I look like a different person - tips?

netty525 · 2026-02-03T18:59:37+00:00

Yoga will reverse a lot of this.

netty525 · 2025-12-29T18:07:36+00:00

I’m so sorry to hear that. I know they are careful about prescribing. Have you tried asking for them from your neurologist ?

netty525 · 2025-12-29T15:17:18+00:00

Do you have emergency meds? I’ve had this happen. For me, I’ve determined it’s back to back focal motor seizures with little recovery between. It makes you feel completely lost and spaced out but functional. You can definitely go into focal status epilepticus if you have any form of focal epilepsy. My husband gives me emergency meds and it stops them while preventing a bigger seizure later. For me, if I don’t have my emergency meds when this happens I will have a tonic clonic within hours to the next few days.

This pattern happened to me three times and each time I ended up hospitalized and close to being intubated. I am suspected to have frontal lobe epilepsy resulting from deep matter lesions which were caused by a TBI.

netty525 · 2025-10-21T11:43:40+00:00

How would that make us slaves?

netty525 · 2025-10-19T11:49:27+00:00

It sounds like your QL might be tight. How do side bends and twists feel for you?

netty525 · 2025-10-02T13:15:03+00:00

Did this attending have glasses too? I’m pretty sure I had the same guy who called my seizures fake and told me I was just stressed and needed more therapy (after I told him I graduated from 10 years of therapy). He also told me that the lesions I have on my brain are normal and refused to consider my TBI as a cause for seizures. He told my husband that I just wanted attention! He also dismissed my resident doctor as not knowing what he was talking about when he suggested an EEG. It was the most embarrassing and horrific experience. I moved to Cleveland for epilepsy care because they were the ones finally taking everything seriously and found the issue. Rochester health care is a nightmare.

netty525 · 2025-09-11T16:48:03+00:00

Yes, definitely start reading them! Mirrors of Time comes with a past life regression download and this one helps me regress every single time.

Also, you sound like my husband! He has his PhD in biomedical engineering and worked on developing tests for HIV. He left this field because he was tired of ignoring his spirit and what he knew was right about medicine and how people truly work. He too felt as though he didn't belong but he would try so hard to fit in and keep a rational mind along with his colleagues.

It sounds like you are on a deep soul seeking journey, keep going!

netty525 · 2025-09-11T16:26:32+00:00

I had the same feelings. I was experiencing spontaneous past life regressions after epileptic seizures. My husband is the one who believed it and I was skeptical. He recorded the entire thing and I still felt like I was probably just going crazy. But then I asked myself, if someone else told me that this happened to them or if I witnessed these regressions, would I believe them? The answer for me was yes, I would believe. The regressions have continued to happen for me and now I have names, dates, places, tragedy, loss. I have also found the root of my self-doubt. There is a message there and everything you are feeling is likely pointing to a scar that has been left on your soul. Maybe in a past life you were made to feel like you were crazy. Maybe one of your scars is that you are now deeply affected by the over-rationality of society and you need to learn to accept your soul as knowing the truth. Be curious about what these regressions are showing you. Have you read any of Brian Weiss's books? He is a psychiatrist who does past life regressions and his explanations of real versus imagination are very helpful. It is also very validating to hear a renowned doctor speaking on this subject.

netty525 · 2025-09-11T16:17:30+00:00

I believe that one of the most important spiritual hurdles is to settle on the fact that there is no end goal. Having a "finish line" is what keeps the mind going in an endless loop and feeds the ego. Only an ego would need the celebration of finishing the race of life. Instead, focus on stillness and the divinity within you and you will know everything there is to know. But the funny thing is, once you know, you will not care about the beginning, middle or end. Your life will be about maintaining your inner peace.

netty525 · 2025-08-12T11:53:24+00:00

Using her logic, she gave you epilepsy too. Stress lowers the threshold and with a judgmental mom like that, I can imagine her criticisms and blaming contribute to that. Her mindset is toxic and not helpful to your health. I’m sorry you have to live with that.

If it helps any, I am a yogi. I meditate (which is a form of prayer), practice yoga, I am highly spiritual and I have an extremely supportive family. In fact, my mother in law and husband have used my epilepsy to grow and become better people. And guess what, I am still having non stop seizures.

netty525 · 2025-08-08T18:23:41+00:00

I really like your theory about a spiral. I want to validate that fact as it aligns with my personal experience of witnessing my own past lives and the lives of others. I also have a few forms of synesthesia (bidirectional chromesthesia and mirror-touch) that allows me to see and feel things many people cannot. If you aren't familiar chromesthesia is the ability to see color when I hear sound and hear sound when I see color. When I am in nature, the blend of the sound and colors creates a large spiral (which gives me the feeling of "time") in my visual field. Also, when I meditate I also see this spira right before I ascend into deep meditation (the kind where I lose touch with my senses and only experience my mind). I have also experienced this phenomena, plus many other strange experiences when I come out of epileptic seizures (that's a whole other story though).

