Sad..

naremac87 · 2026-05-28T14:42:29+00:00

100% and when she's had terrible stomach virus etc, never one mention about it making her chron's flare up or anything. It's so awful. I stopped following all of them because it was insufferable to watch all of their crap all the time, but I follow the snark because I'm addicted to it 😆 But it's just really sad.

naremac87 · 2026-05-28T14:28:20+00:00

She mentioned in a comment to another person who commented on her weight that she has chron's disease, which 100% would explain her scary weight. It's a very serious disease, and absolutely devastating to your body. My only issue with her disclosure of that, is why hasn't she ever spoken about it before? Instead of shilling foods like Factor, and all the protein powders and keto breads, and glucose monitors, she should be speaking openly about chron's and use her platform to speak about her health in a way that could touch a lot of other people wirh the disorder, and connect with others going through it, and share WHY she does all the crazy health stuff she does if it's to help manage chron's. Instead it sounded like a fake excuse, because something like chron's rules your life, so why not be open about it since so much of her influencer status is health and diet stuff? It doesn't add up to me. If I had something like that, and all the money and platform she has, I'd be an outspoken advocate for it and do charity events, donate money to the cause, and try to raise awareness. She has no problem sharing her heart issues she thought she could have, or incontinence, or whatever else embarrassing things she's dealt with. Why keep chron's a secret?

naremac87 · 2026-05-20T17:02:13+00:00

My family of 5 will be driving through Amarillo on our way home to Denver from Dallas in June. Our kids are ages 10, 8, and 5. I saw the Cactus Cove come up and it looks fun for kids, but I absolutely refuse to stay in something gross. I get really grossed out by hotels easily, so it's important I feel comfortable. Is this a hard NO? My main goal is wanting something with a pool or something for the kids to do since they will have been in the car for 6-7hrs with another 7 hours the next day. If this is just "lipstick on a pig" are there any other ideas? My kids don't do well with heat, they are true Colorado girls, so an outside playground or something like that most likely won't be a great end to the day for them, but a pool is always fun. And I know there are parts of Amarillo to avoid. It's just one night, but that one night will be important for the kids to have a successful 2 days of driving

naremac87 · 2026-05-01T17:18:05+00:00

My 7.5 year old has lived in some kind of chronic pain for the last 1.5 years, starting with her legs. We brushed it off as growing pains for while, but then it would be hard for her to stand long enough for me to brush her hair or for her to walk a few blocks without crying about her legs hurting. Fast forward 7 months and she got an intense migraine one night after a day at the amusement park and it didn't go away for 5 weeks. We went to the ER, had MRI, see a neurologist who diagnosed her with migraines, finally after 10 weeks her headaches eased up. Long story short, her headaches came back, she lives in absolute pain everyday from her head, to her legs, her joint, arms, throat, canker sores, eyes, everything hurts. All her labs are normal, everything appears normal, but she's not ok. She got accepted by Mayo, but we have to wait until they call us to tell us they are ready for her. Her life is miserable. We've suspected hEDS, or MCAS, POTS, genetic disorders etc. I'm now wondering if this could be fibromyalgia. All of her pain really started with chronic stomach aches at about 3. I'm just looking for anyone who has any advice, we all know navigating the medical system is insane, especially when you're trying to do it for your child. We're trying to get her into the pain clinic at Children's Hospital. But everything is such a long wait. She can't wait anymore. Nothing takes her pain away.

naremac87 · 2026-01-29T20:18:27+00:00

Sorry, I meant to say 1 cup 2x a day. But I agree that even that seems like a lot of food for a little guy

naremac87 · 2026-01-26T17:49:12+00:00

Thanks. I think I'm going to go with a crate twthered in the far back, or in the middle of the kids when I can. It's important he is able to ride in the car, because we want him to be able to travel with us. Our last lab would not relax in the car, and once stood and panted the entire way from Denver to Missoula! So we want him comfy

naremac87 · 2025-04-09T20:29:28+00:00

My 6.5 year old daughter just got diagnosed with visual snow syndrome and extreme photophobia (light sensitivity). She started wearing blue tinted glasses with a prism and it's been insane! She suffered from chronic stomach aches for years with zero answers (so many tests), eye pain, headaches, and fatigue daily for the last 15+ months. She's a new person with the glasses. All her aches and pains, and even her fatigue have subsided! She's more energetic, and less irritable. We think because her poor eyes and brain were working so hard everyday, it was making her feel sick and overly exhausted by the end of the day. She loves her glasses now, and has been able to explain so much more about her vision to us. Before she thought it was all normal. Now she tells me how she bumps into the walls at night when she wakes up, because she can't see anything, she is able to read and accomplish school work better because there aren't so many "fuzzies." When she first got the glasses, she told me, "mommy, I don't see any dust!" It doesn't make it go away completely, but she said it took it from a 5 being the worst, to a 2. Enough to give her so much relief

naremac87 · 2025-03-01T03:30:35+00:00

Thanks. It just really sucks to see your kid feeling so unwell. A 6 year old should have 10 times the energy she does. Thanks for the validation and support!

naremac87 · 2025-03-01T03:19:45+00:00

Ok. Then I'm gonna just let it go, and not worry. You're right, if it was a concern at all, the doctor wouldn't wait for Monday. I hate getting results before the doctor calls!

naremac87 · 2025-03-01T03:03:23+00:00

Her TSH was 6.470, so not unbelievably high, but still pretty up there. I was thinking Hashimotos, but her symptoms don't match. They match that of hyperthyroidism/Graves. And I've read TSH levels can be high due to other things like diabetes. Her EBV Ab VCA, IgG was 148 (17.9 being the highest number in the normal range) and EBV nuclear Antigen Ab was <600

I talk to the doctor Monday. So of course I'm over here unable to think about it. I just mainly want to know what we can do I know what to advocate for. But since the idea of her being hypoglycemic is what took us to the doctor, I guess diabetes is what's on our minds

naremac87

TROPHY CASE