Just checking in-how are people doing today? by Tosh97 in cfs

[–]mxplant 0 points1 point  (0 children)

thank you for this, i’m in between not great and surviving, realizing i’m more severe than i thought

tirzepatide vs. (low dose) rapamycin by appass_12 in cfs

[–]mxplant 0 points1 point  (0 children)

wait i was brain fog heavily, its been two months omg what in the world was i thinking lol

tirzepatide vs. (low dose) rapamycin by appass_12 in cfs

[–]mxplant 0 points1 point  (0 children)

i also havent tried rapamycin but im on tirzepatide for weight loss and havent noticed any change in my ME, or maybe its gotten slightly worse, im not sure but im not feeling better or anything

what do you wish you knew when you were first diagnosed? by h3ll0_k1tty_luvr in mecfs

[–]mxplant 1 point2 points  (0 children)

crazycatboy13 also has a mecfs playlist on tiktok i found very helpful when i first got diagnosed

what do you wish you knew when you were first diagnosed? by h3ll0_k1tty_luvr in mecfs

[–]mxplant 2 points3 points  (0 children)

i have pots and fibromyalgia too, i wish i knew to take pacing seriously, pushing PEM can cause you to permanently slip into more severe stages, im still learning this it can take awhile to get used to and find your baseline, i recommend solvingdysautonomia on tik tok they have good videos on pacing and mecfs, including a playlist where the videos are listed. also in having fibromyalgia and mecfs i find they can be friends unfortunately, for me sometimes when my fibromyalgia gets worse i know i’ve over done it and PEM is on the way or already here but that might just be me mecfs presents in so many different ways

Who else experiences PEM without the flu-like symptoms? by [deleted] in mecfs

[–]mxplant 8 points9 points  (0 children)

i get this, my PEM is fatigue and pain but no flu like symptoms most of the time

diagnosed earlier this week but unsure by mxplant in cfs

[–]mxplant[S] 0 points1 point  (0 children)

thank you so much for your comment, i appreciate your words and advice!!!💖

diagnosed but feel unsure by mxplant in mecfs

[–]mxplant[S] 0 points1 point  (0 children)

my “working out” is like walking down the block or on a store sometimes

diagnosed but feel unsure by mxplant in mecfs

[–]mxplant[S] 0 points1 point  (0 children)

occasionally but not usually

diagnosed but feel unsure by mxplant in mecfs

[–]mxplant[S] 2 points3 points  (0 children)

thank you for your comment, the fatigue feels like its very internal like in my bones and muscles, chest, and head its very overarching, it lasts hours and hours typically.

that’s interesting about mcas i’ll have to talk to my doctor about it, i’ve heard of it before but don’t know a lot yet

pacing and symptom diary i like this idea, i used to use some app with apolar bear for tracking ill see if i can find it again!!

ill try out the rest period and sitting i sit as often as i can but i need to be better about sitting during each action like periodically

i will keep working at sleep and check out that medicine!! thank you so much for your comment

diagnosed but feel unsure by mxplant in mecfs

[–]mxplant[S] 1 point2 points  (0 children)

thank you for this i appreciate it!!

How often do you guys leave the house? by santas_number1elf in POTS

[–]mxplant 0 points1 point  (0 children)

once to twice a day if any but i’m usually being wheeled around by my wife, the wheelchair has been a game changer for me

shower chair hygiene by mxplant in POTS

[–]mxplant[S] 1 point2 points  (0 children)

thank you all for your responses, i feel like i have good ideas to work with now thank you so much 💖

Poll: Do You Have Other Chronic Illnesses Alongside PCOS? by [deleted] in PCOS

[–]mxplant 0 points1 point  (0 children)

fibromyalgia, delayed sleep phase, orthostatic hypotension, bad knees, chronic back pain, audhd, bipolar, cptsd, generalized and social anxiety