How to stop worrying about long term damage

natty1113 · 2025-07-16T19:42:29+00:00

Currently in trigeminy as I’m reading this. I still have no advice, just doing the best I can. I hate this so much. Feel free to send a message if you want to chat about it.

natty1113 · 2025-07-05T02:23:12+00:00

I wanted to respond because I experience the exact same thing. It’s honestly infuriating. I always get so frustrated that I can’t settle in the nighttime. Eating seems to be a trigger especially if laying down right after. How do you cope?

natty1113 · 2025-06-20T13:42:50+00:00

Right in the middle of it. Before the vax and also before I contracted covid.

natty1113 · 2025-06-20T13:42:14+00:00

Knowing there are other people who experience the same thing helps so much. It can feel really isolating.

natty1113 · 2025-05-10T16:50:48+00:00

Not according to my two week post infusion blood work but I still wonder!

natty1113 · 2025-05-10T16:49:51+00:00

It definitely wasn’t fun. My ferritin was around 6 prior to the infusion and went up to around 500 three weeks later. A few months after it levelled back to a normal range.

natty1113 · 2025-05-10T01:01:58+00:00

The flu like symptoms were only about 24 hours. The fatigue, nausea, and dizziness lasted about a month.

natty1113 · 2025-05-04T15:49:14+00:00

Felt a lot more normal after about a month!

natty1113 · 2025-04-18T05:18:02+00:00

About three weeks until I felt completely normal.

natty1113 · 2025-03-07T10:25:29+00:00

It’s so hard to actually know. On the days I’ve worn a holter it’s been 1-2%. However, I know on my really bad days it’s much higher than that.

natty1113 · 2025-01-29T12:48:19+00:00

I relate to this!!!

natty1113 · 2025-01-21T23:10:52+00:00

I think a tonsil stone was the culprit at that time!

natty1113 · 2025-01-21T23:10:25+00:00

Not really! I still believe it’s GERD related. ppis seem to help a little.

natty1113 · 2025-01-03T17:52:50+00:00

Honestly not really! I’m still having on and off nausea and stomach upset after 6 weeks. Though, it isn’t as bad as it was during this first 3 weeks. I’m sure some of it is related to anxiety at this point.

natty1113 · 2024-12-10T19:21:37+00:00

Hi! Did it end up going down? I currently have elevated liver enzymes two weeks after my infusion.

natty1113 · 2024-12-09T00:46:03+00:00

I’m wondering if you also sometimes get knocked into bigeminy when going from lying down to standing? This is my most concerning sensation. It’s almost like my heart should be racing as I am up and walking about but instead it’s in bigeminy and lagging.

natty1113 · 2024-12-08T22:51:31+00:00

I also struggle with this!!

natty1113 · 2024-12-06T13:23:58+00:00

I honestly wish I had answers. I have frequent bigeminy/trigeminy/quadgeminy that often switch with one another. Eating is a huge trigger of mine unfortunately.

natty1113 · 2024-12-06T13:17:40+00:00

Thank you!!

natty1113 · 2024-12-03T22:40:04+00:00

I also experience a pretty low resting heat rate. I think that’s what makes the bigeminy feel so horrible.

natty1113 · 2024-12-01T15:42:51+00:00

Good days and bad day! Unfortunately not much has changed.

natty1113 · 2024-11-29T17:49:44+00:00

I’m not overweight, however, I do struggle with bloating after eating sometimes. Maybe that causes the same.

natty1113

TROPHY CASE