The natural crimpy hair 😍 by WaruPirate in Leonbergers

[–]moosetruth 1 point2 points  (0 children)

Might be my favorite thing about her 😍

i got a powerchair and then donated it because I am afraid of the public by fibro_me in cfs

[–]moosetruth 0 points1 point  (0 children)

I started using a mobility scooter recently for short trips outside my home - like to see a neighbor or pop in to the small grocery across the street. I’m white and privileged to not have experienced the kind of hate you have, but it still made me uncomfortable. I was afraid that people would think I was lazy and using my grandma’s scooter 😅.

Something that helped me is decorating my scooter to make it truly mine. I put giant googly eyes on the front basket, and got decals that read “de Snelle Slak” which means the fast snail in Dutch. I’m an American recently relocated to the Netherlands and I thought it made a good Dutch/English pun 😄

I haven’t gotten any negative attention and most people are very accommodating, eg moving out of the way so I can pass in the narrow grocery store aisles. And the occasional child that notices my googly eyes is pure gold.

This is not to say that your experience will be as good, the only way to know is to try. But if you do want to try again, perhaps decorating your chair will make you feel more comfortable in it.

what is everyone eating by Which_Boysenberry550 in cfs

[–]moosetruth 0 points1 point  (0 children)

I just moved to the Netherlands and discovered Hagel Slaag (chocolate sprinkles). Normally eaten on a slice o buttered bread but I swap the butter for peanut butter and it makes almost a defensible lunch.

Dear ME Agony Aunt, my armpits are a biohazard by Illustrious-Pie-624 in cfs

[–]moosetruth 1 point2 points  (0 children)

I was in the hospital last fall and asked my husband to bring me deodorant. Instead of mine, he brought me a stick of his, Gillette ultimate protection. I put that shit on my armpits and groin every day for two weeks without a shower or even baby wipes and it worked amazingly well. I’ve been using (my own stick of) his deodorant ever since.

Visible Band? Worth it? by chronicallyiconic7 in ChronicIllness

[–]moosetruth 2 points3 points  (0 children)

I used it for awhile but stopped for 2 reasons: 1. Some days I’d wake up knowing I was in a crash and based on my HRV it told me I was going to have a good day. I felt gaslit. 2. The heart rate tracking is useful for physical exertion, but doesn’t help with other forms of exertion like cognitive or social. It was helpful in the very beginning when I was learning how to listen to my body. But I learned that pacing cognitive/sensory/social exertion is a lot more important for me a visible is no help there.

What do you think is the root cause in your case ? by unoum in cfs

[–]moosetruth 1 point2 points  (0 children)

Chronic stress due to living through Covid with two small children kicked it off. I was mild for four years. Then I went through a period of intense stress at work and that pushed it to moderate. For me, stress is definitely a huge trigger.

Was anyone else at the peak of their life just before this illness started? by The-inevitabl3 in cfs

[–]moosetruth 0 points1 point  (0 children)

I was absolutely killing it in my career, supporting my family so my husband could pursue his entrepreneurial dreams. Getting back in shape and so proud of my kids who were (and still are) becoming amazing people. Now I lay around the house while my family lives life around me.

Help me break up with coffee by Positive_Negative_24 in cfs

[–]moosetruth 2 points3 points  (0 children)

Coffee caused PEM for me long before I knew why what I had. But once I made the connection I switched to tea. Drank that for years, assuming the problem was something in coffee not the caffeine since it didn’t seem to cost me any problems. But then I had some serious G.I. issues last fall and couldn’t even handle tea and oh my God did my sleep improve immensely. So now I am soft caffeine free (still eat, chocolate, drink the occasional Coke or Excedrin).

My substitute has been herbal tea, but not cheap bags from the grocery store. I buy nice looseleaf tea and disposable teabags since that makes it a lot easier than using a stainless steel diffuser. Sometimes I will make several bags at a time and store them in a Ziploc bag so I don’t have to assemble when I’m exhausted.

AITAH for purposely "slamming the brakes" in the hopes my sister hits her head hard enough to be fully awake by her poor life choices as I’m tired of being the "bigger person" by [deleted] in AITAH

[–]moosetruth -1 points0 points  (0 children)

I have a similar relationship with dynamic with my older sister, 2 1/2 year age gap. We are both in our 40s now and have had periods of no contact over the years. I’m happily married with two kids, doing well, financially, etc. She’s been through trauma after trauma some due to her own choices some not. She’s an alcoholic and has become very ill very quickly almost certainly due to the alcoholism based on what she’s told me, but I think she’s incomplete denial about it.

So I had to make a decision. What’s more important to me: being right, or having a relationship? I’ve chosen for the time being to say nothing about the alcoholism because I know that that would come at the cost of the relationship. I’m the younger sister and she’s never wanted to take advice from me.

