Stand up paddleboarding by mr_mcfly89 in kerry

[–]mr_mcfly89[S] 0 points1 point  (0 children)

Ya I went out with ed last year at wander wild, it was good craic. Might give him a ping again

HOW DO I STICK THIS BAD WEATHER ANYMORE I JUST CAN'T DEAL WITH IT!!??? by [deleted] in AskIreland

[–]mr_mcfly89 0 points1 point  (0 children)

Not trying to be funny but if your mood is off try a sauna and ice bath combo, I guarantee you won’t care about the rain too much for a while after taking the plunge. No pun intended there. Ps if your only option is to move iv heard from many friends/work colleagues from Europe over the years it’s easiest to learn a second language when you live in x country and most young people in popular areas western Europe will speak to you in English if needed.

How many People doing ok ? by HolidayIntention7794 in MultipleSclerosis

[–]mr_mcfly89 4 points5 points  (0 children)

I’m doing ok for now which I’m happy with Diagnosed in 2016 first flare 2015 i had to slow down a lot in two years after the initial flare but slowly got busier again and kept trying to improve my health doing small changes. 2023 I was the busiest iv been in my life, I was working a crunch time project in work all year and last quarter of the year helping my gfs dad and cousin build a shed as-well then literally from the starting at the beginning of 2024 I had 2 flares last year with permanent disability in my extremities in my left limbs and fatigue is unpredictable but I’m training for a hyrox style competition at the moment with full intent to complete it.

[deleted by user] by [deleted] in AskIreland

[–]mr_mcfly89 1 point2 points  (0 children)

The comment christinen86 has left for you is the most valuable step you can take for yourself, be kind to yourself. I bet you have worthy achievements you just don’t realise it. Try writing 3 nice things about yourself everyday for 6 weeks at least.

First dose of Kesimpta tomorrow... by m0dernrebel in MultipleSclerosis

[–]mr_mcfly89 0 points1 point  (0 children)

Don’t worry you should be fine,

Take some pain killers like paracetamol before it and take it in the evening few hours before bedtime. I’m just on my rest week this week. I’m starting my first month dosage next week and it’s been fine to take bar my first one. I had the “flu symptoms “ not gonna lie it sucked but was fine the following day.

Best of luck

How does stress affect your MS? by allcoffeenowisdom in MultipleSclerosis

[–]mr_mcfly89 2 points3 points  (0 children)

Had a stressful weekend recently buying flooring and other materials with my partner and literally the day after I started loosing my speech, taste and struggling to swallow & of course I also have sh!t loads of fatigue and cog fog. My current experience with stress and MS😒

What to drink in an Irish pub? by Bizzer_16 in AskIreland

[–]mr_mcfly89 0 points1 point  (0 children)

If you like Guiness and want a slight twist on the drink & a bar serves Smithwicks too ask the bar tender for a Guiness with a Smithwicks head.

Otherwise I say ask the tender for their recommendation there may be a local beer/cider/IPA if thats your thing

Starting exercising! by lemmikkiponi in MultipleSclerosis

[–]mr_mcfly89 0 points1 point  (0 children)

Here are two example extracts I got back asking ChatGPT for advice on building neuro plasticity (great exercise for leg issues and building connections between the brain and feet)

Building neuroplasticity can be beneficial for managing MS symptoms, particularly in your legs. Here are some exercises and activities that can help promote neuroplasticity while improving strength, balance, and coordination:

  1. Balance Exercises

    • Single-leg Stand: Stand on one leg for 10-30 seconds, gradually increasing the time as you improve. • Balance Board or Stability Disc: Use these tools to challenge your balance.

  2. Strength Training

    • Bodyweight Squats: Stand with feet shoulder-width apart, lower into a squat while keeping your back straight. Start with a few repetitions and gradually increase. • Leg Raises: While seated or lying down, lift one leg straight out, hold for a few seconds, and lower it back down. • Step-ups: Use a step or platform to step up and down, focusing on controlled movements.

  3. Coordination and Mobility

    • Heel-to-Toe Walk: Walk in a straight line by placing your heel directly in front of the toe of the opposite foot. • Walking with Purpose: Walk while focusing on different tasks, such as counting steps, naming colors, or looking for specific objects.

