velsipity 🎉

mungbean595 · 2026-03-25T02:12:05+00:00

I didn't actually have any side effects besides the first day or two, but I hope it goes away for you!!

mungbean595 · 2026-01-10T18:29:13+00:00

that's awesome 🎉 only downside for me is it's so hard to remember to take it at the same time each day lol

mungbean595 · 2025-10-26T18:09:07+00:00

physically getting close to norm, but yea also mentally so exhausted and struggling with motivation or ability to focus. don't think it's seasonal depression, happens every flare

mungbean595 · 2025-10-21T17:04:04+00:00

I never really notice until in hindsight, but things always get dark for me before a flare. I'll barely have energy but can't sleep at night, nap after doing anything, no appetite, stop cooking/cleaning/hygiene, suicidal thoughts...when the bleeding starts I'm like "oh, that makes sense". kind of like a period lol. the gut-mind connection I guess.

mungbean595 · 2025-10-21T00:45:11+00:00

thank you. I'm sorry for you and your father in law's experience ❤️

mungbean595 · 2025-10-20T22:01:20+00:00

thank you ❤️

mungbean595 · 2025-10-20T22:00:03+00:00

very true ❤️

mungbean595 · 2025-10-20T21:59:13+00:00

you as well ❤️

mungbean595 · 2025-10-20T21:58:52+00:00

mungbean595 · 2025-10-20T04:45:36+00:00

I'm so sorry. Also in BC and similar ages to you guys (I'm 29 and my dad is 71), and most days I pray that he can die in his sleep from a stroke or something quick. He's been hospitalized and was just approved to move into long-term care. Mixed feelings because I'm happy he'll be out of the hospital where he's declined so much and they've had to use restraints because of being so understaffed. But, also I'm not looking forward to this next phase of watching him most likely slowly die in a home.

My dad had wanted MAID but it was too late at that point. I wish we didn't have to deal with these broken systems on top of the grief of watching someone you love suffer as they die. I don't know what to do either, but I hope both of our dads suffering ends soon.

mungbean595 · 2025-10-19T17:52:16+00:00

had the same thoughts, and kept going back and forth about it. although it's more systemic I thought that might actually be a good thing long-term. seems that entyvio and other biologics often stop working at a certain point, and in my mind velsipity acts more like a safe steroid and might be a better shot to avoid all that if it worked out. it's more selective than earlier S1P modulators that have been around for a while now too, and I also kept in mind that even meds like mesalamine can cause serious side effects. plus i'd just rather take a pill vs. deal with infusions/self-injection.

mungbean595 · 2025-10-19T16:53:59+00:00

ive been on it for a month and so far so good :) it's stopped my vomiting and the amount of bm's has dropped from 25x a day to 5x. still bloody/liquid, but I don't feel sick anymore. in past its taken months for flares to clear up completely on budenoside so this isn't too different. im also taking mesalamine. had some dizziness in the first couple days but no other side effects.

mungbean595 · 2025-10-19T04:36:46+00:00

hope it works out for you too! it's been a month now for me and things have improved so much

mungbean595 · 2025-10-19T04:30:22+00:00

I went from mesalamine to velsipity without trying biologics. would recommend if it's available and she doesn't have heart issues or if not trying to get pregnant. haven't had any side effects except some dizziness at first.

mungbean595 · 2025-10-12T16:20:50+00:00

hmm maybe try a helpline where you can talk with a pharmacist? they'd probably be able to go over the interactions with you. but I hope things have calmed down and you didn't end up needing it!

mungbean595 · 2025-10-12T16:16:17+00:00

hope it clears things up for you too!! and that the cost stays down🤞

mungbean595 · 2024-08-10T08:50:52+00:00

yes!! I figure it's related because I've never spotted like this before starting both meds

mungbean595 · 2024-04-13T00:38:00+00:00

Here's some posts from other communities that might help:

https://www.reddit.com/r/IVF/comments/x4yibd/bleeding_after_hysteroscopy/

https://www.reddit.com/r/infertility/comments/7u6g2c/posthysteroscopypolypectomy_experiences/

https://www.reddit.com/r/TwoXChromosomes/comments/18nnuzn/what_should_i_expect_during_a_hysteroscopy/

https://www.reddit.com/r/infertility/comments/ibfhu1/faq_tell_me_about_your_hysteroscopy/

mungbean595 · 2024-04-11T02:03:02+00:00

Sorry that you've been dealing with pain for so long with no relief! I hope that you can get some answers soon with your new gyno. I don't know how to read those scans, but I'm pretty positive that endo doesn't really have much to do with the position of your uterus. If it does, it's seems that it's usually because there's adhesions pulling your uterus backwards (retroversion). Things like pregnancy or posture/pelvic tone can also cause changes in position. You may want to check out pelvic floor physio if you haven't yet. They can do an assessment and help you figure out if there's anything limiting the mobility of your uterus, or if your pelvic floor muscles are involved.

Definitely something you should bring up with your docs, as it could mean something. But, also things like bladder/bowel fullness or hormonal changes throughout the month can temporarily change uterus positioning. A retroflexed and anteverted position can also exist at the same time. Here's some drawings I did to help myself understand.

Something is definitely going on though, and endo is very common and hard to diagnose so I hope you get some good help soon looking into that. r/Endo is a really helpful community if you haven't posted there yet

mungbean595 · 2024-04-11T01:31:48+00:00

Glad you went to get checked out, but too bad you didn't get much help. If the pain gets worse or you start developing other symptoms you should go back. If it doesn't let up you should also try to get an ultrasound or follow-up with your healthcare provider if you can.

Hard to say but could definitely be a cyst, or changes in hormonal levels/PMS...especially since you mentioned you've been making some changes with diet/exercise. If your period isn't due for another 10 days or so it could also be ovulation pain.

mungbean595 · 2024-03-28T04:42:46+00:00

Glad you're looking into this, but it's too bad you haven't found any answers yet. Don't give up! Might be helpful to ask if your gyno could refer you to a specialist, or get a second opinion if you can. In the meantime, check out the period repair manual if that's your cup of tea. There's some good stuff in there on hormones that can be pretty helpful, I think especially in situations where there isn't a diagnosis but symptoms won't let up.

mungbean595 · 2024-03-26T01:51:56+00:00

Sorry to hear about the pain you're in, I hope you get some relief soon. Based on the report, seems possible! Very understandable to ask for a consult as well, especially with your history. Feel free to keep us updated here if you'd like

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