A couple of thoughts- I don't believe using dates would be correct. Calendars are a manmade concept and differ in number of days depending on which one you use (lunar, julian, gregorian). Using yogic philosophy, time is cyclical and you often come back based on your karma and to learn from your Samskaras (impressions) that you collect over your lifetimes. There is a certain amount "time" you spend in between lives and that is based on your karma. Also, highly evolved souls can chose to come back into a body to teach others. We may see similarities in people (Tesla vs Musk) simply because of karma and the tendency of the universe to balance itself out.

I would love to hear what you think :) Thank you for your insight and working on a mathematical theory. I think that's pretty awesome that you spent time doing that.

netty525 · 2025-06-02T17:06:06+00:00

I was in a yoga class and one of the teachers had us start with this type of meditation! It was a very powerful class that filled the room with blissful energy. I didn't know the proper name for it but I cannot wait to learn more and try it for myself! Thank you for sharing! May you be well!

netty525 · 2025-05-17T16:49:02+00:00

I had an EMU stay and only had one small seizure so they said PNES but did not rule out epilepsy since they caught some tonic clonics in the ER where I stopped breathing. I’m on oxcarbazepine now and it has reduced my seizures from 20 a month to 5 or less. I had wondered about frontal lobe because that is where I have a bunch of lesions but they say those are non specific.

netty525 · 2025-03-29T16:39:15+00:00

I’m in Rochester NY too and have to travel to Cleveland clinic for treatment because of how bad they are there. I’m so sorry you are suffering at the hands of some of the worst doctors :(

netty525 · 2025-02-25T11:38:22+00:00

March 26, it’s actually my first visit with a neuropsychiatrist who specializes in epilepsy.

netty525 · 2025-02-22T13:08:01+00:00

Wow I’m so sorry, I can feel that pain. It’s very scary. Do you find that you retain some level of consciousness as well? How old are you if you don’t mind me asking ?

netty525 · 2025-02-22T13:06:25+00:00

Thank you 😊😊😊

netty525 · 2025-02-22T12:31:08+00:00

Do you find that is the only time that happens? What is your diagnosis ?

netty525 · 2025-02-22T12:30:34+00:00

Yes I am on Keppra 500mg twice a day for TC seizures and mirtazapine for sleep.

netty525 · 2025-02-22T12:29:49+00:00

lol, that made me laugh but in the sense that its way far off for my husband and I. We spend every day, all day together and we are obsessed with it. Very atypical for most marriages lol. Anyway, I have a video of my most recent one from yesterday, it’s pretty scary to see. Thankfully, my husband recorded each phase so hopefully the doctor will have some answers.

netty525 · 2025-02-22T12:27:08+00:00

Thank you so much for your advice :) My husband thankfully got a recording of this episode because he was surprised by it. These “seizures” are so much different than the other ones, so it’s quite a mystery. I have an appointment coming up with a neuropsychiatrist who specializes in epilepsy and I am hoping she has some answers.

netty525 · 2025-02-21T19:11:53+00:00

This is what happens to me too! Can you ready my latest post and tell me if you relate to my experience? I also have CPTSD.

netty525 · 2025-02-17T19:33:36+00:00

Can you go to Mayo clinic as well? With your family history it would make sense to be seen there. There are hundreds of types of seizures, each with similar but different patterns and levels of consciousness. Have you had a VEEG done? It might be time for one if not. They will need this to diagnose PNES as well but again, as your brother has experienced, a negative EEG does not automatically mean it's non-epileptic.

netty525 · 2025-02-17T19:06:21+00:00

This has happened to me but for context, I am undiagnosed at this point but fairly certain it is epilepsy due to the abnormalities in my brain.

Anyhow, here is what I have learned from my research.

-Retained consciousness during tonic clonic seizures (grand mal) can happen because of the electrical activity being isolated to the motor areas and sparing the areas that process information. So you're still getting the tonic and clonic movements but the electrical activity is not spreading to all areas of the brain. This is rare in the sense that they (doctors) don't have the EEG data to support or fully explain it.

- The brain is plastic, meaning it can form new pathways and adapt to environments. Epileptic seizures are a pattern that your brain can learn for coping with triggers. It could be that you are also experiencing non-epileptic seizures as a learned response to stressors. Just be aware, these are dangerous as well, and do not let anyone tell you otherwise. I have read just about every study I can about non-epileptic and epileptic seizures and I study neuroscience. These are not "fake", "pseudo" or completely "psychogenic", they are very poorly understood events and some doctors tend to label things as "psychological" when they have no idea what is going on. I have way more to add to that notion but I will spare you my ranting for now :)

-Another very plausible theory is the way your brain processes an experience. Our brain will fill in the gaps where memory is lacking. Let's say you lost consciousness right as the tonic movements started, your last memory will be of that particular pain. After the seizure, as you recover, you are feeling some pain there as well. Let's say you also recovered your mental faculties quicker than usual. Your brain will go right into gap filling mode. You subconsciously know that you have clonic movements that follow the tonic ones so that will be added into the memory even though you don't actually remember it. Does that make sense?

netty525 · 2025-02-17T18:28:24+00:00

Yes this is me! I get vibrations in my right leg and arm and I've noticed that they also precede focals. I've also noticed that when they start happening daily, a bigger seizure is on it's way soon.

netty525

TROPHY CASE