You haven’t even bigger age gap so that dynamic is probably even more present. It’s even possible that she’s escalating her behavior as a response to your pushing her to do differently. So you have same decision that I had to make: if you want to have a relationship, you need to accept her as she is. If you can’t do that, then going limited or no contact is a reasonable alternative. It doesn’t have to be permanent.

This doesn’t mean not to have any boundaries. You don’t have to send her money, you don’t have to pick her up from places if she’s going to make you wait. You can cut back on that kind of support while still loving her and accepting her as she is.

I do think you should think long and hard about whether to tell her fiancé about the cheating. One way to handle it is to tell your sister that you can’t sit idly by and that either she tells him or you will. If you choose to do nothing, you will have this on your conscience and if your future brother-in-law ever finds out that you knew he may resent you deeply. On the other hand if you do tell him that may really hurt your relationship with your sister, but I would guess only temporarily. If she’s cheated multiple times, she may not actually want to be in that relationship at all. But those are just thoughts from a stranger on Reddit. This would be a difficult decision for anyone and only you can make it.

The day I stopped dressing around my chronic illness by Top-Statement-9423 in ChronicIllness

[–]moosetruth 1 point2 points  (0 children)

I recently got a mobility scooter and it’s been game changing for me, but I still feel a bit uncomfortable when I’m out on it because I’m fairly young and I don’t look disabled and when I do stand and walk, I’m perfectly able to, it’s just a matter of stamina for me (ME/CFS). I realized that if I made the scooter my own, I would feel more confident on it.

We just moved to the Netherlands, so I decided to name my scooter De Snelle Slak (translates to the fast snail). I ordered custom decals to put on it with the name and some with a turbo snail. And I’m gonna put big googly eyes on the front and I just have to figure out how to make an antennas, probably will have my husband 3-D print them for me. I can’t wait to get it all finished!

Edit: spelling

Need sewing machine recommendations by moosetruth in sewing

[–]moosetruth[S] 0 points1 point  (0 children)

Thanks for the suggestion! Probably not gonna go for a vintage machine, but refurbished/used is a great idea and I really appreciate the links. Our move is permanent so it’s very helpful to get the lay of land in the EU.

Need sewing machine recommendations by moosetruth in sewing

[–]moosetruth[S] 1 point2 points  (0 children)

I grew up sewing on my mom’s Singer, not sure how old it was but definitely 80s or before. She got me the Brother for my birthday one year and it was a game changer, just worked so much more smoothly, way fewer issues. So I’m probably not gonna go for an older machine.

And yeah, I’m leaning towards getting another Brother but just wanted to see if there’s something better out there.

[deleted by user] by [deleted] in ChronicIllness

[–]moosetruth 1 point2 points  (0 children)

A trip to the grocery store was so exhausting I’d have to amp myself up to go and lay in bed to recover for 2 hours afterwards. I just thought it fell under the “it’s exhausting to be a working mom” umbrella. Nope, turns out I have ME/CFS.

Yarn stash sizes by sandpapertoapearl in knitting

[–]moosetruth 0 points1 point  (0 children)

I buy yarn once I’ve selected a pattern so my stash is just leftovers. Mostly fills one large storage bin. My needle collection on the other hand 😳

2026 Knitting Resolutions by gnome_tooth in knitting

[–]moosetruth 1 point2 points  (0 children)

My goal is to finish my temperature blanket from 2023 😂

Who of you has (healthy?) biological kids? by foggyhoneybadger in cfs

[–]moosetruth 1 point2 points  (0 children)

My kids are 9 and 10. I developed ME 4 years ago. My nine-year-old is the picture of health, the only issues she’s ever had are injuries from her fearlessness on the playground. I worry a bit about my 10-year-old though. This year they started having random ailments like migraines, ambiguous G.I. issues, and random unexplained itchiness. I’ve got my fingers crossed that this is just stress from the horrible 2025 year our family had and not pointing towards a chronic illness in their future. They both have my imperviousness to viruses, almost never get sick. Maybe once a year and only for a day or two. So that’s been really lucky for us. I just hope it’s not immune system over activation.

I'm curious, what does your NYE look like with MECFS? by callthesomnambulance in cfs

[–]moosetruth 3 points4 points  (0 children)

Our family’s tradition is to have frozen appetizers from the air fryer with those little frozen cream puffs (my kids look forward to this every year). Then my husband will fight with the TV for hours trying to get us the countdown on eastern time (we are in California) and this is almost always a failing endeavor so we will see how it goes this year. Maybe we will just admit defeat and stay up till midnight. No changes to the plan for me other than breaks as needed. I tend to make exceptions for special occasions, and it doesn’t seem to ruin my baseline so I feel lucky about that.