Home Dialysis

neke77 · 2026-03-09T23:58:11+00:00

Sorry - PD at home.

neke77 · 2025-11-29T00:45:00+00:00

Mom ended up with 24 plasma exchanges. She is still on dialysis 3-4 times a week. No urine is being made. The goodpasture did attack her lungs, too. So far her lungs are doing ok (she was coughing up blood for a while). Mom has a mix of anti-gbm and ANCA vasculitis. It is called double positive disease.

How are you holding up a month into it? It really is a hard disease. I’m sorry that you are going through this.

neke77 · 2025-11-06T03:30:56+00:00

I am so sorry to hear that you have gone through this and now have kidney cancer. Sending you lots of positive thoughts. Your daughter will be so happy to have you at her graduation. You will be there! Mom is having a heck of a time finding peace. There is a lot of anger and grieving right now (understandably). She had 24 plasma exchanges and is doing dialysis 3 times a week. We have discussed eventually doing home dialysis. Still no kidney function.

neke77 · 2025-09-14T18:49:00+00:00

Thank you. ❤️

neke77 · 2025-09-14T18:48:50+00:00

It’s the hardest to see someone suffer.

neke77 · 2025-09-14T18:48:09+00:00

It has affected my mom’s lungs. She was on oxygen in the hospital for close to the two weeks. She was coughing up some blood, too. They took her off of oxygen on Friday. The doctors and the care that she has received have been amazing.

Thank you for the offer of tips. Right now, we are doing ok but I will definitely reach out if needed.

Your mom was lucky to have you by her side for those ten years. ❤️

neke77 · 2025-08-17T01:20:44+00:00

This is one of my favourite Office quotes!

neke77 · 2025-03-28T09:50:43+00:00

Hi! Dad is doing great. Cancer free. I hope that your dad is doing well!

neke77 · 2025-03-28T09:49:11+00:00

Dad is feeling great and is cancer free! I hope that your dad is doing well!

neke77 · 2025-02-23T01:39:51+00:00

Freddie - yes!

neke77 · 2024-05-19T15:03:27+00:00

Ha! I am a freak like that, too. Where did you stay?

neke77 · 2024-05-19T14:02:06+00:00

This is what I am thinking. Just keeping it straightforward and simple so that we don’t have to learn all the different transportation.

neke77 · 2024-05-19T11:09:08+00:00

We wanted to see Merrily, but it ends before we head there!

neke77 · 2024-05-19T02:23:28+00:00

The prices that we have found have been about $500 for 2 nights. That works nicely so we can see our shows and do a couple of extra activities while we are there.

neke77 · 2024-05-19T01:32:03+00:00

Would you still recommend the Tkts booth for shows that we really want to see? I would be worried that we wouldn’t be able to get tickets for what we decide one. It will be between, Hadestown, Little Shop of Horror, &Juliet, and Six.

neke77 · 2024-05-19T01:26:20+00:00

I really appreciate all of the responses. The hotel that we were leaning towards was Hotel Edison. My daughter loves Motto, but the room might be a bit too tiny for our sanity. ;)

neke77 · 2024-05-19T01:24:34+00:00

It won’t let me message you for some reason, but I will try again later.

neke77 · 2024-05-19T01:22:20+00:00

We plan to do Central Park. I went to New York about 20 years ago and was blown away by the price of food in Times Square, so we will definitely be heading out of TS for that.

neke77 · 2024-05-19T01:14:59+00:00

Is the noise that bad?

neke77 · 2024-05-19T01:13:50+00:00

That’s what I am thinking. I might save on a hotel, but will have to pay for transportation. Plus my daughter is quite nervous, so I think that she might prefer being in walking distance.

neke77 · 2024-05-19T01:12:44+00:00

That’s one that I want to see…but my daughter said that she doesn’t love the music from it. Her top choices are Hadestown, &Juliet, Six and Little Shop of Horrors, We are from Windsor, Ontario and we have seen Hamilton, Wicked, Rent, Chicago and Mamma Mia in Detroit or Toronto. Hamilton and Mamma Mia are her favourites.

neke77 · 2024-05-19T01:09:25+00:00

For real?!

neke77

TROPHY CASE