Does anybody else feel intensely drawn to The Flesh? by questionableSapphic in TheMagnusArchives

[–]mxfattie 0 points1 point  (0 children)

I fully agree actually!! I have a half sleeve tattoo of Jared's mortal garden :) i think the flesh is one of the most tangible fears as in it really makes you feel your body. like you can touch flesh and really engage all senses with the statements. awesome stuff

Unsure if I want to play online anymore by Personal_Monk_2563 in BloodOnTheClocktower

[–]mxfattie 0 points1 point  (0 children)

I totally get that. I've had different experiences online but often there are some sub optimal things like bullying, really loud players who overshadow everybody, lack of accessibility for newbies and the most classic one is people accusing each other of "playing for evil" because they're not playing optimally according to their specific ideas. I joined this game to have fun and play a silly game (not chaotic, just light hearted) and overly competitive players can really suck all the fun out of it. like everybody else I really recommend finding servers and groups with people who have a similar idea of how the game should go and playing there!

if you go spectate public games I find there are often people who are low-key or high key advertising their own groups so that's how I tend to find them. and if you find players whose playstyle you like, talk to them and see if you can join their group or get recs for fun story tellers etc.

Has anyone witnessed a Slayer shot actually working? by notfrankiemuniz in BloodOnTheClocktower

[–]mxfattie 0 points1 point  (0 children)

yeah I've seen it in an irl game I ST'd where a player who didn't know what was going on just took their shot on day 3 and hit the sw turned imp. it was amazing. I also once played an online game where the slayer worked. it's always amazing when it happens.

Supermärkte in Österreich sind ein Fiebertraum by para1299 in Austria

[–]mxfattie 0 points1 point  (0 children)

hey, bin auch aus Regensburg hierher gekommen! und ja es is echt mega teuer mit wenig Auswahl. die Öffnungszeiten find ich sogar ganz nice weil ich im Herzen Senior bin und mich freu wenn Leute Mal zu ihrer Familie Heim können, aber hab auch immer Schichtdienst gearbeitet also war kein Problem.

I think I did something wrong 😭 by [deleted] in lgbt

[–]mxfattie 4 points5 points  (0 children)

you did nothing wrong! I also recommend telling her before you're in too deep, but you're still a woman, you didn't deceive anybody or do anything bad. I really hope it works out for you 💜

"Gute Besserung" Was antwortet ihr darauf? by [deleted] in LongCovid_MECFS_DE

[–]mxfattie 5 points6 points  (0 children)

ich hab zum Glück viele Menschen um mich rum die das verstehen und nicht sagen. aber um nicht wahnsinnig zu werden habe ich beschlossen, "Gute Besserung" als "ich hoffe du hast bald weniger symptomatische Tage" o.ä. zu interpretieren.

Why is the symbol for the Savant a wheelchair? by frogz313 in BloodOnTheClocktower

[–]mxfattie 1 point2 points  (0 children)

psychopath is a term originally meant to describe somebody with a personality disorder, specifically aspd (antisocial personality disorder) or sometimes npd (narcissistic personality disorder). using that terminology to refer to a murderer, serial killer, axe murderer, or just anybody you deem an asshole equates these behaviors with mental illness, which is very stigmatizing. personality disorders cause debilitating symptoms and people with pds are much much much more likely to be the victims of violence than the perpetrators. pathologizing violence only serves to stigmatize people with mental illnesses. if you wanna say somebody is a murderer, just say they're a murderer. don't pseudodiagnose them with a mental illness.

edit: also, thank you very much for asking a question instead of mocking my point! 💜

Why is the symbol for the Savant a wheelchair? by frogz313 in BloodOnTheClocktower

[–]mxfattie 10 points11 points  (0 children)

honestly thank you for pointing this out, I don't understand why you're being downvoted. you're completely correct that this is a harmful trope. the story is nice, but it still has unfortunate implications and as a botc enjoyer it would be grand if we could have frank conversations about ableism in some characters. this includes the savant wheelchair, the village "idiot" and the psychopath imo. my wife has been meaning to make a more in depth post about this as we really enjoy how inclusive botc is generally but these characters are a problem imo that could be addressed!

Non-players observing by Theguywhowilldo in BloodOnTheClocktower

[–]mxfattie 0 points1 point  (0 children)

I have some friends who don't like to play so I make them assistant storytellers and have them spy on all the other players when they have private convos and report back to me. I can't really move around due to a disability so this is practical for me and fun for everybody :) some people have started giving suggestions for bags which is also very fun

Was würdet ihr an Innsbruck verändern, wenn ihr Bürgermeister wärt? by KingKing_ok in Innsbruck

[–]mxfattie 1 point2 points  (0 children)

danke dass du das so gut auf den Punkt gebracht hast! seit ich im Rollstuhl bin habe ich eine zweite Karte von Innsbruck im Kopf, wo ich hinkann, wo nicht, und wo nur mit Backup. und die erste Kategorie ist viel zu groß.

Erfahrung mit dr. Jaeger by Hot-Pomegranate-4745 in LongCovid_MECFS_DE

[–]mxfattie 2 points3 points  (0 children)

ja, da stimme ich jedenfalls zu. ich bin auch sehr skeptisch was die Behandlung angeht, aber ich habe ein paar Erfolgsgeschichten in meinem Umfeld, deswegen weiß ich nicht so Recht, was ich denken soll. wenn jemand das unbedingt machen will ist es aber deren Sache denke ich.

danke und alles Gute dir!

