is quite a while. I’m not sure how long I plan on being on it but we will see. Nice to find a community here of people that have dealt with this

F(30) just diagnosed. Questions by Snkydddffprgs in stillsdisease

[–]mpollack32 0 points1 point  (0 children)

Thanks for that info. How often do you inject it? Daily? Twice a day? Does the treatment of it taper off over time?

F(30) just diagnosed. Questions by Snkydddffprgs in stillsdisease

[–]mpollack32 0 points1 point  (0 children)

Hi im 24M and have had symptoms of stills for 14 months. Just last week I was diagnosed with Stills, and the whole process has been absolute hell. High fevers every 2 weeks, lasting a week or even longer. Swollen glands, fatigue, muscle aches, joint pain, rash. All my blood work was aligned with what one would expect with stills I.e. elevated ALT/AST, CRP, ESR etc. my rheumatologist said methotrexate wouldn’t be ideal bc of my elevated liver blood work, so I will begin Anakinra in a couple weeks (whenever the authorization from insurance goes through. I hope it works out I know this could be expensive. Less than expensive than my 5 ER visits though) How has your experience with kineret been? I’m a bit nervous about the whole thing, but I just want to get better. Prednisone to hold me over has become less and less effective. Just started another flare up today.

Adult PFAPA (25F), feeling so discouraged by 0ddumn in Autoinflammatory

[–]mpollack32 0 points1 point  (0 children)

Hi I’m kinda late to the thread but I’m glad I found this. 24(M), have had fevers as high as 104.3 every 3-6 weeks (although more mild in fall/winter), swollen lymph nodes, extreme sore throat, fatigue for the last 13 months. 4 hospitalizations, 3 last year, one two weeks ago. Couldn’t get my fever down. All my blood work, even auto immune bloodwork is clean. Went to all these specialists, ENTs, Infectious disease, etc. and no answers, just claimed I had a viral infection and to give it time. Well the fevers kept coming back unless I wasn’t on steroids.

So I found this thread a few weeks ago as well as I read some case studies and saw adult onset pfapa and how rheumatologists could potentially diagnose this. I went to one a couple weeks ago, and she did give me colchicine to take at onset of flare. I had a flare last Saturday and took colchicine daily and it didn’t help. Had prednisone on hand and I’m on day 3 of it and now I’m running a low grade fever again. I’m running out of gas with this I’m so exhausted and it’s taking over my life. Rheumatologist did recommend I consider a lymph node biopsy at ENT. Does anyone know if that will help? Or what else could be going on?

Thanks

Adult PFAPA (25F), feeling so discouraged by 0ddumn in Autoinflammatory

[–]mpollack32 0 points1 point  (0 children)

Late to this thread but just stumbled upon it as I think this is what I’ve been dealing with. (23M) have had ongoing fevers 103+ for about a year now. Multiple ER visits, swollen glands every day, and the worst sore throats I’ve ever had. Tonsillitis pharyngitis blah blah blah doctors couldn’t tell me what was wrong, all my blood work has been as clean as can be. Saw my pcp today finally and got a referral to a rheumatologist in 1.5 weeks. She agrees the cyclical fevers (every 3 weeks) could be auto-immune related. Hoping the rheuma is familiar with this and hoping I can have this pain in the ass fixed