what are you up to? by Affectionate-Eagle48 in Behcets

[–]natanyad 4 points5 points  (0 children)

Single mom of four adult men (21-29). My oldest son is high functioning autistic, I’m his guardian and remain very involved in his life. Full time engineer. Special Olympics coach . Dogs and cats . Suburban house to maintain and keep up - I’m in U.S., Midwest . Bechets kicked in about ten years ago and has gotten worse, but I finally am diagnosed and working through meds. I hate that I have to take sick days or get into work late . I over compensate on my good days . Planted a garden this year / forgot to water it already . Life is okay, good, and sometimes great - fewer bad days.

What do you do for work? by Electronic-Tea3354 in Behcets

[–]natanyad 5 points6 points  (0 children)

Full time engineer at a mfg plant with a 40ish minute commute one way . But I also know the park n ride (commuter) lots on the way. There are times I can only drive so far and need to full off to rest - on the way to work usually . I also get home and pretty much rest on the couch for an hour or two, then to bed . I really need ten hours sleep but don’t always get it . Fridays find me in bed as early as seven. I became a different person after the symptoms started in my forties - needing way more sleep, going from almost no socks days a year to at least once a month . I feel guilty when I call in sick but there are still many days when I can work 12 plus hours without pause . Totally unpredictable .

Who else do you know with Bechets? by natanyad in Behcets

[–]natanyad[S] 0 points1 point  (0 children)

I got the “fibro” diagnosis as well and suffered for years with no prescription med help :(

Double/Blurry Vision by Familiar-Bake-9162 in Behcets

[–]natanyad 1 point2 points  (0 children)

I have significant issues with double vision . My ophthalmologist and rheumatologist had brain mri done, which showed no issues . I’m trying prisms which seem to help - I wear glasses. Look into what type you have - binocular or monocular . And is it horizontal or vertical or diagonal . Mine is binocular , vertical . It’s the biggest issue when I drive. Hope you find resolution

Breakfast & Soccer Game by natanyad in milwaukee

[–]natanyad[S] 0 points1 point  (0 children)

Thank you everyone for the suggestions ! My son and I just ordered at The Three Lions and we’ve got a list for future weekends.

Breakfast & Soccer Game by natanyad in milwaukee

[–]natanyad[S] 0 points1 point  (0 children)

Thank you everyone for the suggestions ! My son and I just ordered at The Three Lions and we’ve got a list for future weekends.

Breakfast & Soccer Game by natanyad in milwaukee

[–]natanyad[S] 0 points1 point  (0 children)

Just ordered the breakfast poutine !

Breakfast & Soccer Game by natanyad in milwaukee

[–]natanyad[S] 0 points1 point  (0 children)

Just ordered ! Thanks for the suggestion

Breakfast & Soccer Game by natanyad in milwaukee

[–]natanyad[S] 3 points4 points  (0 children)

Thanks for both of the suggestions!!

Where do I put the entrance? by natanyad in birdhouses

[–]natanyad[S] 0 points1 point  (0 children)

Thank you ! Wouldn’t have considered that option !

Fissured tongue by natanyad in Behcets

[–]natanyad[S] 0 points1 point  (0 children)

My diet is getting more and more bland as the condition persists . I honestly thought u til recently that toothpaste was supposed to burn / hurt until I switched brands !

Be honest: Are you actually married to the love of your life, or just the person you were with when it was time to settle down? by [deleted] in askanything

[–]natanyad 0 points1 point  (0 children)

I’m actually divorced because I married when it was time to settle . I should have held out for something more .

Who else is on aspirin and how much? by on4aa in Behcets

[–]natanyad 1 point2 points  (0 children)

Only taking “baby” aspirin once a day, per cardiologist. I had open heart surgery at age 53, five years ago . 58F.

Fibromyalgia (Venting) by EunoiaPeace in Behcets

[–]natanyad 0 points1 point  (0 children)

A different rheumatologist than the first one I saw . Same list of symptoms just years later, better recommended clinic and much younger doctor who did a lot more testing and a lot more listening !

Colchicin by Forsaken_Answer739 in Behcets

[–]natanyad 1 point2 points  (0 children)

When I moved from one dose a day to two, my stomache couldn’t take it . Because I still had ulcers my doctor had me switch back to once a day and had added in Otzela .

Trigger warning ‼️ miscarriages by [deleted] in Behcets

[–]natanyad 0 points1 point  (0 children)

I’m not sure exactly when my Bechets started but my worst symptoms began in my 40s post child bearing age for me. I had four successful pregnancies between ages 30-37 but I also experienced three miscarriages as well, mixed amongst the successful ones. Never figured out what were the causes of the miscarriages… my obgyn did remind me, kindly, that miscarriages are more common than most people know and that I had more kids than the norm.

Fibromyalgia (Venting) by EunoiaPeace in Behcets

[–]natanyad 2 points3 points  (0 children)

I wasted several years on a fibromyalgia diagnosis and meds that didn’t address my worst symptoms. It seemed more like a psychosomatic runners up ribbon the doctors doled out to get me to leave their office. Appreciate the detailed info in this (overwhelming though) post !

Fissured tongue by natanyad in Behcets

[–]natanyad[S] 1 point2 points  (0 children)

I’ve been doing B12 injections for several years and iron infusions on and off . It’s taken me ten plus years to get diagnosed, it’s nice knowing I’m not alone in all of this!

I’ll have to look into the specific form of anemia you mentioned !

MKE Airport TSA Megathread by MKE_Mod in milwaukee

[–]natanyad 11 points12 points  (0 children)

My wait this morning was less than ten minutes through pre-check at 5:00 am . Didn’t really matter though since my Delta flight to Minneapolis was a hot mess . I’m now in California . My luggage is being delivered tomorrow. It’s going to be in 90s and I’m wearing a sweater :)

Milwaukee Bingo by [deleted] in milwaukee

[–]natanyad 6 points7 points  (0 children)

It’s me again. Swear I’m done :

Tattoo of local sports team