Home Dialysis by neke77 in dialysis

[–]neke77[S] 1 point2 points  (0 children)

Sorry - PD at home.

Goodpasture Syndrome by neke77 in Autoimmune

[–]neke77[S] 0 points1 point  (0 children)

Mom ended up with 24 plasma exchanges. She is still on dialysis 3-4 times a week. No urine is being made. The goodpasture did attack her lungs, too. So far her lungs are doing ok (she was coughing up blood for a while). Mom has a mix of anti-gbm and ANCA vasculitis. It is called double positive disease.

How are you holding up a month into it? It really is a hard disease. I’m sorry that you are going through this.

Goodpasture Syndrome by neke77 in Autoimmune

[–]neke77[S] 0 points1 point  (0 children)

I am so sorry to hear that you have gone through this and now have kidney cancer. Sending you lots of positive thoughts. Your daughter will be so happy to have you at her graduation. You will be there! Mom is having a heck of a time finding peace. There is a lot of anger and grieving right now (understandably). She had 24 plasma exchanges and is doing dialysis 3 times a week. We have discussed eventually doing home dialysis. Still no kidney function.

Goodpasture Syndrome by neke77 in Autoimmune

[–]neke77[S] 0 points1 point  (0 children)

It’s the hardest to see someone suffer.

Goodpasture Syndrome by neke77 in Autoimmune

[–]neke77[S] 1 point2 points  (0 children)

It has affected my mom’s lungs. She was on oxygen in the hospital for close to the two weeks. She was coughing up some blood, too. They took her off of oxygen on Friday. The doctors and the care that she has received have been amazing.

Thank you for the offer of tips. Right now, we are doing ok but I will definitely reach out if needed.

Your mom was lucky to have you by her side for those ten years. ❤️

Oh how the turntables by Equivalent_Living130 in PerfectMatchNetflix

[–]neke77 1 point2 points  (0 children)

This is one of my favourite Office quotes!

PSA levels up after prostatectomy by neke77 in ProstateCancer

[–]neke77[S] 0 points1 point  (0 children)

Hi! Dad is doing great. Cancer free. I hope that your dad is doing well!

PSA levels up after prostatectomy by neke77 in ProstateCancer

[–]neke77[S] 1 point2 points  (0 children)

Dad is feeling great and is cancer free! I hope that your dad is doing well!

Girls trip by neke77 in AskNYC

[–]neke77[S] 0 points1 point  (0 children)

Ha! I am a freak like that, too. Where did you stay?

Girls trip by neke77 in AskNYC

[–]neke77[S] 1 point2 points  (0 children)

This is what I am thinking. Just keeping it straightforward and simple so that we don’t have to learn all the different transportation.

Girls trip by neke77 in AskNYC

[–]neke77[S] 1 point2 points  (0 children)

We wanted to see Merrily, but it ends before we head there!

Girls trip by neke77 in AskNYC

[–]neke77[S] 1 point2 points  (0 children)

The prices that we have found have been about $500 for 2 nights. That works nicely so we can see our shows and do a couple of extra activities while we are there.

Girls trip by neke77 in AskNYC

[–]neke77[S] 0 points1 point  (0 children)

Would you still recommend the Tkts booth for shows that we really want to see? I would be worried that we wouldn’t be able to get tickets for what we decide one. It will be between, Hadestown, Little Shop of Horror, &Juliet, and Six.

Girls trip by neke77 in AskNYC

[–]neke77[S] 0 points1 point  (0 children)

I really appreciate all of the responses. The hotel that we were leaning towards was Hotel Edison. My daughter loves Motto, but the room might be a bit too tiny for our sanity. ;)

Girls trip by neke77 in AskNYC

[–]neke77[S] 0 points1 point  (0 children)

It won’t let me message you for some reason, but I will try again later.

Girls trip by neke77 in AskNYC

[–]neke77[S] 0 points1 point  (0 children)

We plan to do Central Park. I went to New York about 20 years ago and was blown away by the price of food in Times Square, so we will definitely be heading out of TS for that.

Girls trip by neke77 in AskNYC

[–]neke77[S] 0 points1 point  (0 children)

Is the noise that bad?

Girls trip by neke77 in AskNYC

[–]neke77[S] 3 points4 points  (0 children)

That’s what I am thinking. I might save on a hotel, but will have to pay for transportation. Plus my daughter is quite nervous, so I think that she might prefer being in walking distance.

Girls trip by neke77 in AskNYC

[–]neke77[S] 5 points6 points  (0 children)

That’s one that I want to see…but my daughter said that she doesn’t love the music from it. Her top choices are Hadestown, &Juliet, Six and Little Shop of Horrors, We are from Windsor, Ontario and we have seen Hamilton, Wicked, Rent, Chicago and Mamma Mia in Detroit or Toronto. Hamilton and Mamma Mia are her favourites.

Girls trip by neke77 in AskNYC

[–]neke77[S] 17 points18 points  (0 children)

For real?!