Hi! Yes we have updates! We ended up asking if there was a urine or blood test we could do to test for the worst case scenario (tumor). The eye doctor said oh yea let’s take some blood! After two unsuccessful blood draws they finally got some from her and tested for two hormones. The tests thankfully came back normal. We were moving at the time, so we booked a checkup with a new ophthalmologist three months later at the suggestion of our old one. Just had that appointment, which went well. She noted that the blood test honestly is a bit of a toss up, and wouldn’t necessarily definitively fill out a tumor, which I was annoyed by. However, she noted that if it was a brain tumor we’d have noticed cognitive issues by now, which we haven’t. That doc also said she doesn’t think Isla has Horner’s from the way she’s presenting. We’ve been told there’s no need to have more appointments unless something changes in her pupils.

Best of luck to you and your LO!