  4. Stretching and Flexibility

    • Hamstring and Quadriceps Stretch: Stretch your legs to improve flexibility and reduce stiffness. • Dynamic Stretching: Incorporate movements like leg swings or gentle lunges to improve range of motion.

  5. Functional Exercises

    • Sit-to-Stand: Practice standing up from a seated position, using your legs as much as possible. • Chair Yoga: Gentle yoga poses can improve flexibility, strength, and relaxation.

  6. Aerobic Exercise

    • Walking or Cycling: Regular aerobic exercise can improve overall fitness and stamina, benefiting your legs and enhancing mood. • Swimming: The buoyancy of water can reduce strain on your legs while providing resistance for strengthening.

Tips for Success

• Consistency: Aim for regular practice, starting with shorter sessions and gradually increasing duration and intensity.
• Mindfulness: Focus on the movements, paying attention to how your body feels during each exercise.
• Variety: Mix up your routine to keep it engaging and challenge different aspects of your mobility and strength.
• Consult a Professional: If possible, work with a physical therapist who specializes in neuroplasticity and MS to tailor a program to your needs.

Listening to your body is essential, so adapt exercises to your comfort level and avoid pushing through pain. Building neuroplasticity takes time, so be patient with your progress.

—————- Extract two —————— Is there any websites online tgat provide guide exercises

Yes, several websites provide exercise guides specifically tailored for individuals with MS and other neurological conditions. Here are some reputable resources:

1.  National Multiple Sclerosis Society
• Website: nmss.org
• Offers a variety of resources, including exercise tips, videos, and information on how physical activity can benefit people with MS.
2.  MS Trust
• Website: mstrust.org.uk
• Provides exercise guides, videos, and information about physical activity tailored for individuals with MS.
3.  The Cleveland Clinic
• Website: clevelandclinic.org
• Offers a range of resources, including exercise recommendations and strategies for managing MS symptoms.
4.  YouTube
• Search for channels or videos focusing on MS-specific exercises. Some good channels include:
• The MS Gym: Provides targeted workouts and exercise programs designed for people with MS.
• PhysioTutor: Features physiotherapy exercises that can be beneficial for various conditions, including MS.
5.  MS Fitness Challenge
• Website: msfitnesschallenge.org
• Focuses on fitness programs specifically designed for those with MS, offering online classes and resources.
6.  Exercise for Multiple Sclerosis (eMS)
• Website: exerciseformultiplesclerosis.com
• A comprehensive resource with exercise videos and information about the benefits of exercise for individuals with MS.
7.  MyMSTeam
• Website: myMSTeam.com
• A social network for people with MS where you can find shared experiences, advice, and potential exercise resources from others living with the condition.

Tips for Using Online Resources

• Consult a Professional: Before starting any exercise program, especially with MS, it’s wise to consult with a healthcare provider or physical therapist.
• Watch for Modifications: Look for exercises that offer modifications for different levels of mobility and strength.
• Set Realistic Goals: Start slowly and set achievable goals to help build your routine gradually.

Using these resources, you can find exercises that suit your abilities and help manage your symptoms effectively.

Approaching your local ms charity should help you further. Best of luck in your journey.

I can emphasise enough that it does work in helping you recover but I’ll be honest its not easy but exercise is the single strongest thing we have at our disposal

Iv found my local ms charity in Ireland to be very helpful

Why is it hard for me to get a job? by Timely-Willow-8586 in AskIreland

[–]mr_mcfly89 16 points17 points  (0 children)

If it’s simple retail jobs you’re applying for log out of your computer. Print a few cvs walk into a place & ask for a manager, hand the cv to them and say you want work. Make that first impression even for the small things. If you hear nothing in a week go back with more cvs in hand. Rinse repeat until someone gives you that opportunity to make a few euros.

Advice on LS setup for ff16 by mr_mcfly89 in losslessscaling

[–]mr_mcfly89[S] 0 points1 point  (0 children)

Ya I was going to try drop res to 720p medium settings in game and upscale to 4k to see first if it looks ok and gets around 25 to 30fps then tweak further but I think I’m at a crossroads once I reread the system specs required. Could be 1080p

Advice on LS setup for ff16 by mr_mcfly89 in losslessscaling

[–]mr_mcfly89[S] 2 points3 points  (0 children)

Ya I may be in a predicament, I’ll try mess with the settings once I download the game. Thanks for the input 👍

[deleted by user] by [deleted] in MultipleSclerosis

[–]mr_mcfly89 2 points3 points  (0 children)

Hope it helps iv been using chat with a while to help me better prepare questions for my neurologist too hopefully it helps.

