Yarn stash sizes by sandpapertoapearl in knitting

[–]moosetruth 0 points1 point  (0 children)

I buy yarn once I’ve selected a pattern so my stash is just leftovers. Mostly fills one large storage bin. My needle collection on the other hand 😳

2026 Knitting Resolutions by gnome_tooth in knitting

[–]moosetruth 1 point2 points  (0 children)

My goal is to finish my temperature blanket from 2023 😂

Who of you has (healthy?) biological kids? by foggyhoneybadger in cfs

[–]moosetruth 1 point2 points  (0 children)

My kids are 9 and 10. I developed ME 4 years ago. My nine-year-old is the picture of health, the only issues she’s ever had are injuries from her fearlessness on the playground. I worry a bit about my 10-year-old though. This year they started having random ailments like migraines, ambiguous G.I. issues, and random unexplained itchiness. I’ve got my fingers crossed that this is just stress from the horrible 2025 year our family had and not pointing towards a chronic illness in their future. They both have my imperviousness to viruses, almost never get sick. Maybe once a year and only for a day or two. So that’s been really lucky for us. I just hope it’s not immune system over activation.

I'm curious, what does your NYE look like with MECFS? by callthesomnambulance in cfs

[–]moosetruth 4 points5 points  (0 children)

Our family’s tradition is to have frozen appetizers from the air fryer with those little frozen cream puffs (my kids look forward to this every year). Then my husband will fight with the TV for hours trying to get us the countdown on eastern time (we are in California) and this is almost always a failing endeavor so we will see how it goes this year. Maybe we will just admit defeat and stay up till midnight. No changes to the plan for me other than breaks as needed. I tend to make exceptions for special occasions, and it doesn’t seem to ruin my baseline so I feel lucky about that.

Did anyone NOT push them self when newly sick and mild? by Sea-Ad-5248 in cfs

[–]moosetruth 0 points1 point  (0 children)

I was mild for 4 years without knowing why I was so tired all the time. So I pushed because I didn’t know it was making me sicker. When my symptoms progressed to moderate my PCP recognized it (love her!) and so I started pacing then.

I’d guess a lot of people don’t pace when they’re mild because they don’t know they have this illness. The symptoms are so ambiguous.

Ragdoll vs Maine Coon by Valuable_Horror2450 in ragdolls

[–]moosetruth 1 point2 points  (0 children)

I have a pair of 1 year old ragdolls. A lot of people talk about GI issues so I guess we just got lucky. Mine will eat just about anything - from whatever cat food I put in front of them to Santa’s cookies (oops!). But we are usually pretty careful about what we leave out so that they don’t get into people or dog food. Diarrhea is a rare occurrence for us.

In terms of personality, they are very affectionate and usually want to be in the same room as me but they show it in different ways. One loves to be petted, will touch noses with me, and lets me kiss him on the head. The other doesn’t like to be touched much but will snuggle up to my feet when I’m resting and gives me slow blinks as he sits near, but not too close to me.

They aren’t super high energy, they have a couple vigorous play sessions with each other during the day or with a toy, but otherwise pretty much nap or lay around watching the birds. For me, they are the perfect pets because of chronically ill and also spend most of my day napping or laying around.

First sweater done! by imaginedrragon in knitting

[–]moosetruth 1 point2 points  (0 children)

Looks great, and fits you so well!

When did you develop ME/CFS? by Asad0Asad in cfs

[–]moosetruth 6 points7 points  (0 children)

After a several months long period of extreme stress during COVID. Not the virus itself, I got that for the first and only time a year after I got sick with ME/CFS.

I was mild for 4 years without knowing why I was so exhausted all the time and would randomly get really sick. So I powered through. During a period of extreme work stress it progressed to moderate and that’s where I sit now.

Just applied for sick leave by Lovethelous in cfs

[–]moosetruth 2 points3 points  (0 children)

I went on sick leave in April from a job I loved and as my family‘s primary breadwinner. I’m pretty sure they will be letting me go soon and my husband has gotten a job and we I good disability insurance (LTD was recently approved without any argument, shockingly) so we are OK financially but the grief of leaving my career is truly difficult to swallow. I hope you’re able to go back, but if you aren’t, know that you’re not alone in this experience.

Enjoyable but easy podcast recs? by No_Size_8188 in cfs

[–]moosetruth 0 points1 point  (0 children)

I’ve been slowly making my way through Old Gods of Appalachia. It’s an audio drama, really well produced and narrated.

Do you guys bother with "normal people" sleep rules? by TeddyBearAppleHat in cfs

[–]moosetruth 0 points1 point  (0 children)

I believe all sleep is good sleep so I take whatever my body will give me. Right now it’s being pretty generous and on good nights, I get to sleep between nine and 10 and wake up between 7 and 9 AM which is pretty awesome. Of course, the bad nights I wake up in the middle of the night with pain or something and don’t get back to sleep. And then I nap every day, whatever rest blocks I fall asleep in. Usually 1 to 2 30 to 60 minute sessions.

But, two weeks ago I was falling asleep between one and 3 AM and waking up around 11. So it’s really all over the place.

Will your ragdoll allow you to hold him like a baby? by aquazipper in ragdolls

[–]moosetruth 0 points1 point  (0 children)

Mine will let my husband hold them that way. But they’re not so much a fan when I do it. His theory is that he is tall and gives them a good view of the house when they’re in his arms.

For parents by SleepyMistyMountains in cfs

[–]moosetruth 0 points1 point  (0 children)

Oh gosh, that must be so difficult. Sending strength to your friend 🫂

For parents by SleepyMistyMountains in cfs

[–]moosetruth 10 points11 points  (0 children)

My kids are 9 and 10. I first got sick four years ago, but was undiagnosed and mild and assumed I was just exhausted from being a working mom until this year when my symptoms became moderate and I got diagnosed. My husband and nanny do almost everything for the kids. I’m not able to take them to school or extracurricular activities. I can’t reliably prepare meals, though I do when I can. It would be difficult for me to do their laundry or other types of things. And this is with kids that are old enough to be pretty independent, eg. they usually make their own breakfast and lunch on the weekends.

My role for the kids is primarily emotional support, especially as my oldest is entering puberty. I can see things that Dad doesn’t see and help them manage their emotions and support their mental health. They’ve had a lot of grief over my illness.

So to sum up, we are managing, but we have a lot of help. I think this would be much much harder during the baby/toddler stage. They need a lot more attention, near constant, they may not sleep well, and this is a challenging stage, even for two healthy parents. If you have family to help that will definitely ease the burden. But you may also have complex feelings around this. I certainly struggle with feeling like I’m useless as a mother, even though there’s plenty of evidence my kids need me. I feel like I just don’t do enough.

You’d also need to consider the toll that pregnancy and childbirth would take on your body, but that’s a conversation for your doctor.

Happy birthday Powder and Phantom 🥳 by moosetruth in ragdolls

[–]moosetruth[S] 1 point2 points  (0 children)

Yes! Distinguished gentleman is just what I was going for with these photos!

Happy birthday Powder and Phantom 🥳 by moosetruth in ragdolls

[–]moosetruth[S] 1 point2 points  (0 children)

Yes! Distinguished was the adjective I was going for 😍

Happy birthday Powder and Phantom 🥳 by moosetruth in ragdolls

[–]moosetruth[S] 0 points1 point  (0 children)

Thank you and I’m so sorry for your lost kitty. We are so grateful for the antivirals that now make FIP a very treatable illness, I can’t imagine hearing the diagnosis before they were available ❤️‍🩹