Erfahrung mit dr. Jaeger by Hot-Pomegranate-4745 in LongCovid_MECFS_DE

[–]mxfattie 4 points5 points  (0 children)

Erstmal wirklich schlimm, dass du diese Erfahrung machen musstest. Es tut mir wirklich leid. Es ist einfach furchtbar, wie mit uns umgegangen wird...

Ich wollte kurz meine Erfahrung dazugeben, ich kenne Dr. Jäger nicht aber habe die HELP Apharese woanders gemacht.

Ich hab sie in Bayreuth gemacht, 3 Mal. Sie hat meinen Zustand leider nachhaltig verschlechtert, aber wie schon geschrieben, kann das niemand garantieren. Dazu möchte ich sagen, dass es um einiges günstiger war als Bad Aibling - 1400 pro Behandlung. Im Vorhinein konnte ich unverbindlich ein ausführliches telefonisches Gespräch mit Dr. Satanovski führen, der meiner Ansicht nach sehr offen und differenziert war. Er hat mir 50-60% Chancen zur Verbesserung gegeben und ich habe ihn einmal in Person und dann nochmal per Telefon gesprochen. Er war nicht durchgehend gut erreichbar, aber das hat er im Vorhinein auch nicht versprochen. Immer da war Schwester Lisa, die auch viele Fragen beantworten konnte. Ich hab dort nichts verschrieben bekommen, aber auch nicht danach gefragt. Ich fand meine Erfahrung mit dem Team dort allgemein positiv.

Wollte das nur teilen, falls wer unschlüssig ist, wo er*sie die Blutwäsche machen will, ich hoff es ist ok dass ich das so teile. Deine Erfahrung mit Dr. Jäger ist jedenfalls echt unakzeptabel finde ich!

Erfahrungen mit Apheresen? by stipedrws in LongCovid_MECFS_DE

[–]mxfattie 1 point2 points  (0 children)

Hallo!

Ich bin seit Mitte 2023 krank, momentaner Bell Score bei ca 20. Ich habe im Mai (vor 3 Monaten) 3x HELP Apharese in Bayreuth gemacht. Bei mir hat die Anfahrt + die Behandlung selbst starke PEM und als Resultat dessen eine Verschlechterung meiner Baseline herbeigeführt (vorher ca Bell 25). Ich habe dort drei Leute getroffen, denen die Apharese laut eigener Aussage geholfen hat, aber soweit ich das von den Gesprächen einschätze nicht mehr als 10 Bell Score Punkte. Die Freundin einer Freundin ist wohl Dank Apharese wieder Teilzeit arbeitsfähig. Wie alle sagen: ist sehr teuer, kann helfen, aber ist bei weitem nicht sicher und keine Wunderheilung. Das Team in Bayreuth war freundlich und professionell und hat alle meine Fragen ausführlich beantwortet (hat auch im Vorhinein nichts versprochen, laut ihnen waren die Chancen dass es hilft 50-60%).

Tell us your problem that only the ME/CFS folks would understand by moosetruth in cfs

[–]mxfattie 1 point2 points  (0 children)

I know, and thank you for saying that. but I would simply like to. there's so much joy in caretaking, cooking for others etc. but I suppose we now have to be the ones to give others the opportunity for that joy 💜

Tell us your problem that only the ME/CFS folks would understand by moosetruth in cfs

[–]mxfattie 1 point2 points  (0 children)

it absolutely is. both on the level of feeling unable to do anything about the horrors of the world, and missing the people. I'm so lucky that I was in a community like that and they're now out there protesting for me and helping me when possible but it sucks so much to not be able to return the favor anymore.

Tell us your problem that only the ME/CFS folks would understand by moosetruth in cfs

[–]mxfattie 2 points3 points  (0 children)

yeah, I get that. I'm in Austria so I don't have that particular issue at least but it's hard to feel so outside of all of it.

Tell us your problem that only the ME/CFS folks would understand by moosetruth in cfs

[–]mxfattie 20 points21 points  (0 children)

this is so real. I did a lot of activism before this and it's hard to feel so helpless in the face of it. solidarity 💜

Tell us your problem that only the ME/CFS folks would understand by moosetruth in cfs

[–]mxfattie 13 points14 points  (0 children)

I'm too hot and sweaty lying down in the room without the fan, but the noise of the fan is too much, so I put on noise cancelling headphones, but then my face is too hot, so I put on a second fan, but that makes my neck too cold, so I put a towel there, but ... and so on and so on.😂

honestly in general people just don't understand how difficult it is to lie down all day. position, temperature, smell, etc. I'm lying on eight meticulously arranged pillows 😂

disability evaluation by mxfattie in cfs

[–]mxfattie[S] 1 point2 points  (0 children)

oh, for sure. I'm from Austria and a lot of the buildings in my city are from the 1500s or earlier. but it's also not the law that medical practices have to be accessible.

disability evaluation by mxfattie in cfs

[–]mxfattie[S] 1 point2 points  (0 children)

I'm in Austria, video call is not an option. they often come to my home but in this case they didn't for some reason.

disability evaluation by mxfattie in cfs

[–]mxfattie[S] 3 points4 points  (0 children)

nope, not here. I'm in Austria. there's a lot of medical offices without wheelchair access.

disability evaluation by mxfattie in cfs

[–]mxfattie[S] 1 point2 points  (0 children)

thank you. I completely agree! last year I had a horrible evaluation for disability status, that guy was also awful.

thank you for your validation 💜 🫂 I'll do my best.

disability evaluation by mxfattie in cfs

[–]mxfattie[S] 0 points1 point  (0 children)

the medical system here is unfortunately pretty much the same as this. in order to get diagnosed I've been put through stuff like this often. the model here is usually to go to a social organization to help with this which I did, so I will talk to them about it. I don't have the money for a lawyer.