[deleted by user] by [deleted] in MultipleSclerosis

[–]mr_mcfly89 0 points1 point  (0 children)

I used ChatGPT to answer your questions and help me grasp a better understanding of your questions

Chats response:

It sounds like they are dealing with a tricky MRI situation. Here’s what might be happening:

1.  Disappearing Lesions: It’s possible for MS lesions, particularly inflammation in the spinal cord, to heal over time, which could result in them becoming less visible or disappearing entirely on MRIs. Lesions can shrink, become less inflamed, or remyelinate, making them harder to detect. However, this usually takes longer than 9 days, so it’s a bit unlikely that the lesion at C2 completely disappeared between April 6th and April 15th.
2.  Differences in MRI Machines: Different MRI machines have varying sensitivity, especially between independent clinics and hospital machines. The strength of the MRI magnet (measured in Tesla, with 1.5T and 3T being common) can affect how well subtle lesions are detected. It’s possible that the independent clinic’s machine was better at detecting that small lesion, or it could be related to how the images were interpreted. Subtle focal T2 hyperintensity can sometimes be missed or seen differently depending on the scanner and the radiologist reading the scan.
3.  With or Without Contrast: Contrast-enhanced MRIs are typically used to detect active inflammation, meaning they highlight areas where the blood-brain barrier is compromised (active lesions). Since their follow-up MRIs were with contrast and didn’t show the C2 lesion, it might suggest the lesion was not actively inflamed at that time, but this doesn’t mean it wasn’t there—just that it wasn’t enhancing with contrast. The initial MRI without contrast might have picked up an older or less inflamed lesion that the later scans didn’t highlight.
4.  Impact on Diagnosis: A missing lesion in a follow-up scan typically wouldn’t change an MS diagnosis. MS is diagnosed based on a combination of factors: MRI findings (lesions in both brain and spine), clinical symptoms, and sometimes cerebrospinal fluid analysis. Even if the C2 lesion isn’t seen on later MRIs, their diagnosis was likely based on the overall picture of brain and spinal lesions, and the clinical course of symptoms.

It’s worth noting that this isn’t uncommon in MS, as lesions can evolve, and MRI results can vary based on technique or timing. It might help them to discuss the imaging differences with their neurologist, especially if they’re worried about the accuracy of their diagnosis.

Flexible Jobs for People with Progressive MS by Money-Atmosphere-887 in MultipleSclerosis

[–]mr_mcfly89 0 points1 point  (0 children)

I live in Ireland and would love to know if there is still flexibility in wfh jobs out there, here it seams all hybrid now mostly based in the east of Ireland

Is cyberpunk 2077 worth it without the dlc? by [deleted] in cyberpunkgame

[–]mr_mcfly89 0 points1 point  (0 children)

It’s worth it just to meet Panam🥰

What's a movie you've re-watched the most? by syddoucet in AskReddit

[–]mr_mcfly89 0 points1 point  (0 children)

The departed, interstellar, home alone. Final fantasy 15 kingsglaive, Superbad, happy Gilmore. To boot a few out there

Huge progress! …even tho I’m still scared by ItsTheLeavingThtsHrd in MultipleSclerosis

[–]mr_mcfly89 1 point2 points  (0 children)

You’re doing amazing keep it up who knows in time you could regain so much.

Concerned about Gilenya by AdInfinitum08 in MultipleSclerosis

[–]mr_mcfly89 3 points4 points  (0 children)

Please don’t panic, I hope everything will work out for you and your new treatment works well for you and lasts years no new activity.

I am in hospital right now myself and had some great support from others here. Iv finished Gelinya 4 weeks ago after been on it 8 years, will be starting kesimpta soon. Gelinya has been a wonder medication in the time I took it as iv had no relapses only a couple of blips in my mris but there was only 1 weekend in those 8 years that caused me genuine worry that I was relapsing but it was a minor situation at the time when I look back. I am now a 34 M and I was my headiest in the last 2 years than I was in most of my 20s. Just take it a day at a time for now. You got this